No I don't have oneSadly we do everything with one card so we play the maxed and clear game LOL. I really should get a second card
Oh my,, gosh have fun.. Hey, I got my 90 min. massage today. It was pure HEAVEN!!!!!!!!!!!!!!!!
Bruce!!!!!!! hope you have a great day!!!
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To Bruce and Krista's son!!!
We are working on it... the problem is his gut just does not work very well. I have gauze that I keep taped over the area to try to absorb the ooze, and that helps some. Sometimes though it just gets OUT of control... Next time we see the surgeon I am thinking maybe we need to go up a size to see if that helps any. We shall see!
Trying to decide on a back surgery for him too, if we do it, when we do it, that kind of thing. Thinking he may be able to go to a special camp this summer too, and I dont want to mess that up for him, or the CRUISE either, but if we put it off too long then we may not be able to do it at all. AHHHHH!!! Wish I had someone skywriting for me to let me know what is the right thing to do!
90 mins!!! WOW!!!
I only got 30!!!![]()
Interesting thought... we upped his TPN a few months ago (IV nutrition that goes into his port) in hopes he would grow more, so far not much, but at least he isn't losing weight!
well we don't have that long of a drive to get to see snow LOL all we have to fo is stick our heads out the door and voila SNOWsorry I just had to say that...
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Interesting thought... we upped his TPN a few months ago (IV nutrition that goes into his port) in hopes he would grow more, so far not much, but at least he isn't losing weight!
Well keep in mind they had a $120.00 credit so it turned out to be a good deal to fly JetBlue home but not down. Down it was going to be $144.00 per person....WOW!!!!!!!!!!!
Just showed it to Bruce he says thanks!!!!!!!!!!
wow that sounds goodIt really is a GREAT deal to put the final balance on the Visa you can get a fifty dollar onboard credit to for putting your final balance on it. Plus, you get six months no interest on any Disney Trip or DCL, plus the rewards dollars too....!!!!!!!!!!
Oh gosh, poor little guy.. I just read your post about camp this summer. Can you ask the surgeon what to do??? What do they recommend??
Thats the problem! LOL! This surgeon is the one who suggested it... the ortho surgeon (who doesn't know Sean as well) thinks we should not do it. Doing the surgery will help his pain issues, but WILL cause him some backsliding on his oxygen requirements for a while. It should improve back to where he is now, or maybe even a little better if the pain is better controlled, but its hard to see him go backwards for a year or two...
Bruce just saw this one too. He says thanks and that your all to nice. Be carefull, he may start wanting to post here...LOL!!!!!!!!!!
Don't be silly that's what we wantBruce just saw this one too. He says thanks and that your all to nice. Be carefull, he may start wanting to post here...LOL!!!!!!!!!!
Bruce just saw this one too. He says thanks and that your all to nice. Be carefull, he may start wanting to post here...LOL!!!!!!!!!!