Urg! Very bad day!!

[tacomaranch]

Hi friends,

I just have to go on a rant before I explode! As you know we are waiting to either get our contract ROFR or buy direct DVC.


I am very close with my DS Godparents and their family. They are my second family and even so much that upon my death they are the legal guardian of my DS. I love this family and they love my son.

My wonderful son, Hunter has autism. We work an ABA program in our home 30 hours a week and it take 3 aides each week and myself to run this program. He has gone from 13 words in June to full verbal now! My son can look you in the eye and talk to you. IT has been hard work for him and everyone else.

When Hunter is in Disney, for a few short days he is not autistic, he is just a normal little boy thrilled to be in Disney. He smiles, laughs, and brings joy to me. His skills jump each time we go and that is why I am buying him DVC.

One of Hutner's God Sister is also one of his aides. Emily comes down every other day as part of her school program to help. Yesterday she says she can't make the team meeting. She seemed so sad. Of course I was upset but told her it was ok, she is part of our team and we don't team unless everyone is there. I also called her mom, as I was worried, again Emily seemed so sad.

Come to find out Emily doesn't want to work the program! Now our program is at risk! Even worse...

I had asked Emily and Hailey, the God sisters to come with us to Disney. I can't take of Hunter myself in Disney. His needs make it very hard. The God parents gave us their Bonnet Creek timeshare and I bought airlines tickets for everyone!

Last evening not only do I find out that Emily is quiting the program, the girls are not going to WDW with me! I have been crying the entire nite.

Friends, I need help with my son, I need a place to stay and my DS needs his program. Why??? WHY?? is life so hard? Why can't our trip just be magical? Why is it all at risk?

I am working desperately with a member here to try to get a studio for DS and I by renting points. I didn't budget having to rent a place to stay!

So please say a prayer for us, pray that we can make it in Disney, that we can find a place to stay and that we can find some money!!!!

I thank you for reading this just being here. I am so in tears and upset and just want this to be magical.

April

 

[gtrist4life]

Prayers and pixie dust to you that you work something out.
Hang in there!

 

[Parkhopper13]

I will be praying for you and sending you some pixie dust!!!

 

[DisDaydreamer]

Hi April,

I'm sorry this is happening to you. I will pray for your situation. Keep your faith and try not to let that special mother's smile escape you. I went through some very horrible situations with my daughter (she is 26 now) and I guess the one thing I have learned is that our imagination typically presents a worse outcome than is usually the case. Somehow you have to believe this will get worked.

Rob

 

[pb4ugo]

i can't believe that the god family pulled the bonnet creek digs out from under you, too!

perhaps your state's respite care program can be of some assistance:
http://ddd.state.wy.us/Documents/heather1.htm

my grand-nephew shares in the autism diagnosis and my niece has received much help thru respite caregivers.

take a deep breath, give hunter a big hug and tell yourself that things will be better tomorrow - there just might be a higher power pulling the strings to let you know that the planned trip is not the right time to be going to wdw.

prayers and best wishes for you and for hunter.

 

[OKWMom]

Oh April, I am so very sorry. I know you are reeling right now, but after the hurt of it all subsides (in a day or two) you will be able to think more clearly. I’m sure you will find a way to work it out so you can get Hunter to Disney. I agree his vacation is important, and because it is, you will find a way.

The girls who have worked with my daughter have become like family to us and it is always hard when one of them leaves. There have been several times when I cried for days after losing one particularly close to me. I know it is harder because of your prior (and ongoing) relationship, but you don’t want her working for you if she really doesn’t want to be there. You know how hard ABA is to do correctly, and your program is only as good as the people working it.

By the way, I normally take at least one of my daughter’s therapists when we travel to Disney. At first, I did it because I needed the help. Now they go because they want to. This year, all three of them are going. It makes for quite a merry stay in the 2br villa. But I wouldn’t have it any other way.

Good luck, and let us know when you have worked everything out.

 

[lillasmom]

Pixie dust to you to find a way to make everything work out.

