ANOTHER Adventure in Autism (4/15) A Taste of What's to Come...

I just love Tricia's pin set!!!!!!!!!

Aunt Rae sounds like a wonderful Aunt :goodvibes

It's so frustrating that The Disney Store here doesn't sell pins :mad:


The Tink shirt is cute :cloud9:


You're a very lucky wife Kathy. Ed is a definately a keeper :upsidedow

The nurse Minnie is sweeeeeeet :woohoo:
 
Pre-Trip #38:


Just a Little Mood Music...


I’m always listening to music when driving around in the Mom Mobile (minivan.) :drive: Now that we’re just 2 1/2 weeks away from our WDW vacation, I get extra-special enjoyment from listening to our Disney “mood music.” :thumbsup2



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Disney.'s Greatest, Vol. 1&2: The classics! Some Day My Prince Will Come....Under the Sea....A Dream is a Wish Your Heart Makes....Beauty and the Beast... Ahhh! They never get old! :goodvibes

Disney Sing-Along: Same classic songs, with both vocal and instrumental versions added in if you want to do some kareoke-type singing! Hakuna Matata...Zip-eh-dee-doo-da....Part of Your World....When You Wish Upon A Star... Always fun to sing along at the top of your lungs! :rotfl:

Wishes! This is an album of Disney Classics performed by various stars in support of the Make-A-Wish Foundation: In addition to some of the songs you may have heard on the radio (A Whole New World~ Peabo Bryson & Regina Belle, Can You Feel the Love Tonight ~ Elton John), there are other, lesser recognized songs like a jazzy version of The Bare Necessities performed by Tony Bennet and Bette Midler singing Baby Mine with such tenderness that it brings a little sniffle everytime you hear it! :sad1:



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These aren't necessarily "songs", they're Disney storybooks & stories on CD... great for longer trips when the kids aren't into watching a DVD. (And fun for us "big kids" to listen to, as well!)



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Okay, these are definitely great CDs to listen to as you're preparing for a WDW trip! I purchased these at WDW; :confused: I'm not sure if they're available elsewhere:

Where Magic Lives: The "Official" Album with musical themes from attractions at all four theme parks: Magic Kingdom: The Welcome Medley.... Enchanted Tiki Room.... A Pirate's Life for Me....Grim, Grinning Ghosts....It's a Great, Big, Beautiful Tomorrow...Epcot: Soarin'.... One Little Spark.... Canada (You're a Lifetime Journey)...Golden Dream...Disney Studios: Hooray for Hollywood....Star Tours....Indiana Jones Theme....Animal Kingdom: The Tree of Life Theme....It's Tough To Be A Bug....CTX Theme (Dinosaur)...and many others. What can you say? Brings the theme park memories rushing back! ::yes::

Disney's Happiest Celebration on Earth: Very similar in theme to above, but with some tunes specific to DisneyLand attractions, such as: Indiana Jones and the Temple of the Forbidden Eye....Tarzan Medley....Rainbow Caverns....Roger Rabbit's Car Toon Spin...as well as the DisneyLand 50th Anniversary theme song, Remember When, by LeAnn Rimes.

Magic in the Streets: Parade Memories: Music and character voices from the Share a Dream Come True Parade, the Disney Stars and Motorcars Parade, Mickey's Jammin' Jungle Parade, and the now defunct Tapestry of Dreams Parade. Very energetic, really puts you in the party mood! :woohoo:

SpectroMagic: My favorite parade! :cloud9: 14 minutes of pure joy!


If I can, I'd like to get the CD soundtracks to Wishes! and Illuminations this year. Disney music is always great, but there's nothing quite like "park music" to really get you excited about your trip! :thumbsup2

Goodnight All!


