Good early morning dear friends. Yesterday was one of incredible blessing and some most unexpected news later in the afternoon. The therapy room has a set of stairs with four steps on it. By God's love and grace, I went up and down these stairs three times! Jessica was right by me. Dad was thrilled to see the picture Susan so kindly took. What a gift from God that was.
Later yesterday afternoon, I had two unexpected visitors from social services here. C and her supervisor R had come to inform me that my insurance therapy benefit ends Sunday. Because there is no weekend therapy, they were only giving me one day notice :/
Dad and I met with both C and R at the end of February. That was our (and my) only other discussion with them. R, at that time, had a bleak outlook for me. God had other plans for me! R and C did acknowledge my great progress. R claimed my insurance initially covered 30 days. They ended up extending my coverage to the maximum 90 days which will be on Sunday because of how far I have come. Dad and I were never told of this clear limit between the end of February and yesterday.
R and C (probably ownership and the rest of management, too) want me out. All of you know how deeply I want to go home. Susan and I had a wonderful talk yesterday. We were on the same page. She was proud of me for seeing the big picture. I told her the last thing I want is to go home and have a setback. We agreed that if need be my staying here a few extra weeks to get even stronger was the way to go. I told Susan I would like to be 95% or so back to normal when I would go home. Safety and future.
Dad and I have the immediate concern that even C and R know has to be solved before I could go home and that is our bathroom. The bathroom in this room 108 has an oversized doorway that easily allows me to go in sitting in the wheelchair. Our bathroom doorway at home (remember we live in an OLD building that has not been kept up) is over a foot narrower.
C and R once I give them the measurement, are going to look for a junior size wheelchair for me. I am skinny so this would be fine. It just would have to fit in our bathroom. Should they find such a chair today, my guess is I would go home tomorrow. Should finding a chair take longer it sounded like they would have to let me stay here but without therapy. Oh my friends that would be horrible! As all of you know, pt is the only reason I'm here! To not get to continue to work with Susan and Jessica yet be stuck here would be just awful and so disheartening.
R claims when I go home (different setting--thank God--than here) he could probably arrange for me to have a therapist come out twice a week. Maybe and it probably would not immediately start. Plus, of course, the therapist would be brand new to me. We wouldn't have the experience or relationship that Susan and I and Jessica and I have. Dad and I depending on what does happen may reach out to Vivian who we were paying out of pocket. Keep in mind I have not seen Vivian since December 31st of last year, almost two weeks before I ended up in the ER and this all began. At least she is a known person.
I do exercises daily in bed along with strengthening my feet and legs by using them to move the wheelchair around the halls. Of course I also do standing and balancing work with Susan and Jessica. I also walk with a walker with one of them following behind me with the wheelchair for when I need a break. We are in sync and Susan and Jessica do a fantastic job of making sure the wheelchair is right behind me and ready for me to safely sit in when I need to. Dad doesn't feel comfortable doing this and he should not have to. I will be making crystal clear to R and C that my beloved dad is not to be asked about my physical safety and care.
Susan gets here very early. I will share all this with her and get her input. Especially after yesterday, I do not want to lose her or Jessica either. P, the therapy supervisor comes at 9am. I have no idea whether he can do anything but I will ask. Jessica, I normally see closer to 11am. Another therapist V, who has been a wonderful support but who I really haven't worked with will be here today too. I sure am going to try and somehow even for another week keep therapy as it is. By God's grace I have come so far. Susan said yesterday what a success story I am. I do not want in any way to backtrack!
Thank you for listening to all this and always your prayers. God willing I will update positively later. As a p.s R would arrange transport for me home so my needing to climb a dozen stairs would not be an issue right now.
Have a good Friday everyone with love always.
