Update on DH

[andromedaslove]

Tiffany - I am so sorry to hear what your family has been going through. Please know that you are in my thoughts and prayers.

Dana

 

[msblrobs]

Tiff - So very, very sorry to hear of your DH's ordeal!! I hope he continues to progress through the treatment so he can put this all behind him very soon. Thoughts, prayers and going out to you guys.

 

[wtpclc]

Wow, I figured things weren't good when we didn't hear from you. I cannot believe how awful tehy had gotten, though. SO glad that you have so ,many poeple close by helping you out! I will contnue to keep your family in our prayers.

 

[Tiger Lily 03]

Tiff, Thank you so much for letting us know. You are thought of for sure. I know this is a very difficult time, do what you can to keep strong.

Prayers, PD and positive energy congtinue to all involved for a better time of it.

We are here for you.

 

[Wish I lived in Fl]

Prayers said.
I worked with a chemist who had a similar type of cancer. It was finally diagnosed after 6 months of a "sore throat".
They had to cut off and reattach tongue, cut away half a jawbone, 6 weeks of radiation treatment to the throat. He went through Hell and came out the other side. I gained new respect for him as he survived this ordeal. He had a copatient that wanted to give up halfway through the radiation but Bob talked him into continuing. Last I heard he was still going fine 10 years after.

 

[keenercam]

Tiffany -- I just wanted to let you know that you and your family remain in my thoughts and prayers. I am relieved to hear that your friends and neighbors are helping out in the small ways that they can. I know that is a HUGE relief and what a lesson for the kids, to see that people come through in our times of need.
Please know that we are all here pulling for all of you and waiting for your next update.
Hugs and pixiedust, sweetie!

 

[TiffJ]

Thanks everyone! We are taking all the prayers we can get. I have lost count of how many prayer lists at how many churches we are on. I didn't realize how many people we know until it came time to tell everyone and even then, I missed alot of people. I am honored by how much my friends, neighbors, community and some total strangers have reached out to help us. I am so not used to being on the receiving end of this and as strange as it feels, I am very grateful for it.

My mom lives 6 hours from us so I have never met any of the people she works with, but 2 guys she works with were taking a quick trip to WDW a couple of weeks ago and she asked them to find something to cheer me up. (as everyone knows it is my favorite place on earth and my "happy place") She had a specific request and I cant remember what that was but they took time out of their trip to find something perfect for me. It is a picture (I'm guessing from the art store at DTD) of Walt standing on the cleared land for WDW and shadowed in it is a pic of the castle where it would one day stand. Underneath the pic it says : VISION and a quote from Walt that says "It's kind of fun to do the impossible." They dont even know me but they are fellow Disney freaks & totally "get it" and were able to find something so absolutley wonderful. I have it framed & hanging in my den where I can see it often. What they dont know is how it relates to you guys & getting out there & doing all these races we do that once seemed impossible. Sorry for the ramble but I just had to share my wonderful picture story.

As for Rick, he had his 2nd chemo today (out of 6 or 7) and 10th radiation (out of 35~) He is exhausted but o.k. he is not sleeping good & the sleep meds they gave him arent working. Hoping to get some different ones on Thur. The oncologist looked at the tumor today & said it is definately shrinking!!!! His kidney numbers are getting better and he has lost almost all of that extra 20lbs of water weight he had on him. He is soley using the feeding tube for nutrition because the thought of food or anything except water is just not appetizing to him right now. But at least we have a way to keep him fed. He is on a portable wound vac from where they drained the absess and that is almost totally healed so we should be able to get rid of that at end of the week. 1 less appliance hooked up to DH!
His trach came out TWICE last week. The first time we had to go to the ER because there was no one in the surgeon's office & the 2nd time the trauma nurse got it back in. We now have it taped to his neck to avoid that happening again.

So all in all things are going as they should be treatment wise & they other crud he went thru seems to be all better too. We were planning on getting rid of the trach as soon as the tumor started shrinking but now they want to keep it in the whole time to avoid anything happening that may interupt treatment (infection, etc)

Although I have had little time to post please know that I am with you guys in spirit & boy do I miss training. I miss having a goal and being able to hit the road alone! I dont get much me time anymore. Although I did slip away last week for lunch & a pedi with a friend.

Miss you guys!!!

 

[Kristi1357]

Thanks for the update, Tiffany!

It sounds like Rick is doing well with his treatment now.
And the tumor is shrinking - THANK GOD!

Keep on hangin' in there!

 

[crzy4pooh]

Tiffany - Yea for the tumor shrinking! God is good and He is in control! I am so glad you have so much help and support. I hope you are able to have a few more "me" times so you can stay refreshed through all this. We will continue to pray for you both, and you are on our weekly prayer list at church as well. And I love your picture story! I've still got next May on my calendar for the Danskin Tri and I hope you will be there!!!

--Lynnda

 

[kareneast]

Tiff - I am so very sorry for everything your DH & family have been going through. Glad to read your update that treatments are going well. That is GREAT news. Sending you lots of and

 

[escape]

Tiffany, sending more pd and prayers your way.

Thanks for keeping us informed. May it give you some comfort to know that many are thinking of you and your family during this difficult time.

 

[keenercam]

Tiff - -THank you so much for taking the time to update us. Please know we are here, praying for all of you and looking forward to when we can all be together again at your happy place. I am so glad you have that picture to remind you of what you have and will accomplish, no matter how impossible it may seem.

 

[Big Vic]

Hang in there, Tiffany, and Rick.

Good thoughts continuing.

 

[wtpclc]

Thanks so much for the update TIff! I know it's hard to find the time. Your ability to see your blessings right now brings tears to my eyes. Your family will be just fine with teh attitude you have!

The things people have doen for you just warms my heart.

Keep hanging in there! I'll keep praying for you guys!!!

BTW, I am so glad that you gave yourself a little respite. You NEED to do that once in a while. It's good fro your whole family.

 

[nucpharm29]

Tiff--Thanks for posting the update. What great news to hear that the tumor is shrinking, his kidneys are improving, and the abscess is getting better. I"m sure it's still a long road of treatment and recovery for the both of you, and I'm still sending prayers your way that everything from here on out goes well. And how cool of those people to send you the picture.