You have a beautiful daughter. Those pictures are wonderful. I can't wait to hear more on your PTR.
Your daughter is so cute! She seems to be a very happy kid. Even the picture of her in the hospital she is smiling! Kids are resilient and hopefully when she gets older she won't remember all the pokes, doctors, & chemo. I will be following your PTR.
Tim
Mya is beautiful! I can't wait for your trip!
Unfortunately I was given bad news on Saturday that might affect our wish trip. Mya was scheduled to start her last round of chemo on Friday but before she was able to start she had to have a chest Xray. Saturday her oncologist came to talk to me and told me her AFP had risen to 37 which is the hormone her tumor secretes. Normally it should be below 7 so Mya's Afp means her tumor is starting to grow again.Now we are discussing what course of treatment to take next but we are reaching the end of our options and unfortunately the odds of Mya of beating her Cancer is very slim right now but there is still a chance. So her doctor has advised us to take her wish trip in July instead of waiting untill October. I have to talk to her wish coordinater/fairies tommorrow. Do you think they will be able to move her up due to her situation? Please keep Mya in your prayers that she will still make a full recovery.
I spoke to Mya's wish coordinator today and we will be going July 17- July 23!!! I have so much to do and probably won't get any ADR's but it doesnt matter. Im too excited to get to disney and make some memories with Mya.
So I went on the Disney's dining reservation site expecting everything to be completely booked and was pleasently surprised that I was able to make three ADR's. Two of them were my top choices. I was able to make ADR's for Garden Grill for 7;15 pm, Crystal Palace for 12;55 pm, and 'Ohana for 8;15 pm. I was hoping and praying for a miricle for CRT but of course everything is all booked. I also have a rough plan made up of the activities we will do while down there.
July 17
Arrive in Floridai
Go to Walmart
Stay and relax at GKTW
July 18
Epcot
ADR at Garden Grill
July 19
Magic Kingdom
ADR at Crystal Palace
July 20
Morning: Animal Kingdom
Afternoon: GKTW
ADR: 'Ohana
July 21
MorningHS
Afternoon: GKTW
July 22
Morning: US/IOA
Afternoon: GKTW
July 23
Morning: DTD
Airport
My main thing is to allow Mya alot of downtime during the hotter parts of the day and just let her enjoy the attractions catered to her age group. I want to make sure this Wish Trip is structured according to her likes and needs but I am going to sneak in some things I want to do.![]()
P.S: The tripgoers are Mya, myself, and my Mom aka Nana.