Make a Wish (and other organizations) - Wish Trippers UNITE! Volume THREE! :)

[Happy_dreams]

That is so cool of your school to do this. Are you in it?

Thanks! Yeah , Im in it! Im the girl to the left with dark hair, light blue pants with the breast cancer shirt on at the :35 mark. And when we do the failed wave (lol) Im the first GIRL(two boys two the left started it-we actually i told them to do it hehehe) that does it.

You can notice the Puerto Rican flag at the top of the wall XD..that was Spanish Class..

 

[Happy_dreams]

Awesome! Have a fantastic time! We may run into each other. I'm volunteering at GKTW in the Castle of Miracles on Thursday morning! In case, you aren't on until after the trip, HAVE A MAGICAL TIME!!! Can't wait to hear about it!

You volunteer? How is that experience? How old are you?

 

[newdrama12]

You volunteer? How is that experience? How old are you?

Yes, I do. I just love to see the excitement on everyone's faces as they get to escape reality for a week. I love volunteering at GKTW as much as I love my job and I'm 24.

 

[mjarecki]

We need to bring one medicine with us that is refrigerated, should I try to take it with us on the plane or can I have my pharmacy ship some to GKTW?

 

[Cheshire Figment]

I would suggest going to www.coolerconcept.com and looking at the Frio Cold Packs. There are several people in this forum, myself included, who use them.

These are gel packs that are water activated. They will keep the internal temperature at insulin-safe levels for over 40 hours. As the water evaporates you can just soak it in water for a few minutes to reactivate it. They come in various sizes.

For example, I have a "double wallet". Depending on what I am doing it will hold my Byetta pen as well as either a syringe with insulin in it or two insulin vials. And I tend to do at least five air round trips a year and have never had any problems with TSA over it.

 

[rcq925]

Oh my goodness! We're leaving tomorrow night!!!!

Have a wonderful time!!!!

 

[jen-y]

Yes, I do. I just love to see the excitement on everyone's faces as they get to escape reality for a week. I love volunteering at GKTW as much as I love my job and I'm 24.

We just came back from our wish trip, and we would like to volunteer, but probably need to wait till our kids get a little older. They are only 8 & 4

 

[Mom2mitokids]

I would suggest going to www.coolerconcept.com and looking at the Frio Cold Packs. There are several people in this forum, myself included, who use them.

These are gel packs that are water activated. They will keep the internal temperature at insulin-safe levels for over 40 hours. As the water evaporates you can just soak it in water for a few minutes to reactivate it. They come in various sizes.

For example, I have a "double wallet". Depending on what I am doing it will hold my Byetta pen as well as either a syringe with insulin in it or two insulin vials. And I tend to do at least five air round trips a year and have never had any problems with TSA over it.

Can you tell me how these work? I looked on site, but can this hold refrigerator meds and not just insulin? My daughter also has a feeding backpack..can you put one of these in there to keep the formula cold? Right now we put ice packs, but it can get heavy.

 

[rcq925]

Does anyone have all the addresses for the parks? We will be taking our GPS unit to use in the rental car and I would like to pre-program all the addresses to the Disney Parks?

Can anyone help me out with the addresses or a link?

We are getting close and very excited for our trip!!!

 

[mjarecki]

I added this to our PTR, but wanted to put it here too. Our flights are booked! We leave early on Monday the 15th of November and we don't leave Orlando until 6pm on Sunday the 21st, so we should get some extra time at GKTW on the Monday and Sunday which will be nice. Found out that the tickets were booked yesterday and then got home last night to find out that my husband was called for jury duty during the whole month of November-ugh!! Luckily he called today and they said he could have a postponment. Now we're just waiting for more information from the wish granters. They said they would call toward the end of October to talk about his send off party. Getting excited!

 

[jen-y]

Does anyone have all the addresses for the parks? We will be taking our GPS unit to use in the rental car and I would like to pre-program all the addresses to the Disney Parks?

