franandaj
I'm so happy, I could BOUNCE!
- Joined
- Nov 15, 2009
- Messages
- 37,723
Wanted to check in. My first infusion was Monday. It was ABSOLUTELY HORRID.
Oh my gosh, you poor dear! I read your experience with horror. Fran has been doing infusion therapy for 15 years or more with no experiences like that. How awful. I hope you've recovered.
I go back to my specialist Nov 28th and see what the next game plan is. I am almost afraid to try anything else.
Ask about Enbrel, Humira, or Xeljanz (pronounced Zel-janz). I'm not sure what insurance you have, and they may be pricey, but the first two are injections that you self administer and the third is a pill. They just released a once a day version.
felt kinda weird taking a drink from one bar to a different restaurant.
I would have felt weird as well. Actually taking a drink out of a bar at all is weird to me.
Definitely would go back to spend more than 5 minutes here.
I'm hoping I can convince Fran to go there in March, even for 20-30 mins.
What did I do? Well, I had fun too! I got to meet up with Cindy
How fun!
I found Anara who was dancing like a mad woman. I joined her and danced like one too.

Sheer adrenaline carried us through the evening as we'd been awake now for almost 48 hours straight.
Like I said above, I don't know how you did it. Dinner would have done me in. Belly full, go to bed.