 

[calypso*a*go-go]

April,

Sorry to bring this up, but maybe with all the things that have happened regarding your upcoming visit, you should just look at rescheduling after you find out if your DVC contract clears ROFR...then you can use your own points instead of renting. Can the airline tickets be changed (even if there's a fee involved)? I know you want to bring Hunter to WDW really bad, but this seems to be causing so much anxiety for you, maybe you should just wait until things calm down a bit. No trip should be this stressful.

 

[dianeschlicht]

April,

Sorry to bring this up, but maybe with all the things that have happened regarding your upcoming visit, you should just look at rescheduling after you find out if your DVC contract clears ROFR...then you can use your own points instead of renting. Can the airline tickets be changed (even if there's a fee involved)? I know you want to bring Hunter to WDW really bad, but this seems to be causing so much anxiety for you, maybe you should just wait until things calm down a bit. No trip should be this stressful.

I agree. Take a deep breath and cross your fingers on that ROFR. It will be the easiest way.

 

[tacomaranch]

Hi calypso*a*go-go,

Wow, what a past day and continuing today. I am going to keep faith and believe this is going to happen.

You are right it is stressful and not fun as it should be. I think that because there are so many other issues, like having lost a team player in our ABA program and also the complexity of the God family.

I need to make sure that as upset as I am that I also respect Emily for telling me she doesn't want to work the program. As a young woman in High School I am sure it is hard for her to figure out things. She did what she had to to do.

I truly am puzzled at the God parents canceling the trip???? Then to leave me with airfare knowing that I don't work??? I can't leave this undo and plan to speak with them Friday evening to clear up the unspoken agendas.

Friends, this family will take care of my son when I die. He will need help the rest of his life and I can't let this problem get in the way of this bigger picture. I need to find out what is going on with the God family and let them know that although I don't like what happen I am compassionate and understanding. This is not going to get in the way of what Hunter will need for the rest of his life.

Yesterday and today have been bad, yes. It will work out, we will go, maybe it will be hard but I think we can do this.

Finally, friends, I appreciate the thoughts and kindness for you just reading and helping me along. I am just in tears and needed to vent. I can't accept any points. Is it pride? Yes, I can't lie. I was raised that we are to give to others and the pure joy is in that giving. I try to live by this. It is the most kind thing that has happened and I am grateful. I sure do want to say thank you from the bottom of my heart. I know that we will go to WDW, I do have faith that this will work out and we will have a great time.

I am working with a wonderful member from this board, I don't know if he wants to be mentioned yet, but he is selling me points and making the arrangements at $9 per point. I didn't have lodging budgeted in this trip so it is a big surprise!!!

We will make this trip and things will settle. I once again say thank you to all!

Blessings, April

My faith holds strong, and this will happen. I am most likely more upset than what I should be.

 

[Mich Mouse]

Prayers and love from our family to yours!

 

[calypso*a*go-go]

Sounds like things are going to work out for you.

In the meantime, it definitely sounds like you need to have a good heart-to-heart with your Godparents to find out what's going on. It could be that there's just some silly misunderstanding that motivated their decision to back out of the trip. Good luck!

 

[tacomaranch]

I did just have a heart to heart with the Godmother. It truly is just that the girls will be missing too much school. Nothing more. Our school district has a rule of missing so many days and then they epxell the student.
I am happy to know it was nothing more than just that. They are going to buy the cost of the air back from me and settle with the airlines.

So now we are just waiting to see if one of the college girls from summer will come. They both said no and then one called back asking to come with Hunter and I.

I told her to please just pray about it and sleep on it. I am also going to do the same. It has been 24 hours of dissappointment and I need a rest. I felt as if I was on the barnstormer all day long.

Good things will happen and I have faith. Good nite my friends, stay tuned tomorrow around 2 pm for what happens next.

Warm and wonderful nites, April

 

[jakenjess]

I really hope it all works out for you. You'll be in my prayers.

 

[tacomaranch]

Thanks friends,

I feel better after a good nites sleep. I woke up thinking that it is not just enough to live life but to live life with compassion, forgiveness and truth.

Emily came to me and told me the truth. Hard to do for a H.S. gal. Then her parents, our God family told me more bad news knowing it would hurt me but I give them credit for being honest.

I have choices. I can be bitter, mad, react badly but I am desperately trying to understand the good in this.

