Updates on AVERY. (good news update pg 33 post 489!)

New to this particular board...adding my prayers for Avery. He is adorable.
 
Prayers said for Avery and for you Ann. I wasn't even aware that this board existed until I saw one of your posts on the Community Board.
 

That pic, as cute as it is, is from 4 years ago :)
Here is a more recent one...last Easter!
ef2ad63c.jpg


We had some more hopeful news today, that the good type of WBC are still slowly increasing which means his immune system is trying to kick into gear. This could bring some new concerns of course with an increase in pain levels, but we are trying very hard to focus on just the good news and continue to send Avery only healing positive thoughts and prayers!!

Thank you again for all your continued prayers and support, it is so deeply appreciated by my whole family.
 
It is so heart warming to hear a bit of good news. I am focusing on sending good vibes to Avery tonight so he can sleep without pain.

I agree with you, your son and DIL are amazing. It must be taking every ounce of their strength.

It sounds like they have an ever growing cheering squad around the world. I hope they continue to feel the prayers, hopes and well-wishes.

Thanks for posting the pictures. He is truly a beautiful child.
 
Ann,
He is such a handsome little man!!! I am so happy that he is still moving in the right direction. I sent an update out to the prayer chain at my church today. We are all still praying! :hug:

Tracey
 
I just checked in tonight to see if you'd heard anything. I'm focusing on the good news and praying for him to have the strength to power through the pain. With all our prayers behind him he can do this! He's got a terrific support group!

Thanks for the picture. It helps me to "see" who I am praying for. Now I have a face to attatch to the name. He's darling! I'll keep praying and I'll pass on the latest update.
 
Oh, Ann , he is adorable! I didn't know this board was even here til I saw you mention it on another thread or I would have been here sooner. I am glad for a bit of good news tonight and will continue to keep Avery as well as your whole family in my thoughts and prayers. (((HUGS)))
 
Cute baby, adorable boy.....you all make beautiful children up there in New Hampshire...

We need to get that smile back on that face and as fast as we can and without too much pain... So let's go Avery, you show them how tough New Englanders are and kick those bad guys out of your body.......

Hugs to you Ann and we are praying here... thanks for keeping us updated. I am so happy to see some of our original Disers coming to this thread to support Ann and her family..

Go Avery!!!!!!!!
 
Sending more prayers from down here in Louisiana. Started at 5 am.

Go get 'em, Avery!!!
 
very handsome boy Ann :goodvibes
thanks for sharing that picture!!

continued prayers...
 
Firday morning report: there was more pain/restlessness issues during the night but after 3 am Avery slept better and this morning's labs showed some more positive results...the neutrofils (sp?) which are the infection fighting white blood cells have gone from 50 Tues to 150 yesterday to 300 this morning!! :thumbsup2 This is excellent as far as infection fighting, but the resulting swelling and pain issues are likely to increase as well.
What a fighter he is, and what power we are seeing with all the prayers and positive energy he's getting!!
 
That is good news today, Ann. Will be praying for his pain and swelling to stay under control. Hang in there! :)
 
I have been busy doing all sorts of last minute things before we leave tomorrow, but I wanted to check in to see if there were any updates. I am so thrilled he is improving! I will continue to keep him and the whole family in my prayers.

Also Ann, if you think it might brighten his day, I would be more than willing to send him a postcard from Mickey. PM me sometime today with an address, and I will shoot one out early next week so he will get it by Christmas.

Laura
 
He's a fighter! Way to go Avery! :cheer2:

What great news. I'll keep praying for those numbers to keep creeping in the right direction and for pain and swelling to be at a minimum.
 
I am praying for infection fighting, but am also praying no pain as well.....I hate the pain part of it, it breaks my heart.

Hugs Ann, you take care of you too.....more prayers coming from Cape Cod..
 
uuughh...the roller coaster continues...
this afternoon Avery was taken to have his central line removed and it will be checked if this is where one of his pesky infections ( a yeast fungus?) has originated, it has not responded to the anti-fungal meds he's been getting. They will put in 2 PIC lines in his arm again, which confuses me since they thought maybe the orginal PIC line was where an infection took hold when he landed back there last weekend.

Apparently the new lines can't be used for several hours after insertion...meaning no IV meds, dangerous in his fragile state...I am just praying so hard he fights through this...
 












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