Sensory Integration Disorder

[kvp_2]

Just curious after reading the above posts. Did any of your kids who have SID have Reflux as an infant or older?

 

[hookedup]

My son who is 7 has SID and ADHD.I just wanted to say that there is more than one kind of SID.Many folks here are referring to "hypersensitive" SID, which is where the child is OVERLY sensitve to sound, taste touch, etc.
My son however has the less common "hyposensitve" SID.He is oblivious to many kinds of stimulus, sometimes dangerously so.He sometimes oblivious to his bodily functions which lead to embarrassing accidents.He can get his skin pinched and not realise.He doesnt always recognise hunger, so you have to tell him when to eat.He can wear his shoes on the wrong feet for hours and not know.Combines with his impulsive nature and inabilty to sit still its a tough life.I'm always afraid he will hurt himself and not realise it.

My daughter who is 2 is showing signs of SID but the hypersensitive kind.She cannot stand the feel of water on her skin, and tags, and has a hard time adjusting to seasonal clothing changes... when the weather gets warm and short sleeves/pants come out she is always pulling them to make them the "right" length.
Between o ne and the other it is very hard to make everyone happy!
Sherrie

So true - the issues with SID totally vary depending on what type of sensory issues AND what kind of integration dsyfunction is going on. "The Out of Sync Child" is really great at addressing this info. Also SID kids can change and shift too as their brains develop. Some of these kids swing between hyper and hypo sensitive too.

I thought my son was Aspergers, after initial research I was so sure that's how he would be diagnosed. But there is a very specific criteria that has to be met to be diagnosed with the DSM by a doctor. I learned a lot about how sensory processing issues occurs within the Austism Spectrum Disorders but that it's also viewed as a completely seperate disorder in itself.

I think that's what makes these types of disorders so frustrating and difficult to understand. Things are changing in how they are grouped, some issues are not even "officially recognized" disorders, disorders are re-catergorized, and to top it all off the kiddos brains are changing and developing too, so a child who has specific issues today can have very different types of issues later. Then you'll find that different doctors can have different opinions on the same child! It's like a never ending battle or more of a quest to find the answers to help your child.

 

[rhiannonwales]

Just curious after reading the above posts. Did any of your kids who have SID had Reflux as an infant or older?

Actually yes.Both of my children had reflux disorder as infants.My son was worse than my daughter, and he still does it in small amounts after consuming dairy.We think he is allergic, so we try to avoid it.

I'm curious to know why you ask, is there some correlation im not aware of?
Sherrie

 

[kvp_2]

I dont know if there is a connection but alot of people that I have talked to whose kids have Reflux also have sensory issues. My DD had reflux and has always dealt with sesory issues. She has never been diagnosed with SID but every time I read something about it I can say thats my child. If she does have SID its mild and she is over coming some of things that she just could not do before. Food is still our big issue. I say that I could actually list more..LOL

 

[MomOf2DisneyKids]

Hi! My ds was originally diagnosed with ADHD, SID, and a language disorder....and then was rediagnosed with an autism spectrum disorder (which basically included all of those things!) (hmm...yes, he had reflux as a baby too!! interesting!!) He got early intervention services of OT and speech and has made a lot of progress. The comment about the robotic speech almost immediately led my mind to Asperger's, but obviously that was just based on a couple of sentences that you wrote. It can be hard to get a correct diagnosis, esp early, but I would definitely persue it, because the earlier the intervention, the better!! Good luck!!!

 

[MomOf2DisneyKids]

There sure is a wealth of information here! My sister's pediatrician told her that diagnoses for Asperger's are difficult at this age. He is 4, but he is going to get tested or evaluated or whatever it's called.

?

who is going to do the eval, do you know?

 

[MomOf2DisneyKids]

Magic Kingdom
Buzz Lightyear


PhilharMagic (awful, awful, awful for our kiddo)

)

YES! I could cry every time I remember how awful Philarmagic was for my ds......he really wanted to try it, we had seen little previews of it on tv....but I will never forgive myself for not going on my own to check it out before letting him go in there. It was the worst part of our trip....for him and for me.

 

[Snow Brite]

Just curious after reading the above posts. Did any of your kids who have SID have Reflux as an infant or older?

My son who has the most sensory issues had horrific reflux as an infant. He could only tolerate my milk until he was almost a year old. Even pumping and adding a teaspoon of rice cereal would cause the most amazing projectile vomit. It was a fun year, as I got pregnant with his baby brother when he was 5 months old, so I nursed through the entire pregnancy, with the Ped telling me it was the only option and the OB telling me I had to stop.

Very interesting...

 

[kvp_2]

I am hoping maybe I can use this as an unscientific pole to take to the Ped. I have been fighting for an OT for along time. I cant imagine I am the only one who has thought that maybe the 2 go hand in hand some how.

