when to call about food allergies (not just note on ADRs).

lillykat

DIS Veteran
Joined
Jul 24, 2001
Messages
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Down to the 60 day mark. When is the best time to call about food allergies. 30 days? 45 days out? I don't want to call too soon.

We have adrs at:
Akershus
CRT
garden grill
san angel inn
via napoli
plaza restaurant
sci fi
chefs de france

Does anyone know about cakes and birthdays? If I wanted to do a cake for a birthday at CRT how does that work with food allergies.

Also getting conflicting info...for those with dairy allergies who can tolerate some items baked with milk but no cheese, yogurt, ice cream, butter. Some are saying if you put dairy allergy they won't let you have anything with dairy. DD can eat limited things like a cookie or bread. Others say we should list it as an intolerance for those who have a minor dairy allergy how did you handle it. Contact is not an issue. It is confirmed allergy, but does follow more similar to an intolerance. We also have other allergies to shellfish, chocolate, oranges and strawberries. The child is 5 btw.
 
Down to the 60 day mark. When is the best time to call about food allergies. 30 days? 45 days out? I don't want to call too soon.

We have adrs at:
Akershus
CRT
garden grill
san angel inn
via napoli
plaza restaurant
sci fi
chefs de france

Does anyone know about cakes and birthdays? If I wanted to do a cake for a birthday at CRT how does that work with food allergies.

Also getting conflicting info...for those with dairy allergies who can tolerate some items baked with milk but no cheese, yogurt, ice cream, butter. Some are saying if you put dairy allergy they won't let you have anything with dairy. DD can eat limited things like a cookie or bread. Others say we should list it as an intolerance for those who have a minor dairy allergy how did you handle it. Contact is not an issue. It is confirmed allergy, but does follow more similar to an intolerance. We also have other allergies to shellfish, chocolate, oranges and strawberries. The child is 5 btw.

I cant help you with the phone call. We've personally never called. Last time I was allergic to: peanuts, tree nuts, eggs, shellfish, wheat, oats, coconut, broccoli, sesame, ginger. I am also allergic to all raw fruits and vegetables except grapes. I am also allergic to soy but only soy protein....not soy lechitin or soybean oil. Same with sunflower. I'm allergic to sunflower seeds and butter but not sunflower oil. But I marked everything as allergies.

For us, the chefs seemed to understand that most people allergic to soy proteins can have soy lechitin and soybean oil so I was still able to get fries even though they contain soy lechitin.

But for things like eggs and dairy, I think they take it very seriously. They treat all allergies very seriously and I have heard that they will refuse to serve anything with that allergen even if the individual says its okay. I think it's a precautionary thing. I understand why they do it, but I understand why it can be frustrating as well. But I don't know from experience because my egg allergy is so severe that I cannot tolerate it in any form even in baked goods. Ad now, same with dairy. I was just diagnosed recently and I have mild reactions to baked things with dairy.

So I think it really depends. If you mark it as an allergy, they don't ask about severity. They treat all allergies the same as far as I can tell ( mine range from mild to anaphylaxis) but it doesn't hurt for you to ask.
 
To be honest with you, I don't think calling is going to accomplish anything other than taking the chef's time away from helping somebody who is there right now trying to order food. If you mean just calling the special diets department, there is nothing they will do besides offer to give you the form they can email. I would email special diets, ask for the allergy form, email it back and just talk to the chef when you arrive. The form will ask for all of your ADR's and where you are staying. If you talk to the chef you are still going to have to talk to them when you are there, it's not like they are going to plan your meal and just bring it out by name. If you send in the form they will see that you are coming and know to have something you can eat, but your list seems easy enough to avoid I wouldn't worry about it. Even if you don't send in the form you are going to be fine.

Whether the chef lets you have baked in dairy will vary by chef, but they will have enough food that has no dairy you could just leave it at dairy free and be fine. They will have dairy free cookies at every TS, even if they don't expect you.
 
To be honest with you, I don't think calling is going to accomplish anything other than taking the chef's time away from helping somebody who is there right now trying to order food. If you mean just calling the special diets department, there is nothing they will do besides offer to give you the form they can email. I would email special diets, ask for the allergy form, email it back and just talk to the chef when you arrive. The form will ask for all of your ADR's and where you are staying. If you talk to the chef you are still going to have to talk to them when you are there, it's not like they are going to plan your meal and just bring it out by name. If you send in the form they will see that you are coming and know to have something you can eat, but your list seems easy enough to avoid I wouldn't worry about it. Even if you don't send in the form you are going to be fine.

