Piper's Practically Perfect PTR..Wish Trip! 3/2-8...Upd Pg 126- TR Link!! Hooray!

[Blueyed Girl]

So sorry that Piper is having to do the IV. I sure hope it makes her better and fast!

I'm so excited that ya'll get "the big give". That is so nice!! It is awesome that these volunteers are doing this.

 

[winkers]

I'm so excited for you to be part of the big give!! I had no idea what it was before now.

 

[pnutallergymom]

Thanks, hon. She'll stay on the IVs for prob 3 weeks, and it's two different meds, vancomycin and meropenem. The vanc in particular is a pretty hard hitting drug, but they usually seem to do the trick! No bugs going to Disney with us, tyvm!

Good Luck with the IV's. Brigitte was on the Vanco and meopenem our last inpatient stay...she was on both for about 12 days. It worked, but she also got RedMans and needed to pretreat with both benadryl and tylenol...We also had to slow the vanco down and infuse over 2hrs vs. 1hr. I'll be praying for you guys. Brigitte is on d5 1/2 4 days a week now...its a pain in the neck, but sure does make a difference for her!!

That is soooooo exciting about the Big Give How amazing is that!! My older daughter and I sit on the couch and scroll through all the beautiful things that the ladies make!! She told me I should start sewing so that I can make those clothes for her and Brigitte!!!

 

[yinyanggirls]

I love that your readers spilled the beans! I was thinking, what a coincidence that Amanda decides to share that TODAY, oh, wait a minute, it wasn't her that spilled it! Anwyay, I'm dancing right with you!

 

[Millie12591]

I am so excited that you guys are getting a Give!!

And I love the fact that some of you guys had no idea what it was until Piper and Amanda were included!

If you want to get involved somehow...send me a PM...we always need more people to help...and you don't have to know how to sew! I certainly don't!

I know, much excitment!! I had no idea what it was either!!! I'm glad Jordy asked because I wouldn't have figure it out.
I have a picture of my family I thought I would share here since Piper hasn't really gotten to see a picture of Mackenzie and Since Amanda was brave enough to put her's here....well, I guess I have no excuses.

From left to right:
Ex-Stepwhateveroranother, My little sister, DH-in the Back-My Mr. Incredible, Me, in front-Mackenzie, Son-Tyler, My 93 yr. old Grandpa, and last but certainly not least- My dad. Pretty good looking family if I do say so myself.

 

[englishrose47]

I'm so excited for you to be part of the big give!! I had no idea what it was before now.

You and me both!! I was Happy that Amanda was Happy but had no idea what it was !!!

 

[dmbfan]

:I feel very lucky that we're receiving a Give..and I know Piper will too once I tell her about it tomorrow.

Congrats on the Big Give.... I will tell you when Jake was picked and stuff started coming to the house, our whole family cried when they kids opened their stuff. Amazing does not put into words the work, the time, and love that went into each and every gift that was made for Hannah and Jake, and the rest of our family. Till this day, I still get teary eyed when I think of the kindness the Big Give Ladies have in their hearts!!!......Can't wait to follow your thread!!!

 

[pipersmom]

Oh I am SO excited for you!!!

So sorry that Piper is having to do the IV. I sure hope it makes her better and fast!

I'm so excited that ya'll get "the big give". That is so nice!! It is awesome that these volunteers are doing this.

I'm so excited for you to be part of the big give!! I had no idea what it was before now.

Thank you all! We're very excited, now I can post even moooore updates! I know you're excited to hear that!

Good Luck with the IV's. Brigitte was on the Vanco and meopenem our last inpatient stay...she was on both for about 12 days. It worked, but she also got RedMans and needed to pretreat with both benadryl and tylenol...We also had to slow the vanco down and infuse over 2hrs vs. 1hr. I'll be praying for you guys. Brigitte is on d5 1/2 4 days a week now...its a pain in the neck, but sure does make a difference for her!!

That is soooooo exciting about the Big Give How amazing is that!! My older daughter and I sit on the couch and scroll through all the beautiful things that the ladies make!! She told me I should start sewing so that I can make those clothes for her and Brigitte!!!

