Parents with ADHD kids on meds...some questions?

slk537

<font color=red>Sigh...other than WDW, if I could
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I am 100% positive his doctor is going to confirm the diagnosis and 98% positive he's going to prescribe meds. He is extremely conservative and I trust him both as a physician and a person/father so I know he won't do anything that isn't necessary. We were all really hoping to put this off until further into school, but it is very obvious that he won't succeed in school without a little help concentrating.

Please - moms, dads with kids on meds...I need reassurance that it helps and that on medication, you get to keep all the wonderful parts of their personalities that make them the wonderful children they are...

I guess I'm pleading for success stories? I keep looking at him this weekend and wondering what he'll be like next weekend...next month.

Thanks in advance!
 
I think all parents faced with this freak out a little. I resisted meds for years for my son. I made a mistake and wish that I could do it all over again. My son takes Focalin XR and is pretty much the same boy he always was except his self esteem is much better now. It does cause a decreased appetite at lunch, but that is the worst of our issues and he makes up for it at dinner.

Although we are happy with the Focalin he takes a dosage that they don't make in one pill so we have 2 copays a month. For that reason, we are going to try the Daytrana patch starting next week. If it can deliver similar results we will switch, otherwise we are back to the Focalin.

I know this is hard, but there are way more success stories than not out there. If you aren't happy with the results of one med, don't be afraid to try another one because they work differently for different people.

Good luck and bump this thread if you don't get too many replies. I know there are several people on here who have been in the same boat.
 
I think all parents faced with this freak out a little. I resisted meds for years for my son. I made a mistake and wish that I could do it all over again. My son takes Focalin XR and is pretty much the same boy he always was except his self esteem is much better now. It does cause a decreased appetite at lunch, but that is the worst of our issues and he makes up for it at dinner.

Although we are happy with the Focalin he takes a dosage that they don't make in one pill so we have 2 copays a month. For that reason, we are going to try the Daytrana patch starting next week. If it can deliver similar results we will switch, otherwise we are back to the Focalin.

I know this is hard, but there are way more success stories than not out there. If you aren't happy with the results of one med, don't be afraid to try another one because they work differently for different people.

Good luck and bump this thread if you don't get too many replies. I know there are several people on here who have been in the same boat.

Same here. DD (9) has been on Focalin XR since November. We are able to enjoy her personality so much more because her confidence level has gone way up and she feels more free to share her personality. She does not have the hyperactivity/impulse part. Hers is attention problems.

And with that I'll insert the fact that she won 3rd place in the county Science Olympiad today in the Starry, Starry Night competition. You parents of ADD kids will know how wonderful it is that she was able to study and memorize the constellations, stars, planets, etc for this to happen!!:cloud9:
 
Please - moms, dads with kids on meds...I need reassurance that it helps and that on medication, you get to keep all the wonderful parts of their personalities that make them the wonderful children they are...

I guess I'm pleading for success stories? I keep looking at him this weekend and wondering what he'll be like next weekend...next month.

Thanks in advance!
Here is your poster boy for keeping his personality while taking drugs for ADHD, Ty Pennington.
When he was one of the carpenters on Trading Spaces, I thought he probably had ADHD because of his (sometimes impulsive) behavior on the show; things like playfully throwing power tools or joking around with a drill while it was going. Not too long ago, he became the spokesperson for Adderall, which I belive he just started fairly recently.
He is a very big success story (and certainly has a personality).

I don't know what specific medication my 14 yr old nephew is on for ADHD, but you can certainly tell when he doesn't take it. His personality is the same, but he is just over the top with constant motion and 'motor mouth'. He said that without the medication his brain just feels like it's going "bling - bling - bling" (as he jumped his finger all over to illustrate what he meant). He is very good in math and went from barely getting by in school before he started medication (plus he was in trouble all the time) to being an A to B+ student (and last term, he made all As).

If you haven't been there, you might want to check out the disABILITIES Community Board. A lot of people with kids who have ADD and ADHD hang out there.
 

Medication was a last resort for my oldest DS. I thought it would make him into a zombie or something. He started taking Adderall in the 8th grade. He is now in the 11th grade and takes it on and off. Taking the medication made a huge difference in his ability to stay focused.