 

[JenJen]

Both the kids below have SID's One in the autistic spectium the other is not at all. It gets better as they get older. It is still there but they deal with it better.
(((((((((((((((hugs)))))))))))))))
Jen

 

[jmskinner]

My DS (7) is Severe ADHD & SID. He receives OT and sees a Psychiatrist and a Behavorial Psychologist. Our biggest problem right now is "hitting". He gets mad at daycare and hits the children he is playing with. I am trying to teach him that if he gets angry he should push his fists together, or push on the wall (move the wall). Does anyone else's child have these problems? He at least now knows he is getting angry and can't control his anger.

Making our 1st trip to DW this July. He is more sensory seeking so I think he will be ok. For the long lines we are bringing his game boy, fidget toys, and travel games.

He only eats Macaroni & Cheese (can be picky which kinds) and Chicken Nuggets. Besides sweets and chips. We have had many vacations where we end up frustrated trying to get him to eat, but I figure this is a vacation and it may be one week of worse eating than normal, but he will be ok.

He never had reflux, but he did have the cord wrapped around his neck twice during his birth. I have always wondered if there was some correlation.

I am glad that I found this discusstion forum.

 

[playwright]

I don't think that link has been made at all. There are so many theories about what causes Autism spectum out there. But for what it's worth my high functioning autistic son, call it Asperger's if you'd like, was oxygen deprived at birth. He was a very quick birth but had the cord wrapped around his neck. Interesting...

My DS 14 with SID had the cord wrapped around his neck also and was oxygen deprived. He was sent home from the hospital as if everything was "ok". When I had him evaluated, some of the questions I was asked was if he was a difficult pregnancy (no), a difficult delivery (yes) and was the cord wrapped around his neck. Almost everyone tells us SID is hereditary. Back in the dark ages when DH and I grew up, we just thought these kids could "snap out of it". At least now we know a little more about helping these kids.

 

[riu girl]

DD was also oxygen deprived at birth. She was in fetal distress and had to be delivered with a vaccumm extractor. At birth she was given oxygen for an extended amount of time since she couldn't breathe on her own and had an apgar score of only 5.
She was then in special nursery for 2 days being watched closely.
Currently she is ADHD, anxiety and sensory issues.

 

[have2getaway]

Are speech problems generally associated with this disorder? My nephew talks really strange. He doesn't use any contractions and his speech is very broken, he sounds almost robotic. He has a 2 year old brother who talks WAY better than him and I think my DD6 was more advanced in speech than him when she was 4.

Our day care provider initially approached us about our son's behavior when he was 2 1/2. I had started to notice some issues myself, primarily sensory related. My husband and I were initially convinced he had SID. I bought the book "The Out of Sync Child" (great by the way). He was first evaluated when he was 3 and they determined that he had Aspergers, but he was very sick when they diagnosed him so it wasn't a true assessment. We had a more thorough evaluation done 6 months after that and the diagnosis was high-functioning autism. We were basically told that if he had Asperger's he would be talking very well--too well. The term they used for Asperger's is "Little Professor". It is rarely diagnosed in children under 5. Our son, like your nephew, was not talking very well. He talked very robotic and didn't always make sense. He had some echolalia and he would memorize sections of movies and books that we read to him. They said his language delay is more common in autism. He has what is called "Semantic/Pragmatic Language Disorder" which basically means that he has language skills, but doesn't always understand what to say or when to say it. When an OT came to evaluate him, instead of saying "Hi", our son said "867530", which was a route number he had memorized. He has all the same issues you described that your nephew has (as in the chocolate chip cookies), but in varying degrees.

I am not by any means trying to make a diagnosis, but I just wanted to share my story. In the end, our son has high-functioning autism. Within his autism, he struggles with SID, and language issues. I am so grateful that we got him diagnosed when we did. He has been in a special pre-school program this past year, and will continue to next year. This program includes intense Speech and Occupational Therapy which have allowed him to make great strides in coping with his disorder. They are hopeful, because he is high-functioning, that he will be in an integrated kindergarten program. He has even started reading at age 4. Early intervention is great.

Best of luck to your sister!!

 

[daksmom11]

My nephew was just diagnosed with senory integration disorder. At least I think that is what my sister said it was called, maybe it was sensory input disorder. Anyway, he is 4. I was just wondering if anyone knew anything about it or had experienced it firsthand. Whenever we have big family gatherings and it gets too loud my nephew will go stick his head in the couch and begin screaming "It's too much!" and then my sister has to calm him down. He is also very aggressive as well as being EXTREMELY attached to his mother. My sister told me she thinks it is something like autism, really any insight into this or suggestions would be greatly appreciated!

My son who just turned 11 has ADHD, ODD, SID(mostly food related),High anxiety(sp?) and was just diagnosed with Dysgraphia. Everyone here has givin you great advise the only thing I have to add is that your support and love will help your sister through this. Just letting her know that no matter how tough it gets that you will be there for her (even if its for a middle of the night chat) will make things easier.Be her and his cheerleader I don't know what I would do if it was not for my sister and brother. Be prepared to fight for this child with family that just don't "get it" ! I would also have her look into some sort of support group. It does get easier when you know what your facing. Kids are amazing and your nephew will show you just how amazing they can be!