Whether the chef lets you have baked in dairy will vary by chef, but they will have enough food that has no dairy you could just leave it at dairy free and be fine. They will have dairy free cookies at every TS, even if they don't expect you.

No I have no desire to speak with the chef now, that seems silly what would they do now? Do people do that? Yes I meant special diets, everyone on here made it seem like it was a must to call special diets before the trip. Not sure how easy it is from friends who came back told me the cookies they were offered were always chocolate. My DD is 5 and eats tons of fruit she was very sad on our last cruise bc they always offered her fruit. We let her have treats on vacation. She was looking forward to getting some fun things bc her friend told her all the things she had with allergies. We dropped the dining plan for that reason. I am thinking most places won't have much of a choice and we might do better away from the table. She will be sad if she has to watch us all eat dessert while she gets just fruit.

Still looking for info on a cake as we will be celebrating both girls' birthdays there.
 

Down to the 60 day mark. When is the best time to call about food allergies. 30 days? 45 days out? I don't want to call too soon.

We have adrs at:
Akershus
CRT
garden grill
san angel inn
via napoli
plaza restaurant
sci fi
chefs de france

Does anyone know about cakes and birthdays? If I wanted to do a cake for a birthday at CRT how does that work with food allergies.

Also getting conflicting info...for those with dairy allergies who can tolerate some items baked with milk but no cheese, yogurt, ice cream, butter. Some are saying if you put dairy allergy they won't let you have anything with dairy. DD can eat limited things like a cookie or bread. Others say we should list it as an intolerance for those who have a minor dairy allergy how did you handle it. Contact is not an issue. It is confirmed allergy, but does follow more similar to an intolerance. We also have other allergies to shellfish, chocolate, oranges and strawberries. The child is 5 btw.


I would call 7 days in advance to the regular special diets line.

If you are planning on having Disney make the cake call CRT asap and start working on them with that. They may try to sway you towards almond milk or soy based cakes since milk is an allergy. Although you say it is more towards an intolerance the Disney Chefs tend to be very very careful because they would hate anyone on vacation to have an allergic reaction. If you do say milk in cake is okay they might just make you verify that and might even make you sign something saying you know milk is in the product just to cover the butts in the event something goes wrong.

I am lactose intolerant and never say anything about it but that is a personal choice. DBF has a lobster/crab allergy that we never list because they only ever have shell fish and he can have shrimp (went to an allergist and was told it is pretty common to only have lobster/crab alleger) so we just ask if the stock has lobster or crab for seafood dishes and if it can be made with out it.

So in short call CRT and talk to them for the cake everything else just call the special diets a week before you arrive.
 
No I have no desire to speak with the chef now, that seems silly what would they do now? Do people do that? Yes I meant special diets, everyone on here made it seem like it was a must to call special diets before the trip. Not sure how easy it is from friends who came back told me the cookies they were offered were always chocolate. My DD is 5 and eats tons of fruit she was very sad on our last cruise bc they always offered her fruit. We let her have treats on vacation. She was looking forward to getting some fun things bc her friend told her all the things she had with allergies. We dropped the dining plan for that reason. I am thinking most places won't have much of a choice and we might do better away from the table. She will be sad if she has to watch us all eat dessert while she gets just fruit.

Still looking for info on a cake as we will be celebrating both girls' birthdays there.

People do try to call the chefs. I feel like it gets asked here a lot but it may just be that I always notice it. It sounds like a great idea until you really analyze it.
As for her always getting fruit, DS won't eat fruit and didn't get any on our trip. They will have at least one non-dairy ice cream everywhere you go- a soy and a rice- and they had vanilla everywhere we went. Some places could offer items from babycakes. Even some of the dole whip flavors don't have dairy. You could check of the pineapple has orange in it. I know my son was brought the larger sized enjoy life cookies a lot- some had chocolate and some didn't, but I didn't track exactly which were where because he is allergic to all of them. (buckwheat flour is a main ingredient...) Over the two weeks we were on property he had dessert everywhere we went and chocolate was involved twice. He won't eat strawberries or oranges and also has shellfish and dairy allergies, which is why I felt good saying your daughter should be ok.