Before the medication, he would have trouble paying attention and constantly forget to do his homework. He spend almost half a year grounded from everything because I thought that was the right approach. Sadly, I was wrong. No amount of grounding could make him focus any better. I feel kind of ashamed that I didn't get him the medication sooner. I was just so afraid.

I think a parent should just find what works for their child. If medicine helps a child, then that is what works. In no way did adderall affect my DS's personality. There are many different things that your child could take. If one doesn't work, you can try another.
 
DD18 has been on Adderall XR since last summer. She did well in school, although I always knew she could do better. Her main problems are concentration, focusing, impulsivity. She was always active, but not hyperactive.

After reading the lists of symptoms online and in books, I was afraid that I wouldn't even know her after medication, since it seemed her whole personality was ADD. However, the Adderall has done wonders for her, and while she still has issues, they are more like regular teenage issues. I can always tell when the Adderall has worn off and I won't say anything to her then if I think she won't like what I say. I'll just wait until she's on her meds and she's much more reasonable and pleasant.;)

She's a senior at a high achieving, competitive, private school taking 3 AP courses plus calculus. Her GPA this past trimester was 4.25. First trimester was 4.17. Before her diagnosis, I just thought she was lazy and just did enough to get by. Her GPA would be around 3.2-3.5.

DD4 will be 5 April 2. I see a lot of similarities between her and her sister. However, I will not be taking her to be tested now. I am going to keep her active and busy and see how kindergarten goes. DD18's teachers never complained about her -- in fact, her preschool teacher told me she was the only one who sat still and followed directions in her class.

Good luck to you! We're still working with different dosages to see what will work best.

Lynn
 
DD10 is on Daytrana and is doing so much better in school. It helped her enormously.

DS5 we tried Daytrana, it did nothing. We tried Strattera, it did nothing. He is now on Focalin XR, and wow, what a difference. His kindergarten teacher is so happy, and he is doing so much better in school.

Don't be afraid of the meds. You will see the difference, and if you don't like what the meds do, you can always stop.
 
Thank you all so much! I remember seeing a thread about this a few months ago and the little boy in question was the same age as our DS...I wish I could remember who the person was who posted the question.

My other fear? That this is the "easy way out".

I really appreciate hearing your stories...it helps a lot. It's very heavy on my mind this weekend. I told DH that we will see results right away and it's so hard to imagine. I love hearing about children who are able to concentrate and have increased esteem, without losing that funny, smart, wonderful personality.
 
DD10 has been on meds since he was 6. He went to summer school between K and first grade - he didn't flunk k but his teacher thought it would give him a boost to go to summer school. That is when he started on meds. I remember picking him up from school and asking him how the medicine worked. His response was, "Good! I wish I could take it everyday." He came home an played with an erector set all day that he had never played with before. I had to work that night until midnight. When I got home, the child was still playing with the erector set! We had to adjust the meds a few times a year. I can usually tell by his handwriting when he is starting to need an adjustment. He is in the 4th grade and makes As and Bs. When his meds are quite right, he will have to think before he can tell you 4 x 2. But he can rattle stuff off when they are right. And mine is a sweetheart as well. I don't think you have to worry about those love hugs - they will still come! Mine do.
 
My other fear? That this is the "easy way out".
This is the farthest thing from the truth!!! I believe it takes way more work to get your child on the right medicine than it does to not put them on meds at all!!

my ds was dxed at 4 for ADHD. He has been on a variety of ADHD meds beginning with the low dose ritalin extended release til now at almost 7 we have been on the same dose of concerta for little over a year.

My son's personality did not change at all. Well, other than the impulsive part, the ability to sit through a meal, and the ability to sit and do one activity for more than 30 secons!!!

Good luck to you! You might want to check out the CHADD website. They ahve a lot of really good information!!

tara
 
My son has ADHD with mostly impulse control issues. He seems to do things WHILE thinking of them..... no "should I or shouldn't I?" Just goes for it.

He takes Focalin XR and does quite well on it. No real change in his personality except he doesn't scream to make noise..... etc. It's hard to medicate your child but you have to think about what is best for them. My son's quality of life is much better on meds...not 100%, but better than before.
 
