October 11-18, 2008 Eastern Magic-Parrothead Pirates in Paradise! Chapter # 3

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To Bruce and Krista's son!!!
 
No I don't have one :( Sadly we do everything with one card so we play the maxed and clear game LOL. I really should get a second card

It really is a GREAT deal to put the final balance on the Visa you can get a fifty dollar onboard credit to for putting your final balance on it. Plus, you get six months no interest on any Disney Trip or DCL, plus the rewards dollars too....!!!!!!!!!!
 

I didn't get any minutes... :(

BUT... I DO get to have the bathtub to myself for as long as I want tomorrow once Sean goes to his friend's house! :) AND the TV too!
 
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To Bruce and Krista's son!!!


Bruce just saw this one too. He says thanks and that your all to nice. Be carefull, he may start wanting to post here...LOL!!!!!!!!!!
 
We are working on it... the problem is his gut just does not work very well. I have gauze that I keep taped over the area to try to absorb the ooze, and that helps some. Sometimes though it just gets OUT of control... Next time we see the surgeon I am thinking maybe we need to go up a size to see if that helps any. We shall see!

Trying to decide on a back surgery for him too, if we do it, when we do it, that kind of thing. Thinking he may be able to go to a special camp this summer too, and I dont want to mess that up for him, or the CRUISE either, but if we put it off too long then we may not be able to do it at all. AHHHHH!!! Wish I had someone skywriting for me to let me know what is the right thing to do!

gosh poor little guy!! it must be very uncomfortable for him to be having these complications !!! hope everything works out for him!
 
90 mins!!! WOW!!!
I only got 30!!!:lmao:

It was heaven..But, it was free massage. I found this deal on the budget boards a while back from Walgreens you had to buy so many cough drops, etc from Robitussin. I did and sent in the paper work for my mom and I and we each got one hundred dollars to a local spa. I actually got two hundred. Needless, to say we have a lot of cough drops now...LOL!!!!!!!!!!! But, heck the eighteen dollars I spent on cough drops got us three hundred dollars for the spa!!!!!!!!!!!!!!!
 
Thanks. He is a trooper most of the time... has his own way of letting people know what he thinks of them (ROFL! When he was in the hospital a year ago he had this poster on his door, with a big foot drawn on it... doctors names were written UNDER the big foot, and a tornado with nurses names flying out of it. Then the GOOD people were in the clouds over it all... LOL! He is a riot for sure!
 
Interesting thought... we upped his TPN a few months ago (IV nutrition that goes into his port) in hopes he would grow more, so far not much, but at least he isn't losing weight!

sounds like a good sign then if he's not loosing weight!
 
Interesting thought... we upped his TPN a few months ago (IV nutrition that goes into his port) in hopes he would grow more, so far not much, but at least he isn't losing weight!

Oh gosh, poor little guy.. I just read your post about camp this summer. Can you ask the surgeon what to do??? What do they recommend??
 
Well keep in mind they had a $120.00 credit so it turned out to be a good deal to fly JetBlue home but not down. Down it was going to be $144.00 per person....WOW!!!!!!!!!!!

still better deals than what we can get LOL
 
It really is a GREAT deal to put the final balance on the Visa you can get a fifty dollar onboard credit to for putting your final balance on it. Plus, you get six months no interest on any Disney Trip or DCL, plus the rewards dollars too....!!!!!!!!!!
wow that sounds good
 
Oh gosh, poor little guy.. I just read your post about camp this summer. Can you ask the surgeon what to do??? What do they recommend??

Thats the problem! LOL! This surgeon is the one who suggested it... the ortho surgeon (who doesn't know Sean as well) thinks we should not do it. Doing the surgery will help his pain issues, but WILL cause him some backsliding on his oxygen requirements for a while. It should improve back to where he is now, or maybe even a little better if the pain is better controlled, but its hard to see him go backwards for a year or two...
 
Thats the problem! LOL! This surgeon is the one who suggested it... the ortho surgeon (who doesn't know Sean as well) thinks we should not do it. Doing the surgery will help his pain issues, but WILL cause him some backsliding on his oxygen requirements for a while. It should improve back to where he is now, or maybe even a little better if the pain is better controlled, but its hard to see him go backwards for a year or two...

Poor little guy!!!
I hope everything works out for him!!!
 
Bruce just saw this one too. He says thanks and that your all to nice. Be carefull, he may start wanting to post here...LOL!!!!!!!!!!

that's ok!!!!! come on Bruce the more the better...come say hi:)
 
Bruce just saw this one too. He says thanks and that your all to nice. Be carefull, he may start wanting to post here...LOL!!!!!!!!!!


We don't mind at all.......Come join us Bruce!!!

I bet the other guys would really love it if he started posting!!!:goodvibes
Although they might start ganging up on us!!!:scared1:
 
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