Yes, I am still so very sad, More tears will flow, I have been let down and my plans are ripped apart.

The only thing I can control in this mess is how I react and how I treat others.

I have spoken with the God mother and now I know more. There is nothing more to it than the girls just can't miss so much school. They did not really see it when I made the flights. I didn't want to ask about loosing the Timeshare as I will find a way to make it work.

Through it all my DH is amazed and even offered to quit his job to so we wouldn't be alone. Of course he can't do that. I have come to see that I won't be alone. I will be a huge family that also loves Disney. I will talk to strangers.

If you see us, please come up and say hi, sit down and eat a meal with us, or just walk with us. I am going to go to WDW with my Dear wonderful happy son and this will work out.

The only thing I can control is how I deal with this and how I treat others.

Blessings, April

 

[DisDaydreamer]

Thanks friends,

I feel better after a good nites sleep. I woke up thinking that it is not just enough to live life but to live life with compassion, forgiveness and truth.

Emily came to me and told me the truth. Hard to do for a H.S. gal. Then her parents, our God family told me more bad news knowing it would hurt me but I give them credit for being honest.

I have choices. I can be bitter, mad, react badly but I am desperately trying to understand the good in this.

Yes, I am still so very sad, More tears will flow, I have been let down and my plans are ripped apart.

The only thing I can control in this mess is how I react and how I treat others.

I have spoken with the God mother and now I know more. There is nothing more to it than the girls just can't miss so much school. They did not really see it when I made the flights. I didn't want to ask about loosing the Timeshare as I will find a way to make it work.

Through it all my DH is amazed and even offered to quit his job to so we wouldn't be alone. Of course he can't do that. I have come to see that I won't be alone. I will be a huge family that also loves Disney. I will talk to strangers.

If you see us, please come up and say hi, sit down and eat a meal with us, or just walk with us. I am going to go to WDW with my Dear wonderful happy son and this will work out.

The only thing I can control is how I deal with this and how I treat others.

Blessings, April

April, You are right... the only thing you can control is how you handle the situation. I think you are going in the right direction. Keep in mind that your circumstances are not your fault, but you can calm the seas to make it better. I know you know that, but sometimes it comes to a critical mass, and keeping calm and making decisions that help work your way out of the woods is all that will get you out of the woods. I understand the personal responsibility factor... it is hard, but keep your head up and take control as best you can. You are going to get through this mess and be stronger for it.

Truly, my prayers for you and your family, Rob

 

[Chuck S]

A reminder....point solicition and organizing, not matter how good the cause, is prohibited on the forums unless pre-approved by Webmaster Pete. I'm having to remove some posts from this thread. I'm sure it was not the intent of the OP to solicit donations. Please refrain from including anything on the subject in your posts.

 

[dgaston]

What are your dates in January? DD23 and I are going Jan7 to Jan14 and would love to back you up if we overlap. HTH

 

[tacomaranch]

Hi Debbie and Friends,

I just got home from a long day in Jackson Hole and am exhausted. We are bringing two of our horses up to St. John's Episcopal Church tomorrow for the live animal market. It is a wonderful program in which to local residents of the area come up to see all of God's creatures. They them make donations for that animal. The Church then takes all the donations and buys animals for villages in third world countries. I am excited to be part of this program and give back.

As for our Disney trip. We are going and we will have the magic and joy of Disney. No one can take this away from us. No one can say yes, no, take away a timeshare, cancel a ticket. We have Disney!

I know there are rules that govern this board and I respect said rules. I never meant for this to be anything other than I really need to vent to others who understand how devastated I was to loose my Disney because of others. I was not looking for charity or donations. I do appreciate the kindness of my friends here on the Dis.

If allowed, I wanted to share and a person who requests to remain anonymous, a wonderful woman in the midland has given us a very nice Merry Christmas present. She has given us points to stay in a studio when there is one available at OKW. The rest we will figure out.

Debbie and friends, you have seen our picture and please come to say Hi to us. Please remember us and please join us in the fun! Eat with us, talk to us in line and I will see you in Disney.

Blessings, April

 

[byoung]

Good luck.