Thank you for all of your support to us and so many of the Wish families!!! 
THIS IS REALLY HAPPENING!!!!! HOLY MOLEY!! I have cried over just getting the papers !!! 
With lots of help from the Disboutiquers I was able to make These today.....
Eva would not model today....
and this for Anthony.....
The things you have made are awesome!!!! Now, I'm afraid to send you my crayon rollups
I haven't even completely figured out my sewing machine yet and y'all already have me wanting a serger. My husband is going to kill me.
So excited for you guys!
I just worry because she NEVER seems to wake when it happens and I am afraid she will aspirate and then we are looking at the respiratory complications. We have been down that road one too many times....She cant lose these calories because she is now refusing everything but a few ounces of juice orally so our G-Tube feeds are essential!! I hope we do not have to do a GJ tube again...the last one was a bear to get in (she has a very sensitive vaso vagal nerve and she set off the alarms like mad with drops in all her vitals) besides that it only stayed in place 3 weeks before she pulled it out!!! 
We have been trying to find nursing for her since September!! Had one prospect but that fell through. 
I have no clue what it takes to get a nurse but I tell you if I were still working I would have my pick of cases!! There are NO nurses to be found!!That is such a sad, but TRUE Statement!!! I am so sorry for all you endure.3 WEEKS
Just 3 weeks to go I cant believe it!! 3 weeks is NO time! There is so much going on between now and then tha they are going to FLY by!!
How EXCITING!!!!!
Miss Eva had a fair night BUT she tolerated her feeding at half the rate and at half strength. Starting her back on full strength this am and we will see!
I understand that frustration, I am so sorry Eva is having these problems!!!
I also want to say thanks to those of you who have or are blessing us...I am amazed at the kindness of strangers here..sad that my friends IRL do not talk to me or reach out this way.....I am so blessed and touched. It really means alot....I think that people who are not or who have not had experience in having a child who is sick or with disabilities seem to think that if you do not complain that everything is ok and seem to forget that this is a DAILY struggle.
I LOVED the outfits, you are SO TALENTED!!!!! 
