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We are home! It was absolutely amazing, almost a perfect trip! (We had one hiccup where we had to take Hannah to first aid because she was getting too hot). Between my pics (over 700), the disney photopass pics (over 225), and the GKTW pics (about 30), I am overloading the shutterfly...

We are home! It was absolutely amazing, almost a perfect trip! (We had one hiccup where we had to take Hannah to first aid because she was getting too hot). Between my pics (over 700), the disney photopass pics (over 225), and the GKTW pics (about 30), I am overloading the shutterfly...

Nine hours until the limo comes to pick us up!!!! Ethan and Abby are still wide awake and can't sleep because they are "just so excited Mommy!" All the bags are packed (except for some toiletries). We ended up with 8 carry-ons for the five of us including 2 medical bags and my purse, so...

Nine hours until the limo comes to pick us up!!!!

Well, for those of you who follow my blog, our departure got pushed back about 14 hours so we actually don't leave until Sunday morning. We were bummed at first because we are missing the GKTW easter festivities, but in the scope of this entire trip, it is just a very minor thing! So our...

I packed up the kids clothes tonight! Yep, it is finally time to get this party started. Thanks to the AMAZING amount of big give outfits, the only thing I had to add for daytime for Abby was a pair of long pants, a pair of shorts, and a sweatshirt! She has been hooked up by such...

I'm so glad to hear you are okay too! After reading that you got sent to the ER, MY heart skipped a beat! As for us, guess what I started doing tonight -- PACKING!!! I'll go into more details on our PTR, but I took the plunge :) Question for everyone: Do you know if we need a carseat...

It is so weird to see 6 days on our countdown! I know it is true, yet I feel like it has become so far away. We haven't done hardly any planning in the past week or so, which is so not like me! I've got Ethan and Abby home for spring break this week, so we will definitely start getting...

And time for some more big give pics!

And time for some more big give pics!

Time for more pictures!! I finally got a chance to get Hannah in some of her amazing outfits she received from the big give. We were only able to get through a few of them because she got worn out from all the changing, but she looks so dang cute in the ones we did try on! I'm going to...

Looks like our trips will be crossing, and we will be there at the same time for a few days! :) We have the same issue as you. We are bringing a days worth of formula with us on the trip and having Hannah's medical supply company (Apria) send the rest to GKTW. I talked to GKTW, and they said...

Ethan, Abby, and I have already started raiding our Target store for future big gives!. I think it is also a fantastic lesson for the kids who receive big gives before the trip to pay it "give" to another family because they know how exciting the 'receiving' is! Also, it keeps the magic alive...

On a completely separate note, I am trying to get Hannah's cause on facebook to 2500 members by her birthday in July. If you are on facebook and would like to help us in the fight to save our daughter, just go to http://www.causes.com/causes/158205 and become a member and help us spread...

TEN more days. 10! 10! 10!!! Oh my, wow!!!!!!! I can't believe how fast this process has been!!! We put in the request on January 25, met with the MAW grant team on March 4, and we are leaving for Disney on April 23rd! Crazy, crazy!!!! We are meeting with our MAW volunteers on...

I can't believe we are almost down to single digits. Yikes!!! We are meeting with our MAW team on the 21st in the evening to go over everything, and then a limo is picking us on up on the 23rd and we are heading out of here! I have always loved Disneyland. We lived in Southern...

Does anyone have any experience with compounding pharmacies in the Kissimmee area? We are hoping we won't need it, but we want to be prepared just in case. Thanks!

And this is only half of what I have left to post! I still have about 5 or 6 more gifts that I still have left to download from my camera! My kids have been showered with so much love! I just wanted to share some of the amazing big give gifts we have received so far!

I just wanted to share some of the amazing big give gifts we have received so far!