Sarcoidosis

[huckster]

any one have experience with this? My oldest sons father, my x from long ago, has this he is so bad he cant work , anymore . they say no cure .. has affected organs .. feel bad for him he was very active..

 

[golfgal]

I had to look it up on the internet, never heard of it before. Doesn't sound like something I would want. My mom has scleroderma, which the effects are somewhat similar.

 

[JoyG]

people at www.sarcinfo.com claim they've found a treatment for sarcoidosis called the Marshall Protocal. It's still experimental but if he's really doing poorly I would at least suggest he look into it.

 

[Tinks]

I was going to suggest looking up the Marshall Protocol, too. You can google it for information.


For scleroderma, google the Road Back Foundation. (or lupus or Rheumatoid Arthritis )

I wish someone had a definitive answer for Sjogren's Syndrome.