Both my DS's have been on meds since they were 6. My DS9 had NO impulse control and drove his Kinder Teacher absolutely crazy. We had him on Ritalin and Adderall, but he became very sad and depressed when it wore off. Oldest DS became very angry & very scary on Adderall. They are both on Concerta now and have been for several years. I love it, no side affects.

My DS9 is an honor student and going to gift student program this summer. Both the boys want to take their meds because they know they can't handle schoolwork or homework without it. Kids want to do well, and when they can't control themselves it hurts their self asteem. The other kids can tend to be very mean. He laughs sometimes and says several of his hyper friends at school should take his med's too.

Just don't be suprised when your child has no appetite. Mine eat a good breakfast, but very little lunch (if at all) and dinner. We try to eat a late dinner so the meds have started to wear off.

Also, my oldest DS is trying to ween himself. He just turned 15 and is really trying to work on his self control and go without meds. But, we'll see. Either way GOOD LUCK!!
 
Our son, 10 in April, is on the Daytrana patch. It works well for him. We like the fact that we control when we can remove it, having more control getting it out of his system than the oral medication he used to be on. We tried lowering his dose for awhile and he came to me and asked to be put back on the higher dose, he said he just felt more in control at school as far as focusing. So I know it really does work for him. We don't give it to him on the weekends or on vacations unless he really needs it. The only drawback for us is he is pretty thin anyway and he doesn't want to eat a lot on the medication so anytime we can take him off, we do to try to "fatten" him up, so to speak.;) Best of luck to you. I know it's not an easy road to travel. BTW, my son was not diagnosed with ADHD. He is extremelyimpulsive and the medicine helps so much with that as well as focusing with his math.
 
Thank you all so much!!! Last night, DS was playing outside in the backyard and suddenly decided to bolt around the house and run down the sidewalk (he loves to run with all that excess energy). DH caught up with him and brought him in the house. All I could think was "Tuesday....med appointment on Tuesday...."
 
If you see his appetite decreasing you may want to try high protein drinks. I gave my oldest pedisure & ensure. Also, luckily he likes the meat sticks, so I pack slim jims or beef jerky for his school lunch with a yogurt or yogurt drink. His weight has always been a challenge for us. We just for his 3 month check up and he was 97 lbs. We were so excited :cool1:. Luckily my younger DS has no problem with his weight, he is naturally "husky" so the med's help keep him on track and not overweight.

Feel free to PM me if you have any questions or concerns.

Cheryl
 
I empathize with any parent forced to make this decision. There are a few things I suggest BEFORE placing your child on medication. Suggestions that you can talk to his doctor about too.

1. BEFORE you give him meds, try giving him a cup of coffee in the morning. Children with ADHD are said to have a chemical imbalance. For a person with "normal" chemical balance, coffee gives us energy, but for a imbalance person/child it could level them. 100 mg of caffeine is roughly the same as 5 mg of Ritalin. I know Ritalin isn't used anymore - but interesting.

2. Remove Red #40 from their Diet. Red Dye #40 is an Artificial Colour: 95% of the synthetic colorings are coal tar derivative. Red #40 is a possible carcinogen. Yellow #6 (tartrazine) has the potential to cause respiratory distress and hyperactivity. Buy all of your foods from the outside parts of the store. Buy meat and fresh or frozen vegetables. (The veggies should say things like "corn” or "carrots". Make a huge pot of broth on Saturday and during the week boil with rice or noodles (read the ingredients) for a nice side dish. Buy applesauce that says apples on the ingredient list. Make slow purposeful changes. A recent study published in the June issue of Archives of Disease in Childhood concluded, "There is a general adverse effect of artificial food colouring and benzoate preservatives on the behavior of 3 year old children which is detectable by parents but not by a simple clinic assessment. Subgroups are not made more vulnerable to this effect by their prior levels of hyperactivity or by atopy."

3. Give your child Fish Oil for ADHD? I've read that studies show that fish oil supplements are more effective than Ritalin for kids with Attention Deficit Hyperactivity Disorder (ADHD). The study you mention was done at the University of South Australia. Researchers there tested a combination of omega-3 fish oil and evening primrose oil (an omega-6 oil) on 132 children with ADHD, ranging in age from seven to 12. After the 30-week study ended, almost half the parents reported that their children's symptoms were improved.

