Hi, everyone. We got home around 8pm. Quick rundown, and I'm headed to my own bed!
Rees does not have a partial blockage. He has a Hiatal hernia, the thickened area of jejunum which will have to be addressed (surgeon won't know what he needs to do until he gets in there), and the most serious thing is a very rare condition called gastric volvulus which is defined as an abnormal rotation of the stomach of more than 180°. It causes all kinds of problems and has to be surgically corrected. Rees already had a Nissen Fundoplication (surgery to prevent severe reflux where they literally make a band around the top of the stomach to prevent anything from going up the esophagus- ie he can't vomit or burp). So, to correct the other problems he also has to redo the fundo (many fundo's have to be revised as kids grow). So, there will be repair of the Hiatal Hernia, redo the fundo, fix the gastric volvulus, and look at the thickened jejunum. It is major abdominal surgery. He will try to do it laparoscopically, but because Rees' other surgeries were done "open" (major incision), the likelihood is he'll have to do them open as well. If it is done lap it will be a 2 day stay, if open likely 4 days or more.
So, we are just going to keep doing what we were, let him enjoy Halloween and all the parties, and then head back to the hospital on Thursday. It will be a very stressful week, but for now, we are going to focus on the fun things and enjoy being home and all together.
Thank you so much for the continued prayers and support. I'm off to bed!
ETA: the Emory GI were great once we saw them. We are to follow up with them in 2 months since he has inflammation of the stomach (gastritis) and they upped his Prevacid dosage. She gave me her private number and nurse, so we shouldn't have any trouble getting an appointment!
Oh, and here are the symptoms of chronic gastric volvulus. Just like Rees!
Chronic gastric volvulus
Patients typically present with intermittent epigastric pain and abdominal fullness following meals.
Patients may report early satiety, dyspnea, and chest discomfort. Dysphagia may occur if the gastroesophageal junction is distorted.
Because of the nonspecific nature of the symptoms, however, patients are often investigated for other common disease entities such as cholelithiasis and peptic ulcer disease.
Upper GI series can be diagnostic during an acute attack.