Make a Wish (and other organizations) - Wish Trippers UNITE! Volume THREE! :)

[Happy Dreams1]

Prayers going out to princess Lisa and her family!!!!! Everything will be alright

 

[planningcrazymom]

I took Lisa to the hematologist today to have her INR checked (level of coumadin in her blood. Her third open heart surgery was a mitral valve implant). Lisa was fine, playing and happy in the exam room. I had concerns because she had gained 3 pounds in 6 days (concerns over fluid retention) and her INR was back down to 1.5 (much too low for her), with no changes to her coumadin dosage this past week. The next thing I knew, she was weak and exceptionally sleepy. We had some worried moments as her BP shot up and she seemed to have some “neurological deficits” per the hematologist. Her oxygen saturation was fine. They did a stat CBC and it was also fine. They had us go to the infusion side of the clinic (much homier and comfy) and allowed Lisa time to lie down and watch TV while they monitored her, per the cardiologist request (our reg. Card was working in a different city today) They were considering putting Lisa in the hospital for the night so they could watch her…After a late lunch, they sent us over to the cardiologist office. By this point, Lisa was starting to feel better, although still weak eyed and tired. The ECHO was disturbing in the fact that since October 4, she has had some noted changes to the mitral valve and lots of turbulence to the flow pattern. They hope once they get her INR back on track the mitral valve implant will function easier. They did allow me to bring her home and she felt better this evening. I am to watch her closely this weekend and return on Monday to the cardiologist for a repeat ECHO and the hematologist to see if her INR is better. I am posting this here as well as her PTR because we can use all the prayers you are willing to offer up on her behalf. THANK YOU!

Lisa is in our prayers.

 

[Happy Dreams1]

I don't know if anyone's intersted but... the doctor said YES!!!!!!1
He was sooo nice about it. And thanks for advising me to make sure he understandss what Make-a-wish is for. He first told me, "Pero, Make-a-wish es para ni~os terminales." English: But Make a wish is only for terminals kids. Then I gently said, "No, it used to be. Now it can be for life-threatening." Then my mom and him started talking about me medications and refills..stuff I really don't understand. Then he said: Okay, what do you want me to do? I gave him the refferal paper and he filled in the fax numbers etc. He then told me to fill out the parts by myself. I am going to pass it on to the document in my computer and email it to the foundation. I even told the doctor that I was so embarrased, and then he said: "Embarrased of what? Don't be. I'm here to serve my kids." aaaaaawwwwww He also asked my what my wish would be. I told him either Disneyworld or getting to pet baby lions and tigers. He joked and told me that I coud go over to his house, pet his four dogs, and even bathe them too! So, near the end, I told him that he needs to understand that he is the one that determines I get a wish or not. He laughed -but like in a good way. So yeah....
Also, my ECHO came out okay. The leak in my valve is stable. Though, he said that it's good thing Im on pills to lower my blood pressure cus even with the pills, it's on the high end of normal and abnormal levels early in the morning. Also, he said that for now, he can see no development of hypertensive heart disease.

 

[xanphylus]

I don't know if anyone's intersted but... the doctor said YES!!!!!!1
He was sooo nice about it. And thanks for advising me to make sure he understandss what Make-a-wish is for. He first told me, "Pero, Make-a-wish es para ni~os terminales." English: But Make a wish is only for terminals kids. Then I gently said, "No, it used to be. Now it can be for life-threatening." Then my mom and him started talking about me medications and refills..stuff I really don't understand. Then he said: Okay, what do you want me to do? I gave him the refferal paper and he filled in the fax numbers etc. He then told me to fill out the parts by myself. I am going to pass it on to the document in my computer and email it to the foundation. I even told the doctor that I was so embarrased, and then he said: "Embarrased of what? Don't be. I'm here to serve my kids." aaaaaawwwwww He also asked my what my wish would be. I told him either Disneyworld or getting to pet baby lions and tigers. He joked and told me that I coud go over to his house, pet his four dogs, and even bathe them too! So, near the end, I told him that he needs to understand that he is the one that determines I get a wish or not. He laughed -but like in a good way. So yeah....
Also, my ECHO came out okay. The leak in my valve is stable. Though, he said that it's good thing Im on pills to lower my blood pressure cus even with the pills, it's on the high end of normal and abnormal levels early in the morning. Also, he said that for now, he can see no development of hypertensive heart disease.

