Dawn, sending you all good thoughts, prayers, andbengalbelle said:Before I get started on the update, June I am praying like crazy for you. I know you can fight this!
Kate, good luck on your surgery.
Amy, thanks for keeping me in the loop.
Thank each and every one of you for all of the prayers and good thoughts. I haven't been able to read them yet, but once I called Amy Tuesday night I went back to Caroline's room feeling the power of all of you behind us.
I did read Amy's posts so I didn't repeat too much info, but that was much earlier today and I never had enough time to post this update. I couldn't let any more time go by without telling you all how grateful I am so forgive me if I'm repeating too much.
As you know we were several blocks from the pediatrician's office Tuesday when Caroline choked on a large amount of spit up. She turned blue and sort of gray and the look on her face is something that I'll never be able to forget. I truly believed she would die in my arms before we could get help for her. Once we got to the office all 3 dr's started working on her immediately. She had a focal seizure and they gave her Valium, which stopped it. She was also on oxygen. By that time the paramedics arrived and she was stablized enough to transport her to the NICU.
We are very fortunate to have one of only a handful of specialized hospitals in the country and there is a Neonatologist here 24/7. I know you know all of the tests that she had so I won't repeat all of that. So far everything has come back negative. No pre-existing conditions have shown up and they assure us that she will have no permanent damage from lack of oxygen.
Several days after her birth we realized she had reflux. We knew the signs because Christopher also had it. We discussed it with her pediatrician and the ped. on call, but they weren't convinced she really had it. Fortunately the Neonatologist took the approach that we knew what we were talking about and we would monitor and watch her instead of having to put her through the pneumogram and ph probe, which is very uncomfortable. She spit/vomited so heavily that the nurses had trouble suctioning her. He diagnosed it as a severe case of reflux and started her on meds last night. We believe the Zantac is working already because she's not crying after feedings anymore, but he said it will take a few days for the Reglan to be effective and we'll probably have to play with the dosage to get it right. She is still spitting up fairly heavily, but we do see some improvement. We've also switched her to a formula with added rice, but we're still having to add rice cereal to thicken it up. That helps keep the formula down. We tried to breastfeed, but I'm not going to be able to.
She's still on antibiotics since there are a few tests still outstanding, but she came off the IV fluids yesterday so she's just on formula now. They weighed her this evening and she's up to 6.9 lbs. They also moved us from an isolation room to a bonding room. It's still part of the NICU, but there are 2 pullout chairs so Brian and I can stay with her all of the time. Before we had to go out of the NICU to go to the bathroom, sleep, etc. Here they bring meals to us, we have a private bathroom, TV, phone, etc. I haven't left the room since they moved us here yesterday. She's still being monitored and we're only a few feet away from the nurses station.
As things stand now it looks like we'll be discharged on Saturday. Thank you all again!
I hope everyone is doing well, and here'sand
for anyone who needs it.
Me too! 3 weeks from tomorrow no more diet for me! FREE DINING!!!!!!!!!!!!!!!!!!!!!!!!!!!KristineN said:Bill is living for our trip in December so he can eat...I hope he makes it on some of the rides!!!!![]()
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ellenbenny said:I would love to meet too. I am actually looking at the weekend of October 20th, but right now the airfares are too high. If they come down, we (DH and I) might come Oct 19 - 22. Otherwise I'm not sure when we will come. Also, we will be leaving Disney the day you arrive, but I'm not sure if we could work out the timing to meet. We do have a late flight out, like 6pm. I hope we can meet sometime. I will let you know if the Oct trip becomes a reality.
triplefigs said:I presume they are Japanese noodles, but I've not heard of them.
lmartin2711 said:That shirt would look so much better with a "G" on it!!![]()
Well if I do make it down to Atlanta I would love to meet you too of course.lmartin2711 said:If you do don't forget about me.......I would also love to meet you. The best restaurant close to TECH.....The Varsity!!! mmmmm........not the best thing for a diet though.
KristineN said:Because these noodles are almost totally a beneficial type of fiber, they have almost no usable carbohydrate or calories. There are some indication that they may have other health benefits as well.
