Vent

[SBubba18]

*Please don't trash what I am going to say, It's just how I'm feeling right now.*


Hello. I am Rebecca. I am a 16 year old sophmore, and I'm living with asthma, pro long QT syndrom(heart), binine brain tumor, and now maybe diabetes. I went and saw my asthma docotor back in January for a follow up appoinment from being in the hospital in Dec. I was doing great, and so I asked her if I could run track. She told me to go right ahead and my lungs will be able to handle it. So I talked to my parents about it and they agreed. We went out, bought shoes, socks, and everything I need for track. I started going to conditioning and I was doing great. They had me set up to run sprints and maybe distance a few times. Well, my parents told me I can't run anymore. They told me it will be to hard with everything I'm living with.

I just want to live a normal teenage life. I feel like I'm not doing that. Going to doctors. Being in the hospital. I'm on medicine that is really working for me now. I haven't had any asthma trouble since Dec. Not even during the track I got to go to.

My little sister plays soccer. Indoor and outdoor. She wants to run for her middle school team. My parents agreed to let her run. But they wont let me. I just don't get it. They think I can't do anything. I'm not even allowed outside in the 2 feet of snow we have now. I am stuck inside all winter, then in the summer I'm stuck inside because it's to hot or humid out. Basically, I am living my life in my house. Not getting out. My sister is always gone at her friends house, or out to eat with him. I can't do that because something might happen.

I am sick and tired of this. I was always okay with it until high school. When I saw how a teenager is supposed to be, I wanted to try it out. But I can't. I can't be like my friends. I just wish I was like my friends. I wish my parents would let me run. I wish I was able to go outside and have a snow ball fight with everyone on my street. But I can't.

Okay, rant over. Once again, please don't trash it. I know that there are other people out there that is dealing with stuff worse then me. I just needed to get how I feel out there. I have had it all bottled up for to long.

 

[reminisce]

you said you wanted to try being like a teenager when you saw the way they were supposed to be. you need to remember that no matter how many problems you may have with your health, theres always worse. while it may seem unfair, and while you may be right if you think that, a little optimism goes a long way. i know i probably didnt help, but thats what i think

 

[DramaQueen]

I don't think anyone would really trash you for that.
it's understandable.

anyways, my opinion is that maybe you should pick an after school activity that isn't possibly harmful to your health. with all those health problems i think you should be worried about your health as well.

i toooootally understand that you want to do normal teenager stuff, but not all normal teenager stuff involved running and being super active, you could do drama, it looks like you're already in band, you could be involved in school committees, and you could watch movies, play video games, go to parties with your friends with little risk i think.

I have a friend who has severe asthma, and it's hard for her mom to let her stay over at my house or go to parties and stuff because she doesn't want anything to happen to her, but my friend talked to her mom and told her that
she knows all the risks, she knows how to deal with it if she has a asthma attack, she knows to ask for help or alert someone if she needs to.
Just myabe have that kind of talk with your parents.
Do your research, learn anything and everything you can about your medical conditions and let your parents know that you wouldn't want to do anything that would put yourself in danger.

I understand your parents position as well though, if I had a daughter with so many medical conditions I would be scared that something would happen to them.

So, my advice would be simply talk to your parents, tell them that it makes you jealous when your sister gets to do all that stuff and that there are some things you would like to try. Make sure you let them know that they don't have anything to worry about.

 

[DramaQueen]

you said you wanted to try being like a teenager when you saw the way they were supposed to be. you need to remember that no matter how many problems you may have with your health, theres always worse. while it may seem unfair, and while you may be right if you think that, a little optimism goes a long way. i know i probably didnt help, but thats what i think

i kind of agree with that.
when i read this i immediatley thought of Sonya. hug: sonyyaaa!!)

 

[Californiagurl13]

So what... I had spinal surgery and now I can't bend. I also have pre-lupus syndrome and fibromyalgia, acid reflux disease, gastritis, IBS, asthma, hypertension, a hernia,raynaud's disease,heart mummurs,palpitations, enlarged heart, leukopenia, and I recently had a really bad case of bacterial pneumonia and an ear infection and mouth fungus because of teh antibiotics..!!.... No offense......

 

[STOPxmickeytime]

Caligirl, I don't think she meant to say "Look how sick I am, feel bad for me"
It's not a contest.

