Thank you all for your continued support, I do know you are still all praying and reading, it is enough to know that, honestly
If you read the updates you may all see differences in writing styles, this is because some days I write the updates and sometimes David does but it always says posted by David because we are logged on the site as administrator and that is David, so sometimes I am actually David
Today I came to the hospital and Becca was still asleep, I greeted her after around five minutes (I was bored) and she slowly came around to say Good Morning. I asked if she had slept well and she said she had slept well for which little time she was given but a lot of the night had been taken up with 4 lots of total bed linen changes. She is on so much liquid that her daiper cannot possibly hold the output. During the day it is not so bad as I can change her immediately but in the night, even if the call button is answered as she is peeing they just don't get there in time to stop the leak. She is being given a little less liquid today.
The drama of the blocked feeding tube continued into this morning. Last night the nurses tried numerous ways to try and get it unclogged, Water, Sprite, Coke.........Coke was left in it overnight to see if it's magical properties of getting oil off driveways would help with the stubborn clog but it was still clogged up this morning. They had one more thing to try and if that didnt work it would be down to intraventional radiology to have another tube placed. The "Draino" for NJ/NG tubes was brought in. It was put down the tube and left for one hour to do its job. After an hour and a lot of pushing and pulling sterile water the clog finally let go!!
All of Becca's IV antibiotics finished today!! All she has to take now is one antibiotic via her NJ tube (orally eventually), she will be on this for around a year or more, it is more of a prophylactic (preventative) that an antibiotic to treat current infection.
The stomach cramping/nausea still continues...... Not so bad today as she still hasn't had any feed going down her tube because of the clog issues earlier in the day, but cramps and nausea are still with us. She felt nauseous this morning and was given Zofran and again this afternoon at around 4pm when again she was given Zofran. Because all last week she wasn't really tolerating her formula, I put it to the doctors that maybe we could try the formula she was on previously which up until the Penicillin issues she seemed to tolerate quite well, so today she will go back to the Jevity at around 25ml per hour, they are going to raise it by 5ml every 4 hours until she reaches 40mls which is what she was at yesterday before the tube blocked up. The doctors are still saying that the stomach cramps and intermittent nausea due to her belly/gut trying to start its regular work again, so we shall sit tight for a while and play the waiting game in hopes that her belly and gut will sort itself out.
Becca HAS done most of her therapies today, headaches have played a big part in stopping her though......Saturday, Sunday and today she has complained of mild to severe headaches, she went through a couple of days worth of bad headaches last month though, so again we play the waiting game to see if they resolve themselves.
Love Mandy