What are shirataki noodles made of? : Shirataki comes from the root of a plant (Amorphophallus Konjac, or a few other closely-related species) grown in various parts of Asia, and given many names in different places, including Konnyaku potato (or just konnyaku), konjac, konjaku, elephant yam (although as far as I can tell, they are not related to any other plant commonly called yam), and others. The fiber is also known as glucomannan.
What are the benefits of shirataki noodles?: There is some evidence that glucomannan, when tested as a powdered supplement, can play a role in blood sugar control, as well as produce improvements in cholesterol control and weight loss (see this report). It also contributes to fiber intake, and can be a substitute for starchy noodles.
I have to try them![]()
lmartin2711 said:I'm the same way...........I felt very out of place at Alex's 3rd grade open house. But then I realized that this is my 4th child I have done this with and I was just bored and knew more than the did........and my favorite movie......"I have more insurance"!!!
Lynn
ellenbenny said:Well if I do make it down to Atlanta I would love to meet you too of course.
bear74 said:I think it would look very nice in Burnt Orange with a T on it.![]()
triplefigs said:Where do you find them?
skoopman said:Thanks for all the warm welcomes! You girls sure are a chatty bunchMichelle is doing pretty well overall. She had some GvH (Graft versus Host), which is where her new stem cells from her donor start attacking her body. We got it under control, however I am afraid it is coming back. She is not absorbing nutrients like she should and her weight is beginning to drop. I am taking her in to the dr today for an official weight check. It seems strange to think of taking a 6 year old in for a weight check. If she is 54 pounds I have to contact her BMT dr, if she is 53 we will have to go back to Wisconsin
.
Dawn - I don't know you, but it sounds like you are having a hard time with your daughter right now, to put it mildly. I am so glad the dr listened to you! Sometimes dr's need to pay more attention to what parents say because a lot of times we know quite a bit.
Sharks - I forget who said they didn't like sharks...does that mean you don't want to know that I have been scuba diving with them many times?![]()
Thumb sucking - Again, I am sorry but I forget who talked about their child sucks their thumb / fingers. Michelle sucked her two middle fingers until she was admitted to the hospital, May 2005 at 4 years old, almost 5. I was getting antsy for her to stop but the dentist wasn't too concerned yet which was nice. As a side note, she stopped because they had to put her IV in that arm and she couldn't bend it to put them in her mouth...NOT a recommended method.
Oh, and last thing, I currently live east of Sacramento but grew up in Los Gatos, an hour south of San Francisco.
I guess I should go fix Michelle's lunch and get breakfast for the kids.
Suzanne
triplefigs said:John works on 9th Ave right at Tech and the Varsity! I hope you make it in October. We'll all have to go out to dinner.
mommy2emmersNmo said:I danced with a baseball bat because I hate myself.
skoopman said:Thanks for all the warm welcomes! You girls sure are a chatty bunchMichelle is doing pretty well overall. She had some GvH (Graft versus Host), which is where her new stem cells from her donor start attacking her body. We got it under control, however I am afraid it is coming back. She is not absorbing nutrients like she should and her weight is beginning to drop. I am taking her in to the dr today for an official weight check. It seems strange to think of taking a 6 year old in for a weight check. If she is 54 pounds I have to contact her BMT dr, if she is 53 we will have to go back to Wisconsin
.
Dawn - I don't know you, but it sounds like you are having a hard time with your daughter right now, to put it mildly. I am so glad the dr listened to you! Sometimes dr's need to pay more attention to what parents say because a lot of times we know quite a bit.
Sharks - I forget who said they didn't like sharks...does that mean you don't want to know that I have been scuba diving with them many times?![]()
Thumb sucking - Again, I am sorry but I forget who talked about their child sucks their thumb / fingers. Michelle sucked her two middle fingers until she was admitted to the hospital, May 2005 at 4 years old, almost 5. I was getting antsy for her to stop but the dentist wasn't too concerned yet which was nice. As a side note, she stopped because they had to put her IV in that arm and she couldn't bend it to put them in her mouth...NOT a recommended method.
Oh, and last thing, I currently live east of Sacramento but grew up in Los Gatos, an hour south of San Francisco.
I guess I should go fix Michelle's lunch and get breakfast for the kids.
Suzanne
bear74 said:I think it would look very nice in Burnt Orange with a T on it.![]()