Kathy
 

Hey Kathy,

I got Magic of the Street in August. LOVE IT:thumbsup2

You're getting close:cool1:
 
2 1/2 weeks! :cool1: I can get all excited all over again... I :love: reading your trip reports :)
 
I wish I had the foresight to stock up on WDW CDs, but I always look at them when I'm down there and never seem to buy one.:confused3

I'll have to make sure to get some this time:thumbsup2
 
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Kathy, I love your music selection. (Note to self: try to find some to bring with us in November!) :rolleyes1

Seriously, love your report, your wit, your love of all things Disney! :flower3:


Sara
 
Great booty and great music. We also started collecting CD's from the World. My favorite is the Epcot CD.

Goof ---> :lmao: LtP always wanted a tire gauge but kept forgetting around the holidays. Anyway, she's got a lot of new "cooking" items (like the Chop Wizard & Fry Daddy) over the past few years.

They never really appreciate the amount of work we go thru to buy them just the right gift.
 
Would you believe I don't own one Disney music CD?


JoJo has a few that I've borrowed for adding music to the videos I've made.

Guess I should pick up a few for myself.
 
Pre-Trip #39:


Doctors and Hospitals...


So, we’re down to TWO WEEKS and it’s such a relief to have some actual trip-related stuff to do!

Begin packing... Check.
Reserve car service to and from the airports... Check.
Make shopping list for Garden Grocer... Check.
Go to the Emergency Room... Check.

Whoa, back up! The Emergency Room? What has that got to do with our trip? Well, Aunt Rae thinks it’s got a lot to do with our trip since she was the patient!

I was just finishing up a half-day at work when I received a text from Ed saying that he had taken Aunt Rae to the ER and to meet them there when I was done. “Uh Oh,” I thought. “Here we go again.” About a month ago we needed to take her to the ER when a varicose vein on her ankle burst and she couldn’t stop the bleeding. :sad2: Kind of scary, kind of messy, but not life-threatening. I just figured that the same thing had happened again and made a mental note to pack some extra gauze pads and tape in our first aid kit for Disney.

I went home and changed quickly (too confusing to be hanging around the ER in my scrubs). Not knowing how long I’d be there, I grabbed a quick sandwich and then shot over to the hospital so that I could relieve Ed, who was actually working at the time.

“What’s up?” I asked as I entered the treatment room.

Aunt Rae looked about as glum as she could be and said, “Kathy, I can’t walk on my left foot.” Her ankle was hot, red and swollen. “What happened?” I asked.

“I don’t know. My foot was a little puffy last night, but this morning it was so painful that I couldn’t walk!” She shook her head, “And only two weeks before we go to Disney!” She looked about ready to cry. :sad1:

Ed did his best to make light of the situation. “Don’t worry, Aunt Rae, Kathy will get you one of those scooter things and you can zoom around Disney and run everybody over!” :moped: We laughed, but Aunt Rae looked anxious. “I don’t think I could drive one of those things,” she said doubtfully. “Well, then we’ll get you a wheelchair,” he said. “Don’t worry… you’re going!” And with that, he kissed us both and left to go back to work.


Well, long story short, we found out that it wasn’t a blood clot. Turns out Aunt Rae had fallen victim to an acute case of gout. Armed with an ace bandage and prescriptions for steroids and pain pills, we left the hospital and got her settled at home.


It’s three days later and she’s feeling better. Steroids are amazing drugs! (But I did some research just in case we do need the wheelchair.) Aunt Rae is just too nervous to try an ECV. In fact, she tends to get nervous a lot.

“Look,” she told me after coming out of her doctor’s office. “I asked him for something for my nerves for the trip.” She showed me a prescription for an anti-anxiety medication. “You know how you can get on vacation…not being able to sleep and everything.” I nodded to be polite, but in truth, I can’t even imagine not being able to sleep when we go to WDW! I fall asleep as soon as my head hits the pillow most nights.:faint:

“I told the doctor that I was going to Disney in two weeks and he said, ‘Good, you should go!’ so everything should be alright.” Aunt Rae is from that generation that still thinks of the doctor as a god… if the doctor says so than it must be so. I’m hoping that that’s not always true.