Sometimes it seemed like they almost had one option in mind and we had to ask if there would be anything different... you might actually do better if you go with the option that is their go-to for people with more allergies. (lets pretend she is also allergic to grapes or wheat or eggs for this meal) and suddenly there is some new option on the table. With being gluten free sort of trendy right now they may suddenly have a non-fruit option if you ask that way.

It's only my opinion, but with your food being in somebody else's hands I would keep dairy completely away. Even among chefs some people just don't get it and next thing you know they may be putting butter on some other part of the plate because milk was ok in the bread. Even if the reaction isn't bad it's not worth the risk on vacation. Allergies are unpredictable and chance could make that the day she has a bad reaction to dairy. I told the chef at Hollywood and vine that soy lecithin is ok and he gave DS a soy based waffle. Made with soy flour. Not anything like the same thing.
 
Since you have some uncommon allergies, I'd say email Special Diets. These days they recommend no more than I think around 45 days before your trip. I would ask some specific questions such as will there be dessert options for your DD since she's allergic to chocolate and many of the allergy products are chocolate. You'll likely have to email back and forth a few times in order to get somebody to recognize that you're actually asking a question, but keep doing it. If you didn't have any specific concerns then just filling out the form is more than enough but with specific questions/concerns it is IMO worth the hassle.

I've had different experiences with different chefs as to how much they listen to the severity of the allergy as far as cross contamination and small amounts cooked in goes (my kids and I can handle cross contamination of peanuts but not of many of our other allergens and my kids can handle very small amounts of lemon but only small amounts). Some will be extremely cautious and refuse to serve anything with even a cross contamination risk while others will really hear what you're saying and will serve foods that meet the level of acceptable that you state is safe. You'll have to find out at each location.

The allergy cakes these days I believe are typically by Babycakes. At least the ones we've gotten have been. Is her allergy only oranges or does she have problems with other citrus fruits? I'm asking because they do have a very small amount of lemon juice in their frosting. I think that there may be a few locations that do their own allergy cakes. I don't know if CRT is one of those.

Oh, important note. The GNI bread that's used in a lot of places around WDW uses oranges for an enzyme. I won't let my kids touch it because they react to even trace amounts of oranges. Before I realized it, one of my kids was in a lot of pain from Ener-G bread which uses orange fiber. The Udi's products don't have any oranges. Some chefs went out of their way to get Udi's products for my 12yo. I'd ask Special Diets about the availability of Udi's products anywhere that you think she may want bread products (hamburgers, hot dogs, bagels, rolls). Again, you'll likely have to email back and forth in order to get them to recognize that you have an actual question but it's worthwhile. Then again, if she can handle milk baked into foods then she's probably fine with the regular bread in which case you can ignore all of this about the breads.

ETA: I notice that you have several ADRs are restaurants not owned by Disney. Personally I try to avoid those every since we ate at Chefs de France and had pretty much our most frustrating allergy dining experiences. I since found out that the non-Disney restaurants are not nearly as well equipped as Disney ones to handle allergies meaning they don't have the allergy products and frankly some of them just don't care (like at Chefs de France when we ate there; DD15 who was 10 at the time ate a bunless burger with dressingless salad and even getting the waiter to talk to the chef about the allergies was difficult and the chef acted like we were putting him out by talking to us).
 
Re: the dairy allergy - it's going to depend on the chef. I am in the process of figuring out some sort of "issue" with dairy - I suspect it's an allergy but don't want to admit it, lol. I did not have any problem by saying to the chefs, "trace amounts and cross-contamination are a non-issue, I just can't handle large amounts of dairy." That seemed to work okay, and I did not have any major issues on the trip that I am aware of (although again I am currently trying to pin down symptoms/reactions so take that with a grain of salt.)

Generally they have tofutti and rice dream available. I was able to have a dairy-free (or mostly dairy-free) sundae at Beaches and Cream, and then an "ice cream" cone later (I don't know what's in the cone and I did not ask, so it may not be safe.) I also had a PB&J "milkshake" at 50's (well, Tune In Lounge.) Plus Dole Whip is now dairy-free :) (This doesn't take into account her other allergies and cross-contamination, like if you're worried about oranges and dole whip, just what I was able to eat on a brief weekend trip.) We did not really eat TS aside from the shop at B&C - a typical TS will probably have more options.