 

[Ambassador]

My DS (7) is Severe ADHD & SID. He receives OT and sees a Psychiatrist and a Behavorial Psychologist. Our biggest problem right now is "hitting". He gets mad at daycare and hits the children he is playing with. I am trying to teach him that if he gets angry he should push his fists together, or push on the wall (move the wall). Does anyone else's child have these problems? He at least now knows he is getting angry and can't control his anger.

One of our delegation has come a long way in learning to self-regulate on a lot of levels. He can better screen out sensory distractions, and can pause and think about appropriate responses to situations. This came from years of behavorial mod, OT and the Dynamic Listening System. Not to mention patience, and a loving and nurturing Embassy staff. We also highly recommend annual trips to WDW.

 

[JulieWent]

Here is another link for you to check out:

www.nldontheweb.org

There is another disorder called Non-verbal learning disorder that is very similar to Asperger's but has some specific differences. If you are looking at Asperger's, you should also become familiar with NLD so that your sister can ask questions about both conditions.

(DS has NLD which also travels with SID, slightly altered speech patterns, and a host of other "co-morbid" conditions. The most significant differences seem to be that children with NLD have visual - spatial skills deficits that Asperger's kids don't have and that they have language strengths that are less commonly seen in kids with Asperger's.)

Sorry to confuse the issue, but it might be worth checking out because the treatments / accommodations for the two conditions are somewhat diffferent.

Julie

 

[forevermom]

My son who is 7 has SID and ADHD.I just wanted to say that there is more than one kind of SID.Many folks here are referring to "hypersensitive" SID, which is where the child is OVERLY sensitve to sound, taste touch, etc.
My son however has the less common "hyposensitve" SID.He is oblivious to many kinds of stimulus, sometimes dangerously so.He sometimes oblivious to his bodily functions which lead to embarrassing accidents.He can get his skin pinched and not realise.He doesnt always recognise hunger, so you have to tell him when to eat.He can wear his shoes on the wrong feet for hours and not know.Combines with his impulsive nature and inabilty to sit still its a tough life.I'm always afraid he will hurt himself and not realise it.

My daughter who is 2 is showing signs of SID but the hypersensitive kind.She cannot stand the feel of water on her skin, and tags, and has a hard time adjusting to seasonal clothing changes... when the weather gets warm and short sleeves/pants come out she is always pulling them to make them the "right" length.
Between o ne and the other it is very hard to make everyone happy!
Sherrie

I know this thread is really old but I just found it and am wondering how your children are doing now? My son is 3.5 and has SID and is hyposensitive. We adopted him at almost a year old and have had a rough couple of years with him. We love him dearly though and wouldn't trade him for anything!! We are having a really hard time with potty training because he doesn't seem to even know what is happening. He too doesn't realize if he's hurt as he has such a high pain tolerance. He is very big for his age and looks closer to 5 or 6 and can be very aggressive both in excitement and anger. He doesn't mean to hurt you but he's just sooooo strong!

Our daughter is 17 months old, and was adopted at 12 months is now showing signs of SID hypersensitive which is almost more frustrating to deal with than our hyposensitive kid.

I'm just wondering if it gets easier? Please say yes, lol!

For the record, my son had a very difficult delivery, cord was around his throat, wasn't breathing when born and had to be resuscitated and had a breathing tube. He also had severe reflux for the first 18 months of life (several medications to kep anything down) and still struggles with his reflux.

Would love to hear from anyone who has been through this before!

 

[CityGranola]

It does get easier!

I think SID is an outdated term, my son has SPD (Sensory processing Disorder) so I can only address that.

He had a traumatic birth, he has a lot of issues in general - life threatening food allergies, eczema, asthma... and we also got to add SPD. I knew from birth he was different, no one would listen to me til he was 2 and I basically just forced people to listen.

He was in 2 years of very in depth occupational therapy and he is now "normal" pretty much all the time. No one ever can tell he has any issues because he has the tools to cope with his life.

If you have any specific questions, please let me know.

 

[forevermom]

It does get easier!

I think SID is an outdated term, my son has SPD (Sensory processing Disorder) so I can only address that.

He had a traumatic birth, he has a lot of issues in general - life threatening food allergies, eczema, asthma... and we also got to add SPD. I knew from birth he was different, no one would listen to me til he was 2 and I basically just forced people to listen.

He was in 2 years of very in depth occupational therapy and he is now "normal" pretty much all the time. No one ever can tell he has any issues because he has the tools to cope with his life.

If you have any specific questions, please let me know.

Hi City Granola,

Thanks for your response! My son was also diagnosed with SPD. I just stuck with SID based on the earlier posts as I'm told they're the same thing.

How old is you child now? I would love to know what types of things they worked on in OT. We are still waiting for OT to begin and are mostly trying things on our own. He has come a long way but we definitiely still have quite a road ahead of us. My DS is also speech delayed so it makes understanding or communication things to him very difficult.

I'm glad to hear it gets easier!