See http://www.drweil.com/drw/u/QA/QA368783/

4. Read this page: Helping Your Child Out of
ADD/ADHD http://www.unhinderedliving.com/ADHDhelp.html

5. 50 Conditions that Mimic ADHD: http://www.incrediblehorizons.com/mimic-adhd.htm

17 controlled studies found that diet adversely affects some children’s behavior, sometimes dramatically. Most of the studies focused on artificial colors, while some also examined the effects of milk, corn, and other common foods. The percentage of children who were affected by diet and the magnitude of the effect varied widely among the studies. Six other studies did not detect any behavioral effect of diet.

“It makes a lot more sense to try modifying a child’s diet before treating him or her with a stimulant drug,” said Dr. Marvin Boris, a pediatrician in Woodbury, New York. "Health organizations and professionals should recognize that avoiding certain foods and additives can greatly benefit some troubled children." CSPI Newsroom News release Oct.25, 1999


I have students that sit in my class like zombies. I’m not saying that medication is not the right choice for some parents, but there are so many other things that can be done before you start a child on a rode of medications. My advice is to at least TRY most of the above and SEE if it works. At least you can say you tried. But please try. BTW, I’ve been a Special Education Teacher 10 years this past January. Most of my students are Mentally Retarded, Learning Disabled, and Emotionally Disturbed.
 
I empathize with any parent forced to make this decision. There are a few things I suggest BEFORE placing your child on medication. Suggestions that you can talk to his doctor about too.

1. BEFORE you give him meds, try giving him a cup of coffee in the morning. Children with ADHD are said to have a chemical imbalance. For a person with "normal" chemical balance, coffee gives us energy, but for a imbalance person/child it could level them. 100 mg of caffeine is roughly the same as 5 mg of Ritalin. I know Ritalin isn't used anymore - but interesting.

2. Remove Red #40 from their Diet. Red Dye #40 is an Artificial Colour: 95% of the synthetic colorings are coal tar derivative. Red #40 is a possible carcinogen. Yellow #6 (tartrazine) has the potential to cause respiratory distress and hyperactivity. Buy all of your foods from the outside parts of the store. Buy meat and fresh or frozen vegetables. (The veggies should say things like "corn” or "carrots". Make a huge pot of broth on Saturday and during the week boil with rice or noodles (read the ingredients) for a nice side dish. Buy applesauce that says apples on the ingredient list. Make slow purposeful changes. A recent study published in the June issue of Archives of Disease in Childhood concluded, "There is a general adverse effect of artificial food colouring and benzoate preservatives on the behavior of 3 year old children which is detectable by parents but not by a simple clinic assessment. Subgroups are not made more vulnerable to this effect by their prior levels of hyperactivity or by atopy."

3. Give your child Fish Oil for ADHD? I've read that studies show that fish oil supplements are more effective than Ritalin for kids with Attention Deficit Hyperactivity Disorder (ADHD). The study you mention was done at the University of South Australia. Researchers there tested a combination of omega-3 fish oil and evening primrose oil (an omega-6 oil) on 132 children with ADHD, ranging in age from seven to 12. After the 30-week study ended, almost half the parents reported that their children's symptoms were improved.

See http://www.drweil.com/drw/u/QA/QA368783/

4. Read this page: Helping Your Child Out of
ADD/ADHD http://www.unhinderedliving.com/ADHDhelp.html

5. 50 Conditions that Mimic ADHD: http://www.incrediblehorizons.com/mimic-adhd.htm

17 controlled studies found that diet adversely affects some children’s behavior, sometimes dramatically. Most of the studies focused on artificial colors, while some also examined the effects of milk, corn, and other common foods. The percentage of children who were affected by diet and the magnitude of the effect varied widely among the studies. Six other studies did not detect any behavioral effect of diet.

“It makes a lot more sense to try modifying a child’s diet before treating him or her with a stimulant drug,” said Dr. Marvin Boris, a pediatrician in Woodbury, New York. "Health organizations and professionals should recognize that avoiding certain foods and additives can greatly benefit some troubled children." CSPI Newsroom News release Oct.25, 1999


I have students that sit in my class like zombies. I’m not saying that medication is not the right choice for some parents, but there are so many other things that can be done before you start a child on a rode of medications. My advice is to at least TRY most of the above and SEE if it works. At least you can say you tried. But please try. BTW, I’ve been a Special Education Teacher 10 years this past January. Most of my students are Mentally Retarded, Learning Disabled, and Emotionally Disturbed.