We were able to get Billy in to see a pediatric neurologist Thursday for examination after his teachers observed what looked like a petit mal, or absence seizure. I had possibly observed a small one the night before that, as well. The doctor was pleasant and efficient, and ordered the tests I expected she would. She listened to our concerns about getting him evaluated before our Disney trip and promised to see him once more before we left.

Unlike what I expected, however, she did not seem to feel that the seizures were related to the OCD medication. “Many children who are autistic develop epilepsy,” she explained. “Sometimes the seizures are the “staring” kind, but sometimes they progress to the convulsive kind, so you need to be prepared.” She gave us a hand-out explaining first aid for seizures… nothing new to either Ed or myself. I left the office feeling that our questions were still basically unanswered, and would probably remain so until we received the results of his diagnostic tests.


And so, we took Billy to get his blood drawn yesterday for a battery of tests: metabolic, chromosomal, and hormonal (thyroid). He’s had them all before, but it’s been about five years, so it can’t hurt to repeat them. Hoo-boy, that was fun. :scared: Ed had to wrap both his arms and his legs around him and I had to hold his arm out. He actually was quite good, all things considered. He seemed more upset about having to wear the band-aid afterwards. (Billy does not like band-aids, on himself or on anyone else.) So, we just left it on for about 5 min and then took it off. :banana: “Hooray! Boo-boo all gone!”

However, the most important test, the EEG (which measures brainwaves), was not able to be scheduled until our return from WDW. Oh well, what can you do. It is only two weeks away.


Two weeks?? As in 14 days?

Yikes! That's coming up soon!


Kathy
 
:hug: Kathy. My prayers to you and the family. I know about the EEG. My sister in law gets them often. Usually she stays in the hospital overnight so that she can have the test done for a continuous time period, KWIM. Will Billy have to be in the hospital or with they do it outpatient?

Glad to hear Aunt Rae is okay. I actually was hit with a bout of gout (no rhyming on purpose!) and it was VERY painful. I was fine after a week or so fo the steroids and other med they gave me so here's some pixiedust: that it will be the same for Aunt Rae.
 
:grouphug: :grouphug: Glad everything's ok with Aunt Rae, and you will hopefully get some answers for Billy soon.
 
:grouphug: Group hug for you all. So sorry to hear of Aunt Rae's troubles. I hope she feels better before the trip.

So glad Billy got in to see the doctor, although I am sorry you don't have questions answered yet. Poor little man having to get stuck with needles :guilty:.

I can not believe we are both 2 weeks away from this trip :yay: !!

You have a couple more trips to look forward to and I have already planted the seeds for starting more trip planning here :thumbsup2. I told Bill this morning "tell me when you want to go, I need to start planning" :lmao:. Lord, help me, I am a Disneyoholic.
 
Kat said:
I left the office feeling that our questions were still basically unanswered

Sounds like every time we leave after a doctor's visit with Trey. :sad2:

LtP needs to read this. She's just so busy. I'll send her the link.
 
Glad to hear Aunt Rae is on the mend.

Billy is in our thoughts. Hope everything turns out fine. :goodvibes
 
Thank Goodness Aunt Rae is okay!

Maybe it's a good thing she won't use the ECV if she's taking meds to calm her down!

2 weeks! yay!
 
My mom had epilepsy (it went away with menopause which they are still trying to figure out) and she was on Tegritol. I don't know what drugs are out there & how they would interact with any of the other drugs (if any) that Billy is on. Anyhow, the Tegritol totally controlled the convulsions. If she took it at the same time daily & in general kept a normal schedule (you know, mealtimes & bedtime at the same time each day, etc.) then it did not effect her life at all. So don't be too nervous.

And I saw many a nervous woman on the ECV's. Just have Ed hop on when you have to parallel park in the buses if Aunt Rae ends up needing one. I saw many a woman get off, climb into a seat, and have the younger man in the group park. I can't imagine the pressure of having every one in line wait on me while I parellel parked!!!!! I'd do it wrong for sure.

2 weeks! Yippee skippee!
 

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