Can anyone help me out with the addresses or a link?

We are getting close and very excited for our trip!!!

We just came back from our trip. I did not pre program the park addresses, but found them eaisly on my GPS when we got there, under area attractions/theme parks.

 

[Cheshire Figment]

Please do not use a GPS on WDW. If you have a Park address, usually it wil be an administrative area and not Public Access. Once you are on WDW the signs to get you to the correct parking lots or Resorts are very well designed and readable. If you follow the signs you will not get lost.

 

[blondietink]

If you go to the Mousesavers website they have all of the parks, hotels, etc. from Disney World ready to load onto your GPS depending on which brand of GPS you have.

 

[rcq925]

If you go to the Mousesavers website they have all of the parks, hotels, etc. from Disney World ready to load onto your GPS depending on which brand of GPS you have.

Thank you!! I will try that!

 

[Happy_dreams]

How long does it usually take the process of make-a-wish faxing papaers to the doc, the doc siging them and MAW recieving and approving them? What happens next?

 

[Happy_dreams]

Yes, I do. I just love to see the excitement on everyone's faces as they get to escape reality for a week. I love volunteering at GKTW as much as I love my job and I'm 24.

Oh that's awesome! I would love to volunteer some day!

 

[nursekimber]

How long does it usually take the process of make-a-wish faxing papaers to the doc, the doc siging them and MAW recieving and approving them? What happens next?

I hope this means your doctor said Yes!! We're in Southwest Ohio and I called them right after our doctor's office suggested we would be eligible for a wish. You'll be able to speak to someone the same day you call and they'll tell you everything. Go to www.wish.org and find the office closest to you.
I'm so happy for you!!!
Kim

 

[nursekimber]

We need to bring one medicine with us that is refrigerated, should I try to take it with us on the plane or can I have my pharmacy ship some to GKTW?

Our daughter (Kaleah, wish child) Has a feeding backpack and on several meds that have to be refrigerated too. We always travel with a insulated luch bag, the soft kind and use the gel ice bricks. I don't know how long your flight is but if you use 3-4 small gel bricks they'll last about 4-5 hours. Do you get them from your DME or HME supply company with her feeding bags? If so just ask for more or have your doctor write an order for the amount you think you'll need.
We are having most of her things( extra diaper, pads, trach, G/J tube supplies, formula etc.) mailed to GKTW and seeing which items can be rented from a local provider( back up stationary bi-pap, blood pressure machine, pulse oximeter etc) Some of this equipment is so heavy and we'll use the portables until we get there. It's a challenge getting ready...but a good one.

Kim

 

[Happy_dreams]

I hope this means your doctor said Yes!! We're in Southwest Ohio and I called them right after our doctor's office suggested we would be eligible for a wish. You'll be able to speak to someone the same day you call and they'll tell you everything. Go to www.wish.org and find the office closest to you.
I'm so happy for you!!!
Kim

"Yes." Oh how I wwant to hear that simple, yet life-changing word come out of my cardiologist's mouth. NO, he hasnt said yes because we haven't asked yet. We are going to ask him during my check-up appointment on the 16th- so not too far away! I am very uneasy about this. I don't if my condition merits it. But, I told my dad to cal our local office tomorrow morning! And he will, and he'll text what info he got from them-cus I'll be in school lol. There is only one wish office where I live.

 

[Glo's wish]

Okay I'm going to burst if I dont tell someone...our MAW volunteers are coming tomorrow night to get things started "officially". Yes, we've been told Glo can make a wish and that WDW shouldn't be an issue but Gloria's making her wish official tomorrow! Things stalled for so long that I was beginning to wonder if I'd imagined it. I know it will still be a LONG process, but I'm glad something is happening.
Thanks for listening, my friends think I've finally lost it with all of my talk of Disney. I'd hoped maybe you would all understand my excitement! Thanks for letting me follow you all in your planning so I can get a Disney fix!