It's a different allergy, but I can say that the chefs allowed my BFF to make a judgement call with tree nuts. She listed it on the form, but we explained it to the chefs like this: She has a severe latex allergy that went systemic a couple of years ago, causing massive cross-reactions to food. While she was figuring out what caused the cross-reactions, she limited things severely, but eventually got it down to the top cross-reactives (bananas, kiwi, avocado and chestnut.) Because chestnut is a tree nut, she opted to go an extra step and avoid ALL tree nuts, and listed them on the form. The chefs would always explain that they could not guarantee the breads - made in a central bakery - were TN free, but she explained she had never had a TN reaction and was comfortable with taking the chance. They were okay with serving them to her.

I would probably list milk on the form, but make a note that she can have some limited/trace/baked amounts of it. Depending on her reaction, I might make a different call - if she accidentally gets a bit too much, is it a tummyache or difficulty breathing, kwim? Better to list and be refused than not list and be served... we have learned that the hard way.
 
Just how severe is the orange allergy? From what people have reported, at Aloha Isle mixes all of the different flavours in a single pail, one after the other. It's a cross contamination risk. At the Polynesian in Captain Cook's they only serve vanilla and pineapple. The pineapple is completely milk free. The vanilla is lactose free but does contain casein. The pineapple would be a cross contamination risk for casein since it's self serve and people are not careful about how they handle their Dole Whips so you'll need to decide if she can tollerate a bit of cross contamination or not if you want her to try the pineapple.
 
CMC, I didn't know that about mixing in the same pail. We have a friend hoping to join us later in the year that has just had orange added to her list of allergies, so I appreciate it. (Sorry for the thread jack, OP.)
 
The way I understand it, they do rinse the pail, but it certainly didn't come across like it's anywhere near a thorough enough cleaning for people who have to be careful about cross contamination. For those who aren't as sensitive then it's perfectly fine.

I'm surprised at how many people I'm seeing on here lately who are allergic or intollerant to oranges. Until recently, I hadn't spoken with (in real life or online) anybody with orange issues outside of Interstitial Cystitis forums that I used to check out from time to time (it's a very common trigger food for IC).

You know, I don't see this as a hijack. OPs DD can't have milk or oranges making this perfectly relevant. Anyway, it's a friendly hijack if it is one. :thumbsup2
 
Ha ha thanks. What's funny is I met the same friend for dinner tonight who reminded me that in the same visit, her allergist diagnosed her as "severely allergic" to pineapple (based on prick testing, I think... they had done a massive panel.) Yet she had had pineapple for breakfast that very morning! If she is feeling okay with pineapple, a rinse will probably be okay. Hopefully the OP's daughter is not sensitive enough that she is precluded from having some as well :)
 
Ha ha thanks. What's funny is I met the same friend for dinner tonight who reminded me that in the same visit, her allergist diagnosed her as "severely allergic" to pineapple (based on prick testing, I think... they had done a massive panel.) Yet she had had pineapple for breakfast that very morning! If she is feeling okay with pineapple, a rinse will probably be okay. Hopefully the OP's daughter is not sensitive enough that she is precluded from having some as well :)

Thats happened to me before. Thats why most allergist go based on symptoms + test results. Not just test results alone.

I tested highly positive to sweet potatoes and I eat them all the time. The test was wrong.
 
We have never called ahead. We list on our ADR but always ask for the chief on arrival so not sure if it really does any good to list at all. You allergies are unusual so if you want special foods ordered, it might help to call ahead. We have found some chief are fine with us explaining what we are and are not comfortable with our DS having, and others refusing to bring any item that could contain the allergen in any contact sense. We learned not to mention the resolving egg allergy on recent trips and just monitor that one our self. He is fine with baked egg products and we just know to avoid dressing etc BUT we know the worst that he will do is develop a rash. We would never do that with his PA.

We have not had a lot of extra special things done for DS like some people have, BUT we really do not ask a lot. We generally ask what safe desserts they have and almost ALWAYS it is vanilla ice cream with sprinkles. It's fine with DS so we don't push it. There are some places we avoid. Depending on the shell fish reaction, you may or may not want to avoid some of the sea food places.
 
disfan07 said:
Thats happened to me before. Thats why most allergist go based on symptoms + test results. Not just test results alone.

