kissesbykim
Mouseketeer
- Joined
- Sep 11, 2010
- Messages
- 173
This is our pre-wish report. There are no word to explain the extreme excitement going on in our house! Let me tell you a little about us!
Tyler oh Tyler....born on April 27, 2004 it seems like there has always been something with him. Nothing really life threatening until 8 months ago but a struggle none the less. Surgery at 6 weeks for an abscess, speech and language delays, not meeting his developmental milestones, ADHD and diagnosed with sensory processing disorder. When our life finally settled down and he was doing well in preschool, we decided to try for a second child. We had AJ on March 17 2009. Our house had calmed down a bit, Tyler was doing well in school and we had a new baby boy around. At 5 months, AJ had his first seizure. Really? I thought that was the worst day of my life. Then at 9 months, we unearthed a vicious egg allergy. Ugh, eggs..well, we've survived! Then, on February 6 2010, Tyler had been acting funny....legs and tummy hurt and he had no energy. After a trip to the ER, we learned he was diagnosed with Acute Lymphoblastic Leukemia.
Our road has been long but without too many bumps. Tyler is thriving on treatment. Although his journey will be long, we thank our stars that this is the kind of cancer he has. We consider ourselves blessed.
Disney has always been Tyler's favorite! Living in California, we've done Disneyland a lot. Just about every 6 months up until Feb. When we asked Ty what he wanted for his wish of course he said "Disneyland"...who knew something better was lurking just a plane ride away! So after showing him pictures of DW, he'd made his decision. Now, if I can just keep my self from stressing about plans and reservations and keep Tyler from exploding from excitement, we will be going on October 6 to October 12.
I'm a little long winded and I love to write so I hope people read! Happy Disney everyone!
Tyler oh Tyler....born on April 27, 2004 it seems like there has always been something with him. Nothing really life threatening until 8 months ago but a struggle none the less. Surgery at 6 weeks for an abscess, speech and language delays, not meeting his developmental milestones, ADHD and diagnosed with sensory processing disorder. When our life finally settled down and he was doing well in preschool, we decided to try for a second child. We had AJ on March 17 2009. Our house had calmed down a bit, Tyler was doing well in school and we had a new baby boy around. At 5 months, AJ had his first seizure. Really? I thought that was the worst day of my life. Then at 9 months, we unearthed a vicious egg allergy. Ugh, eggs..well, we've survived! Then, on February 6 2010, Tyler had been acting funny....legs and tummy hurt and he had no energy. After a trip to the ER, we learned he was diagnosed with Acute Lymphoblastic Leukemia.
Our road has been long but without too many bumps. Tyler is thriving on treatment. Although his journey will be long, we thank our stars that this is the kind of cancer he has. We consider ourselves blessed.
Disney has always been Tyler's favorite! Living in California, we've done Disneyland a lot. Just about every 6 months up until Feb. When we asked Ty what he wanted for his wish of course he said "Disneyland"...who knew something better was lurking just a plane ride away! So after showing him pictures of DW, he'd made his decision. Now, if I can just keep my self from stressing about plans and reservations and keep Tyler from exploding from excitement, we will be going on October 6 to October 12.
I'm a little long winded and I love to write so I hope people read! Happy Disney everyone!
. There is so much to do here in California, we always just drive. So I'm a little nervous about the long flight (red eye of course) to Florida. AJ is just 18 months old...I'm hoping that he doesn't scream the whole flight. I need them to sleep. Any suggestions?
. This will be my DH's second visit to GKTW. He stayed there when he was 15 during his sisters MAW trip (she had Lymphoma). Our wish coordinator said she's heard of people staying there twice but never as a child then as a parent. I think it's neat. There is going to be a lot going on in DW during our vacation and the MK closes early on both Thursday and Friday that week for
. This is what Ty's wish is centered around.
I understand that this trip I have to leave that part of me behind and just go with the flow. If you have any suggestions about planning something that someone is already planning? Lord help my family!
to the disboards. You will be getting lots of great info here. Where in So Cal do you live? We are also from here. We live up in the Antelope Valley. Do you go to CHLA? This will be our second time going to GKTW. Our youngest made a wish to go there and now my second daughter choose to go back. Our first time going there was our first time on a plane. I really don't want to get back on, but will do it for my daughter. I did say direct flight as I may not get back on again...lol
! They give these children something WONDERFUL to look forward to! As unfortunate it is that you qualify for two wishes, it is such a blessing
! Thank you for reading our PTR! I love this forum!
That way some more of our folks will find ya and come over and say hello!
Tyler has no idea how long 3 weeks is so every night we rip a loop off of his Mickey chain that is hanging up in his room. Today, I've been making our shirts to wear our first day at DW. I've also received our itinerary. We would like to do some sort of character dining, maybe 1900 Park Fare. The Supercalifragilistic Breakfast looks like a fun time and since Ty loves Alice in Wonderland, he will enjoy it the most! 