beattyfamily
DIS Cast Member
- Joined
- Jul 13, 2000
- Messages
- 23,572
Anyone here familiar with this or dealing with this with their child?
My DD has had many health issues in her young life and has overcome so many of them; hip displacia, born with one kidney, reflux (where the urine goes back to the kidney; had surgery at 8 months to fix it), underweight, gagged on certain food textures, sensory issues, speech delay, E-coli hospital stay, mono etc.... if there's an illness going around, she'll get it!
She's always had sensory issues but this year (she's 8 and in 2nd grade), it has really started to affect her at school. She breaks down at least 2 - 3 times a week and once she gets upset, it takes awhile to calm her down. The littlest thing can set her off; the way her socks feel, hearing someone hum or chewing, not having enough time to do something, not getting the book she wanted in library etc...
At first the school suggested she see a psychologist for anxiety and finally after a few months of seeing her, a consensus between her teacher (she's been great!), the school counselor, myself and her psychologist was that she definitely had sensory issues that could be causing the breakdowns in school and thus she should be officially evaluated by the school's OT. That is in the works and should be done this month. Her psychologist also recommended she have a private OT sensory evaluation and that is in the works as well (learned it usually isn't covered by insurance ) . Also, her psychologist recommended we also do a neuropsychological evaluation as well and that is also in the works but wondering what that will determine.
I hope that after all of this, she can get the help and support she needs to be happy and fully functioning in school and at home. I sure hope she gets the proper diagnosis as well. I know there are many disorders that have similar symptoms (I'm starting to wonder about asperger's syndrome after reading up on it today). Hopefully, this will be her last hurdle to overcome.
Here are some of her symptoms:
She covers her ears for loud noises that don't seem loud to others
she cries if she hears licking, chewing, humming etc...
she doesn't like her socks
she doesn't like certain clothes like her snow pants
she doesn't like bright light
she is very clumsy
she is very forgetful (she will forget why I sent her upstairs)
she is very disorganized and needs guidence when getting ready for school or bed
she is constantly loosing things (she has lost so many sippy cups I lost count!)
she likes routine and doesn't like change
she is a very picky eater and doesn't like certain textures or cold things like ice cream
she doesn't like getting wet, especially her face (so she wears a poncho for Philarmagic!)
she seems very naive, although very smart
she seems to be in her own world sometimes thus she's almost been lost several times and I have to make sure she is listening to me when I talk to her to be sure she heard me
she is very sensitve and emotional and cries easily
she will cry just by having to make a choice
she will cry if things don't go her way like if she runs out of time in library to pick a book or if she can't see a school show well because she is sitting in the back.
she is always putting things in her mouth
she has poor fine motor skills (writing, buttoning, eating with a fork/spoon)
she fears certain rides for fear of nausea like the Tea Cups and merry go round
she has a hard time catching a ball or balancing
she has a hard time learning excercises or dancing; uncoordinated
There's more but that's the majority of her symptoms.
If anyone has any information or advice, I'd love to hear your stories. Maybe we can support each other and help each other.
My DD has had many health issues in her young life and has overcome so many of them; hip displacia, born with one kidney, reflux (where the urine goes back to the kidney; had surgery at 8 months to fix it), underweight, gagged on certain food textures, sensory issues, speech delay, E-coli hospital stay, mono etc.... if there's an illness going around, she'll get it!
She's always had sensory issues but this year (she's 8 and in 2nd grade), it has really started to affect her at school. She breaks down at least 2 - 3 times a week and once she gets upset, it takes awhile to calm her down. The littlest thing can set her off; the way her socks feel, hearing someone hum or chewing, not having enough time to do something, not getting the book she wanted in library etc...
At first the school suggested she see a psychologist for anxiety and finally after a few months of seeing her, a consensus between her teacher (she's been great!), the school counselor, myself and her psychologist was that she definitely had sensory issues that could be causing the breakdowns in school and thus she should be officially evaluated by the school's OT. That is in the works and should be done this month. Her psychologist also recommended she have a private OT sensory evaluation and that is in the works as well (learned it usually isn't covered by insurance ) . Also, her psychologist recommended we also do a neuropsychological evaluation as well and that is also in the works but wondering what that will determine.
I hope that after all of this, she can get the help and support she needs to be happy and fully functioning in school and at home. I sure hope she gets the proper diagnosis as well. I know there are many disorders that have similar symptoms (I'm starting to wonder about asperger's syndrome after reading up on it today). Hopefully, this will be her last hurdle to overcome.
Here are some of her symptoms:
She covers her ears for loud noises that don't seem loud to others
she cries if she hears licking, chewing, humming etc...
she doesn't like her socks
she doesn't like certain clothes like her snow pants
she doesn't like bright light
she is very clumsy
she is very forgetful (she will forget why I sent her upstairs)
she is very disorganized and needs guidence when getting ready for school or bed
she is constantly loosing things (she has lost so many sippy cups I lost count!)
she likes routine and doesn't like change
she is a very picky eater and doesn't like certain textures or cold things like ice cream
she doesn't like getting wet, especially her face (so she wears a poncho for Philarmagic!)
she seems very naive, although very smart
she seems to be in her own world sometimes thus she's almost been lost several times and I have to make sure she is listening to me when I talk to her to be sure she heard me
she is very sensitve and emotional and cries easily
she will cry just by having to make a choice
she will cry if things don't go her way like if she runs out of time in library to pick a book or if she can't see a school show well because she is sitting in the back.
she is always putting things in her mouth
she has poor fine motor skills (writing, buttoning, eating with a fork/spoon)
she fears certain rides for fear of nausea like the Tea Cups and merry go round
she has a hard time catching a ball or balancing
she has a hard time learning excercises or dancing; uncoordinated
There's more but that's the majority of her symptoms.
If anyone has any information or advice, I'd love to hear your stories. Maybe we can support each other and help each other.
