cantwaittoseemickey
DIS Veteran
- Joined
- Jan 10, 2005
- Messages
- 1,347
You guys are going to have an amazing trip. 


We just decided that we are moving to Oklahoma about 2 weeks after our trip to be close to my mom since I really need her help with the boys as Tyler's disease progresses (faster than we had hoped). So since he was asking for a bike and helmet for his birthday I made a deal with him that if he would wait until we got settled I would get him one once we are there. Saves me money now and the pain of moving something else that is bulky. Since we are moving so quickly, money is going to be really tight for this trip. Thank goodness that most everything is paid for! We are definitely going to be eating at the Village as much as possible!
Making 4 of them has been a bigger job than I really expected to take on. lol I did tie-dye Mickey shirts for us all that turned out cute although a little more muted than I expected before I put them in the washer... They still look pretty cool though! I post some pics later. I was really happy with the result since it was my first try! I also got some iron transfer paper and some cute ball caps to try for the boys... I had this idea of doing pin trading ball caps with an iron on DISign that I found on the boards and then letting them load them with pins to trade each day and the ones they get in return go on their lanyards with locking backs so they don't get lost or accidentally traded... Just an idea 
Some cute sorcerer hats, a few little journals and goodies like that.
So not sure where the other two are!!! So the job for today is to track down copies and get them to her... eeek.


I hear you on the whole progression thing. Last year, we moved from SMOs (the low ankle braces) to full articulated AFOs (up to her knee). It was so hard, and I still have a hard time making her wear them because to me, it just screams "sick kid" and I hate that. Up until this trip, we have been using a regular stroller, but realized last week that it is no longer enough for her and will be moving forward with a wheelchair. We've already had the seating evaluation and pre-approval from insurance, so it's just getting the DME rep out here. It just really stinks when you look at your kid and know that this is as good as it is going to get.
But I'm feeling better today and back to getting in gear. Today is the start of clean-out/pack up mode. I've got to get as much done as I can since I'll only have about a week after our trip to finish up before moving 

I don't have them handy and I'm in full moving mode right now but there were some cute MAW DISigns that I downloaded to print on iron-on transfers. If you want later tonight or tomorrow I will find them and PM you or something... If you look on the DISigns board and search for "wish" you should find several ideas people have posted. I know a lot will customize them for you, or if you can't get that done, let me know and I can customize some. I should make some of my own designs, just don't have the time. I'm a photoshop guru lol I used to do a lot of fun stuff when I had my photography studio!
Speaking of photography.... if any of the Dis Families that will be there when we will would like for me to do a quickie photo shoot for them at the Village I'd be glad to do that for you. I love being a photographer just haven't had much time for it in a long while. I have this dream of starting a non-profit kind of like Littlest Heroes for families with special needs kiddos... You can see some of my work (if the site is still up, not sure) at http://www.storyteller-art.com

Up until this trip, we have been using a regular stroller, but realized last week that it is no longer enough for her and will be moving forward with a wheelchair. We've already had the seating evaluation and pre-approval from insurance, so it's just getting the DME rep out here. It just really stinks when you look at your kid and know that this is as good as it is going to get.![]()
I also got an email back from the VP of NickHotel. I had tried to make a reservation there for either the character breakfast or the Dora Show since Tyler is such a huge Blues Clues and Dora fan. They wouldn't let me since we don't have hotel reservations there. So I emailed them asking if there was anything they could do. They are arranging a private meet-and-greet for Tyler with Blue! And they invited us to the new 4D Dora & Diego movie.
It just goes to show what can happen when you ask! I figure the worst they can say is "No" and if they do we will still have an amazing time!
Speaking of photography.... if any of the Dis Families that will be there when we will would like for me to do a quickie photo shoot for them at the Village I'd be glad to do that for you. I love being a photographer just haven't had much time for it in a long while. I have this dream of starting a non-profit kind of like Littlest Heroes for families with special needs kiddos... You can see some of my work (if the site is still up, not sure) at http://www.storyteller-art.com

I totally understand about taking the time off. I wasn't anywhere near 60 hrs a week but I did have a loyal "Christmas card" following that wanted me every year for portraits, and a handful of weddings throughout the year. Phoebe's appts and needs were becoming more demanding as she was getting older and it was a convenient excuse to take a break when we moved to a new state and no one knew me. I have the same plan, to start back up after Tessa is in school. I would love to chat more and pick your brain. If I can get her into a school this fall (she'll only be 4 so not sure) I will want to get started. 
I love talking about photography! I miss it so much sometimes when I have been away from it.
Just got a confirmation call from Nick Hotel for our special MnG with Blue
Tyler is going to go nuts! My mom got him a "Steve" shirt and another Handy Dandy Notebook for his birthday. I hope that Blue is in a playing mood hehe... We have character breakfast right after our meeting with Blue too so we will get to see Dora and Spongebob and other Nick characters which all the boys will love.
I think I'm going to get my older son to help with that project!
Can't wait for a long hot bath in the whirlpool tub so she hit it right on hehe
Sounds like Lyn sent some cool stuff for the boys!!!



Sounds like Lyn sent some cool stuff for the boys!!!
Hey Tami...you are in the single digit countdown now!!!![]()

It will be here before you know it!
Single Digit Dance
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