And yeah, I totally understand what you mean.
I was really sick for a longgg time in 7th grade, and my parents had me quarantined in my house/hospitals the whole time.

I agree with what Caitlin said, just try talking to your parents about it.
But if you get worked up and think you're going to start yelling, cool off for a little.
Because I know that whenever I start yelling, my parents just tune me out or get angry.

Good luck!

 

[Californiagurl13]

Caligirl, I don't think she meant to say "Look how sick I am, feel bad for me"
It's not a contest.

And yeah, I totally understand what you mean.
I was really sick for a longgg time in 7th grade, and my parents had me quarantined in my house/hospitals the whole time.

I agree with what Caitlin said, just try talking to your parents about it.
But if you get worked up and think you're going to start yelling, cool off for a little.
Because I know that whenever I start yelling, my parents just tune me out or get angry.

Good luck!

I did not think of it as a contest. Thanks!! (Sorry for being mean)

 

[imabrat]

Please don't take this the wrong way,because I don't intend for it to be mean.

WELCOME TO MY LIFE!! lol.
I can totally relate. Prior to Friday,I hadn't seen most of my friends since last June when school ended. I'm constantly in and out of hospitals,on different medications,getting diagnosed with different medical complications.
It stinks because you just want to be normal again,fast forward a couple months and pretend it never happened.

It IS OKAY to get jealous at your friends/sister for going out being with friends,etc. I've had my fair share of that feeling,and it's normal.
If you didn't miss going out,having fun,hanging with friends,I would question your social abilitly. (Sorry,brain is fried,can't think of the right terminology.)


Right now you need to focus on YOU. Focus on getting better and then coping with how you need to live your life for your own safety.
Forget about those other guys, YOU are most important right now.

PM me if you ever need to talk.
If I don't reply,chances are I'm sick as a dog in the hospital.

 

[goob9954]

Tell your parents to talk to everyone that you might come in contact with.

Go to your nearest doctor who tells you how to deal with it (Disney term accident).

Maybe your doctor could give those people a talk about how to deal with something in an emergency.

They can know what kind of medicine you take if you do. No offense if you don't take any medicine.

I had a little brother who always had to go to the doctor for something. He had cerebral paulsey, a high jondus level, a trach, a feeding tube, and a buch of other stuff that i don't know

 

[m-and-m]

i've been diabetic for 4 years and it still isn't under control. my mom dosen't let me do anything either. try sitting down with you family and brainstorming activities you can do

 

[Californiagurl13]

Please don't take this the wrong way,because I don't intend for it to be mean.

WELCOME TO MY LIFE!! lol.
I can totally relate. Prior to Friday,I hadn't seen most of my friends since last June when school ended. I'm constantly in and out of hospitals,on different medications,getting diagnosed with different medical complications.
It stinks because you just want to be normal again,fast forward a couple months and pretend it never happened.

It IS OKAY to get jealous at your friends/sister for going out being with friends,etc. I've had my fair share of that feeling,and it's normal.
If you didn't miss going out,having fun,hanging with friends,I would question your social abilitly. (Sorry,brain is fried,can't think of the right terminology.)


Right now you need to focus on YOU. Focus on getting better and then coping with how you need to live your life for your own safety.
Forget about those other guys, YOU are most important right now.

PM me if you ever need to talk.
If I don't reply,chances are I'm sick as a dog in the hospital.

Thanks!!!

 

[pigletgirl]

That sounds like no fun! But, look at the bright side. Think of the things you CAN do. So, who cares if your little sister plays soccer and wants to run. Be happy for her. You need to do the things that is safe for your body. Pushing yourself too far with asthma can be extremely harmful. Do you like art, photography, reading, ect?

 

[Californiagurl13]

That sounds like no fun! But, look at the bright side. Think of the things you CAN do. So, who cares if your little sister plays soccer and wants to run. Be happy for her. You need to do the things that is safe for your body. Pushing yourself too far with asthma can be extremely harmful. Do you like art, photography, reading, ect?

Exactly!! YES... I love reading, but only medical stories for eample: cancer stories( love those) and wierd medical cases....etc...I am currently healing from pneumonia so I have to take it easy and not fatigue myself. (they said it heals in about 4-6 weeks) Thanks fro the advice, pigletgirl!!