Congratulations!!!!!! Wahoo!!!

 

[Happy Dreams1]

Congratulations!!!!!! Wahoo!!!

THANK YOU! I just sent the refferal form with all the doctor info via email,but they won't see it 'till Monday cus they dont work weekends.

 

[Happy Dreams1]

I won't do a PTR until wish granters have actually come to see me to let you guys know. So, it may take a month(s).

 

[rcq925]

I don't know if anyone's intersted but... the doctor said YES!!!!!!1
He was sooo nice about it. And thanks for advising me to make sure he understandss what Make-a-wish is for. He first told me, "Pero, Make-a-wish es para ni~os terminales." English: But Make a wish is only for terminals kids. Then I gently said, "No, it used to be. Now it can be for life-threatening." Then my mom and him started talking about me medications and refills..stuff I really don't understand. Then he said: Okay, what do you want me to do? I gave him the refferal paper and he filled in the fax numbers etc. He then told me to fill out the parts by myself. I am going to pass it on to the document in my computer and email it to the foundation. I even told the doctor that I was so embarrased, and then he said: "Embarrased of what? Don't be. I'm here to serve my kids." aaaaaawwwwww He also asked my what my wish would be. I told him either Disneyworld or getting to pet baby lions and tigers. He joked and told me that I coud go over to his house, pet his four dogs, and even bathe them too! So, near the end, I told him that he needs to understand that he is the one that determines I get a wish or not. He laughed -but like in a good way. So yeah....
Also, my ECHO came out okay. The leak in my valve is stable. Though, he said that it's good thing Im on pills to lower my blood pressure cus even with the pills, it's on the high end of normal and abnormal levels early in the morning. Also, he said that for now, he can see no development of hypertensive heart disease.

Congratulations! That is wonderful news that you will get your wish!!!!

 

[Happy Dreams1]

Congratulations! That is wonderful news that you will get your wish!!!!

Thank you! I was soo nervous about asking. Fortunately, my mom was the one who stepped in and told him. I just hope he doesn't forget our conversation and rejects the wish lol. But i really do like my doctor. Ive been seeing him so much in the past 2 years that today,when I entered the office, he said, "Oh! Look who's here!" And he rarely says that(he forgets people really quickly)..to the others he just said, "HELLO." I am due for another appt. in 8 months. So how do I know if thw foundation recieved my refferal successfully?

 

[maroo]

I don't know if anyone's intersted but... the doctor said YES!!!!!!1

He was sooo nice about it. And thanks for advising me to make sure he understandss what Make-a-wish is for. He first told me, "Pero, Make-a-wish es para ni~os terminales." English: But Make a wish is only for terminals kids. Then I gently said, "No, it used to be. Now it can be for life-threatening." Then my mom and him started talking about me medications and refills..stuff I really don't understand. Then he said: Okay, what do you want me to do? I gave him the refferal paper and he filled in the fax numbers etc. He then told me to fill out the parts by myself. I am going to pass it on to the document in my computer and email it to the foundation. I even told the doctor that I was so embarrased, and then he said: "Embarrased of what? Don't be. I'm here to serve my kids." aaaaaawwwwww He also asked my what my wish would be. I told him either Disneyworld or getting to pet baby lions and tigers. He joked and told me that I coud go over to his house, pet his four dogs, and even bathe them too! So, near the end, I told him that he needs to understand that he is the one that determines I get a wish or not. He laughed -but like in a good way. So yeah....
Also, my ECHO came out okay. The leak in my valve is stable. Though, he said that it's good thing Im on pills to lower my blood pressure cus even with the pills, it's on the high end of normal and abnormal levels early in the morning. Also, he said that for now, he can see no development of hypertensive heart disease.

AWESOME!!!! On all fronts!

That is great!!