I tested highly positive to sweet potatoes and I eat them all the time. The test was wrong.

Allergy tests can have false positives. I know for my allergist they test me once with the prick then we retested a month later after not being on those products to see if I felt better and if the test had different results. My friend is going through the same process right now.
 
Definitely not a false positive. DH and I both have/had food allergies. I used to be alleegic to mustard ( made my lips swell like a balloon) growing up. DD is definitely allergic. Chocolate and orange gives her either hives or small very itchy bumps all over if she ingests it, but is okay with contact or someone eating it next to her. But definitely don't want her eating them bc she will very uncomfortable for 1-2 days. Benadryl makes her hyper I try to avoid giving it to her if possible. Milk on the other hand the doctors thought she was lactose intolerant. She get diarrhea, makes her feel like she has to cough, gives her a feeling like something is coming up in her throat, and bad stomach pains. She can have bread or cookies and they don't bother her, but no butter on veggies, no dressings like ranch, no cheese, yogurt etc. She tested positive on allergy testing, which surprised everyone. She is allergic to shrimp and crab. That is her worst allergy. I assume they have a separate fryer?

We don't eat out with her a lot. We had a bad experience with a Celebrity cruise and she had a hard week. One of the things we are excited about is that everyone says they do a great job. Don't get me wrong when I say she won't want fruit. She loves it and eats a lot of it and a lot of veggies like broccoli and asparagus. I know they can accommodate her allergies, but I just am trying to prepare so we don't get, sure we could have easily done that if you gave us notice, kwim? Not looking for special treatment she eats drumsticks, grilled chicken, chicken fingers, steak, pb&j so if we could get steamed plain veggies (ones already on the menu) or some fries she would be in her glory. We decided not to do the dining plan bc we didn't want to be locked into desserts in case they couldn't give her something good, we can find something else. She often likes salads anyway. Honestly I just want to be prepared so she can have the best experience.
 
Definitely not a false positive. DH and I both have/had food allergies. I used to be alleegic to mustard ( made my lips swell like a balloon) growing up. DD is definitely allergic. Chocolate and orange gives her either hives or small very itchy bumps all over if she ingests it, but is okay with contact or someone eating it next to her. But definitely don't want her eating them bc she will very uncomfortable for 1-2 days. Benadryl makes her hyper I try to avoid giving it to her if possible. Milk on the other hand the doctors thought she was lactose intolerant. She get diarrhea, makes her feel like she has to cough, gives her a feeling like something is coming up in her throat, and bad stomach pains. She can have bread or cookies and they don't bother her, but no butter on veggies, no dressings like ranch, no cheese, yogurt etc. She tested positive on allergy testing, which surprised everyone. She is allergic to shrimp and crab. That is her worst allergy. I assume they have a separate fryer?

We don't eat out with her a lot. We had a bad experience with a Celebrity cruise and she had a hard week. One of the things we are excited about is that everyone says they do a great job. Don't get me wrong when I say she won't want fruit. She loves it and eats a lot of it and a lot of veggies like broccoli and asparagus. I know they can accommodate her allergies, but I just am trying to prepare so we don't get, sure we could have easily done that if you gave us notice, kwim? Not looking for special treatment she eats drumsticks, grilled chicken, chicken fingers, steak, pb&j so if we could get steamed plain veggies (ones already on the menu) or some fries she would be in her glory. We decided not to do the dining plan bc we didn't want to be locked into desserts in case they couldn't give her something good, we can find something else. She often likes salads anyway. Honestly I just want to be prepared so she can have the best experience.

I have to say, even with all of my allergies I was able to eat a lot of the menus with some minor modifications. I really dont think you will have a problemw ith those allergies at all but thats just my opinion. I'll give you some examples:

My allergies at the time were: peanuts (anaphylaxis), eggs (anaphylaxis), all shellfish(anaphylaxis), tree nuts (anaphylaxis), wheat (moderate), oats (moderate), sesame (moderate), broccoli (moderate), soy protein (mild), coconut (mild)
In addition all raw fruits except grapes (mild to moderate reactions), and all raw vegetables (mild to moderate reactions)

Crystal palace (twice) plain salmon, ratatouille, mashed potatoes, beet salad, cucumber salad, grapes, sautéed green beans, carved beef,

The plaza (twice)cheesesteak (no cheese extra sautéed peppers and onions) with/no bun and grapes instead of fries. Enjoy life cookies for dessert (free of all top 8 allergens and chocolate....they were the sugar crisp and snicker doodle cookies)

50s prime time: I got the salmon off the menu except they substituted different vegetables for me. They also have dairy free ice cream for shakes but I don't do that because they use too many nuts for me to be comfortable.

