Thanks for answering so quickly. The resperatory therapist doesn't explain things too much. I think he doesn't have too much experience in this, so that's why I'd like some info first.
My daughter has been using oxygen on the plane, now for many years, so we are quite familiar with all the hoops the airlines make us go through. Oxygen on land is a new experience for us.
My DD was put on oxygen the end of July, and it broke my heart when the cardiologist grounded her. We had reservations for Oct for 10 nights, and we had to cancel. I was thinking we may have seen the last of WDW. He has since said she is well enough to go to WDW so yay!! Any experiences would be so helpful.