Thank you for the prayers! I wish we could do 12 days! We usually end up doing 21 to get her really cleaned out..hopefully she'll stay that way. We're very excited about the Big Give..I sew a bit, but nothing like these ladies and gentlemen, not to mention the other great pixie dust people send out!

I love that your readers spilled the beans! I was thinking, what a coincidence that Amanda decides to share that TODAY, oh, wait a minute, it wasn't her that spilled it! Anwyay, I'm dancing right with you!

I know, right..I was trying to keep it under my hat for a few days, but that's okay! She was as excited as I was! Thanks hon..I can't wait to see your girls stuff too!!

I know, much excitment!! I had no idea what it was either!!! I'm glad Jordy asked because I wouldn't have figure it out.
I have a picture of my family I thought I would share here since Piper hasn't really gotten to see a picture of Mackenzie and Since Amanda was brave enough to put her's here....well, I guess I have no excuses.

From left to right:
Ex-Stepwhateveroranother, My little sister, DH-in the Back-My Mr. Incredible, Me, in front-Mackenzie, Son-Tyler, My 93 yr. old Grandpa, and last but certainly not least- My dad. Pretty good looking family if I do say so myself.

I'm so glad you posted a pic, Camille..your family is really lovely! Piper has seen a pic of MacKenzie from your Mickey head heist, but she liked seeing her again, and seeing the rest of the family! I love having a face to the name as far as you're concerned! I'm glad Jordan asked too..I was oblivious to the fact that some of you guys would have no idea what the Big Give was, I should have thought about it...

 

[billwendy]

Woo Hoo!! Cant wait to see the Big Give packages start to arrive!!

 

[leamom2princesses]

Hi Amanda! I have been lurking for some time but wanted to come out of lurkdom and say hi. You are an amazing Mom with one amazing daughter. Your courage and perseverance are incredible. Thanks for sharing your story.

I'm sorry to hear about the IV's. Hopefully things will improve quickly. Congratulations on Piper being chosen for the Big Give. How exciting!

 

[pipersmom]

Woo Hoo!! Cant wait to see the Big Give packages start to arrive!!

I can't wait either..and I can't wait to finally tell Piper tomorrow after we get her accessed!! Have I mentioned how excited I am? Just in case I haven't....

Hi Amanda! I have been lurking for some time but wanted to come out of lurkdom and say hi. You are an amazing Mom with one amazing daughter. Your courage and perseverance are incredible. Thanks for sharing your story.

I'm sorry to hear about the IV's. Hopefully things will improve quickly. Congratulations on Piper being chosen for the Big Give. How exciting!

I'm so glad you came out of lurkdom, and thank you for the sweet compliments! Piper was very happy that we're doing the IVs at home, for now anyway. I'm very excited about the Big Give, and I know Piper will be as well after I tell her tomorrow. I'm already planning how to thank everyone involved when we get back from our trip. I just feel so fortunate and thankful for Piper and our family to be included in something so special!

 

[pipersmom]

You and me both!! I was Happy that Amanda was Happy but had no idea what it was !!!

I don't know how I missed you ladies before, but I'm glad I scrolled up! Rosie, I am so glad so many more people are being introduced to the Big Give and what these wonderful folks do for wish families! I'm hoping maybe someone will decide to get involved, it's the least I feel like I can do for them for everything they're planning for us!

Congrats on the Big Give.... I will tell you when Jake was picked and stuff started coming to the house, our whole family cried when they kids opened their stuff. Amazing does not put into words the work, the time, and love that went into each and every gift that was made for Hannah and Jake, and the rest of our family. Till this day, I still get teary eyed when I think of the kindness the Big Give Ladies have in their hearts!!!......Can't wait to follow your thread!!!

I have to admit, I was telling Heather Sue in an email that I think I've cried more through this whole wish process than I have since Piper was diagnosed. I just feel so blessed by this whole experience. I know I'm going to have tears rolling when the packages start coming in as well, and prob the whole time we're on our trip. All our photopass pics will have me with red eyes, you watch and see!