Sci Fi: nachos for an appetizer. Got a burger w/no bun with tons of sautéed onions and mushrooms and fries

1900 park fare: I got beef, salmon, chicken, roasted potatoes, sautéed veggies, grapes, and enjoy life cookies for dessert with soft serve ice cream w/ surf sweet gummy trEats on top.

We ate somewhere else I think but I don't remember...lol.

At POP century where we stayed I was able to get:
GF/DF/egg free/soy free Mickey waffles. But if she's okay with dairy baked in things than she's probably okay with regular waffles I'm guessing?
Allergy chicken tenders (again, don't know if she'd be okay with regular because of baked dairy)
Grilled chicken with GF pasta and tomato sauce w/ sautéed veggies
Deconstructed burger with bacon, sautéed mushrooms, onions and peppers

At the other foods courts I ate allergy chicken tenders, roasted veggies, deconstructed burgers (no bun), fries, grilled chicken, GF pasta (sunshine seasons)

I did eat some dairy. At the time I hadn't tested positive for a dairy allergy but now we think I am allergic but at the time it was just some GI pain if I ate too much so I made sure to limit it. I ate dairy at crystal palace, Sci Fi, 1900 park fare. Otherwise, I asked for thinks without cheese (burger, cheesesteak) and they were very accommodating when I said lactose intolerance (which is what we thought it was at the time )

We brought a lot of our own food because we didn't expect the accomodations to be so wonderful but we ended up throwing out almost all of the food we brought because it wasn't necessary. I was too stuffed from the meals.

I think with snacks and treats, she will actualky have a fairly easy time especially since eggs and nuts are not an issue. There are a lt of things that don't have chcolate. And if she can have dairy in baked goods, im guessing she can still have cupcakes, cookies, etc so that helps. And I think almost all places carry enjoy life cookies (which are dairy free) and tofutti or rice dream ice cream.

Truly, from my experience, I don't think you will have any problems. I think she will eat very very well. But I understand wanting to be prepared but honestly, we did nothing but mark the allergies and our service and food was all wonderful.

Hope that helps and I hope you have a great trip.
 
Definitely not a false positive. DH and I both have/had food allergies. I used to be alleegic to mustard ( made my lips swell like a balloon) growing up. DD is definitely allergic. Chocolate and orange gives her either hives or small very itchy bumps all over if she ingests it, but is okay with contact or someone eating it next to her. But definitely don't want her eating them bc she will very uncomfortable for 1-2 days. Benadryl makes her hyper I try to avoid giving it to her if possible. Milk on the other hand the doctors thought she was lactose intolerant. She get diarrhea, makes her feel like she has to cough, gives her a feeling like something is coming up in her throat, and bad stomach pains. She can have bread or cookies and they don't bother her, but no butter on veggies, no dressings like ranch, no cheese, yogurt etc. She tested positive on allergy testing, which surprised everyone. She is allergic to shrimp and crab. That is her worst allergy. I assume they have a separate fryer?

I would be sure to ask at every single location if you want separate friers.
I have been told that they do and that they don't even at the same location... I am skeptical. One scenario I've heard is that they have separate friers but them some story about how when they clean them the oil gets mixed? That confused me because I didn't think they could drain and reuse it, but I don't have much food service experience. Digression aside, like everything else ask when you are there.
 
I would be sure to ask at every single location if you want separate friers.
I have been told that they do and that they don't even at the same location... I am skeptical. One scenario I've heard is that they have separate friers but them some story about how when they clean them the oil gets mixed? That confused me because I didn't think they could drain and reuse it, but I don't have much food service experience. Digression aside, like everything else ask when you are there.


Yes, I plan to skip the cs places that have fried shrimp or shellfish on their menu just in case...or just do pb&j and grapes those places.

Thank you everyone!

Has anyone gotten a specialty cake to crt with allergies?
 




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