Posts like this tend to upset me because they imply that medication is the "easy way out" and that is so far from the truth. If a parent trusts their child's healthcare professional, I see nothing wrong with following their advice.

BTW: The only medication that makes my child sit like a zombie is Benadryl.
 
Hi!

I've only glanced through some of your replies, so this may be repetitive.

My DD, 8 was diagnosed at the beginning of this school year. We had suspected for a while. She does not have the hyperactivity, just the inability to focus. She is on 18mg. of concerta.

I had a huge problem with putting her on meds, for many of the same reasons you listed. Even though I knew that it was a problem at school, I felt I could "handle it/deal with it" at home.

I am so happy to say, her personality, joking, loving is exactly the same with or without the medicine. She now can sit down and listen to a story being read to her, or school instructions. She went from needs improvement in many areas of her progress reports to satisfactory in all (it's either needs improvement or satisfactory)

I googled ADHD forums, and found a few. There are the naysayers there, BUT what helped me the most was a post from a young woman, who said the best day of her life was the first day she took the medicine. She was so thankful to her parents for finally putting her on the med. She was able to complete all her school work for the first time ever. I will search again to see if I can find it, but I'm not even sure which forum it was on.


Good luck to you and your son. It's not easy at all. If you need someone to talk to, feel free to PM me.

Oh, btw....I think the other poster you were looking for is In Luv with Disney. She is a friend of mine. I'll direct her to this thread. She tried some of the other things the above poster mentioned, I believe.
 
Posts like this tend to upset me because they imply that medication is the "easy way out" and that is so far from the truth. If a parent trusts their child's healthcare professional, I see nothing wrong with following their advice.

BTW: The only medication that makes my child sit like a zombie is Benadryl.

Not implying that it’s the easy way out, but I'm suggesting that there are other alternatives. You stating that it’s the easy way out, is like saying that changing a Childs diet is difficult. Medication as I stated might be necessary, but it’s NOT your only options. Medication (IMHO) is a “if everything else fails”. Just recently I was told that I was a borderline diabetic. Medication was advised. I immediately asked what my alternative choices are. A change of my diet was advised. Now, I could just say, give me medications, or I could at least try to make changes in my life. I choose to change my diet. In my very first statement, I stated that she should discuss these options with her child’s doctor first. Please do NOT put words in my mouth. And in addition to your BTW, did you know that kids are given experimental doses at first. Sometimes the first dose is perfect and it settles a kid, but most often it’s too high a dose or too low. Most often it’s the teacher that helps in that observation. This means a kid could literally sit like a zombie or sleep all day long. I have 2 kids right now who have NEVER gotten their doses just right. One refuses to take his meds because of that.
 
Not implying that it’s the easy way out, but I'm suggesting that there are other alternatives. You stating that it’s the easy way out, is like saying that changing a Childs diet is difficult. Medication as I stated might be necessary, but it’s NOT your only options. Medication (IMHO) is a “if everything else fails”. Just recently I was told that I was a borderline diabetic. Medication was advised. I immediately asked what my alternative choices are. A change of my diet was advised. Now, I could just say, give me medications, or I could at least try to make changes in my life. I choose to change my diet. In my very first statement, I stated that she should discuss these options with her child’s doctor first. Please do NOT put words in my mouth. And in addition to your BTW, did you know that kids are given experimental doses at first. Sometimes the first dose is perfect and it settles a kid, but most often it’s too high a dose or too low. Most often it’s the teacher that helps in that observation. This means a kid could literally sit like a zombie or sleep all day long. I have 2 kids right now who have NEVER gotten their doses just right. One refuses to take his meds because of that.

Im not an expert on the diet issues that go along with ADD children, but I do know my close friend has taken Red #40 out of her child's diet and it has helped alot with her DS's hyper issues. He also takes ADD meds, but has a controlled diet and from what I understand he is alot better in school since the combination of diet and meds. The red # 40 made a big difference.
 














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