 

[pipersmom]

Woops!

LOL! I just saw this post when I went back to add the link to our index! I was cracking up when I saw you had posted congratulations on the Give..I was dying to tell everyone anyway though!

 

[dmbfan]

I have to admit, I was telling Heather Sue in an email that I think I've cried more through this whole wish process than I have since Piper was diagnosed. I just feel so blessed by this whole experience. I know I'm going to have tears rolling when the packages start coming in as well, and prob the whole time we're on our trip. All our photopass pics will have me with red eyes, you watch and see!

I cried as we left the house that morning for the airport, we even had our wish granters in tears that morning...and cried the whole flight, and than all broke loose once we walked into the GKTW...and than I realized I was the ONLY ONE in the orientation that night that still had tears coming down my eyes.... I think in every picture they took of us at GKTW, both my hubby and I had been crying.

As a matter of fact I will be crying when we go volunteer next month... my husband tells me I have to try to hold it in, but not sure I can.

Enjoy!!! Your family deserves it...

 

[kayrosek]

Well I just read through your entire PTR. You and Piper are both amazing. Your New Years Eve post made me cry. I was in the same situation years ago. I left my ex when I was 3 mo pregnant with my third child and supposed to be on bed rest, with nothing but my two little girls and a couple of suitcases. I'm so glad you were chosen for the Big Give and I can't wait to read more as you plan your trip.

 

[pipersmom]

I cried as we left the house that morning for the airport, we even had our wish granters in tears that morning...and cried the whole flight, and than all broke loose once we walked into the GKTW...and than I realized I was the ONLY ONE in the orientation that night that still had tears coming down my eyes.... I think in every picture they took of us at GKTW, both my hubby and I had been crying.

As a matter of fact I will be crying when we go volunteer next month... my husband tells me I have to try to hold it in, but not sure I can.

Enjoy!!! Your family deserves it...

Thank you. Glad to know I'm not the only one..I keep trying to figure out what I can think about while we're there to keep me from crying the whole time! I know we're going to totally enjoy it, not just during the trip, but in years to come as well!

Well I just read through your entire PTR. You and Piper are both amazing. Your New Years Eve post made me cry. I was in the same situation years ago. I left my ex when I was 3 mo pregnant with my third child and supposed to be on bed rest, with nothing but my two little girls and a couple of suitcases. I'm so glad you were chosen for the Big Give and I can't wait to read more as you plan your trip.

I'm so glad you were able to get out of the situation..I can't even imagine what it must have been like with two kids and another on the way. Thank you, we're so excited to be part of the Big Give..I'll be posting our tentative park schedule here in the next couple of days now that I know I'll have lots of updates to do with the Big Give stuff coming in!

 

[GreatBiscuit]

How awesome! Congrats! I can't wait to hear all the big give details!

 

[pipersmom]

How awesome! Congrats! I can't wait to hear all the big give details!

Thanks, GB..I have a feeling that before it's all said and done you guys will be wishing you could duct tape my hands to the chair so I couldn't type anything else about how wonderful it is or how thankful I am.. Speaking of which..I don't know whether to thank you or kill you for giving me the idea to butter pop-tarts over on Liesa's thread!!

 

[yinyanggirls]

Butter Pop Tarts? NOBODY tell my husband. Sheesh. You trying to kill us?

Can you imagine how hard it was to save our news for a month? Oh, wait, yes you can. You didn't even tell Piper when you were going until Cmas!!!

 

[pipersmom]

Butter Pop Tarts? NOBODY tell my husband. Sheesh. You trying to kill us?

Can you imagine how hard it was to save our news for a month? Oh, wait, yes you can. You didn't even tell Piper when you were going until Cmas!!!

LOL..I know..talk about cholesterol on top of cholesterol..of course..I won't try it..

I don't know how you kept the secret from the rest of us!! the girls I totally understand. I had an idea that was what it was..but someone kept holding out on me..such a mean woman! All right..I..am...going..to...bed..I should have gone about an hour ago!