Do you REALLY want to pet lions?!?!?!

 

[maroo]

Thank you! I was soo nervous about asking. Fortunately, my mom was the one who stepped in and told him. I just hope he doesn't forget our conversation and rejects the wish lol. But i really do like my doctor. Ive been seeing him so much in the past 2 years that today,when I entered the office, he said, "Oh! Look who's here!" And he rarely says that(he forgets people really quickly)..to the others he just said, "HELLO." I am due for another appt. in 8 months. So how do I know if thw foundation recieved my refferal successfully?

I would give it two weeks...and then call them to make sure they got the referral - and then they can start looking out for the paperwork!! Woo Hoo!!

 

[Happy Dreams1]

I would give it two weeks...and then call them to make sure they got the referral - and then they can start looking out for the paperwork!! Woo Hoo!!

Okay, I'll tell my dad to call soon. The thing is, I really didn't know wha email to send it to, so I just sent it to the email that was listed when I got the refferal form via email. Yes, I've always wanted to pet lions and tigers!strange, right? hahaha but I'm leaning more to Disneyworld. I'll update you on everything! It's so hard to study for my tests on Monday! hahahaha I have another question: up to what age does MAW let siblings come along for the trip? Or does this depend on your chapter?

 

[billwendy]

Okay, I'll tell my dad to call soon. The thing is, I really didn't know wha email to send it to, so I just sent it to the email that was listed when I got the refferal form via email. Yes, I've always wanted to pet lions and tigers!strange, right? hahaha but I'm leaning more to Disneyworld. I'll update you on everything! It's so hard to study for my tests on Monday! hahahaha I have another question: up to what age does MAW let siblings come along for the trip? Or does this depend on your chapter?

I wonder if you went to Disney if you could ask for a special behind the scenes wish to meet some animials at the animal kindgom????

 

[Happy Dreams1]

I wonder if you went to Disney if you could ask for a special behind the scenes wish to meet some animials at the animal kindgom????

OH MY!!!!!!!!!!!!!!!!!!!!!!! I forgot that disney has an ANIMAL Kingdom!!!! I could so wish for that. Thank you sooo much! I do love animals soo much! I will definitely ask for something like that!

 

[blessedmom4]

I don't know if anyone's intersted but... the doctor said YES!!!!!!1
He was sooo nice about it. And thanks for advising me to make sure he understandss what Make-a-wish is for. He first told me, "Pero, Make-a-wish es para ni~os terminales." English: But Make a wish is only for terminals kids. Then I gently said, "No, it used to be. Now it can be for life-threatening." Then my mom and him started talking about me medications and refills..stuff I really don't understand. Then he said: Okay, what do you want me to do? I gave him the refferal paper and he filled in the fax numbers etc. He then told me to fill out the parts by myself. I am going to pass it on to the document in my computer and email it to the foundation. I even told the doctor that I was so embarrased, and then he said: "Embarrased of what? Don't be. I'm here to serve my kids." aaaaaawwwwww He also asked my what my wish would be. I told him either Disneyworld or getting to pet baby lions and tigers. He joked and told me that I coud go over to his house, pet his four dogs, and even bathe them too! So, near the end, I told him that he needs to understand that he is the one that determines I get a wish or not. He laughed -but like in a good way. So yeah....
Also, my ECHO came out okay. The leak in my valve is stable. Though, he said that it's good thing Im on pills to lower my blood pressure cus even with the pills, it's on the high end of normal and abnormal levels early in the morning. Also, he said that for now, he can see no development of hypertensive heart disease.

I do love to read about good news, Happy MD visits and I hope all goes well in getting your wish approved!

 

[Mom2mitokids]

I don't know if anyone's intersted but... the doctor said YES!!!!!!1
He was sooo nice about it. And thanks for advising me to make sure he understandss what Make-a-wish is for. He first told me, "Pero, Make-a-wish es para ni~os terminales." English: But Make a wish is only for terminals kids. Then I gently said, "No, it used to be. Now it can be for life-threatening." Then my mom and him started talking about me medications and refills..stuff I really don't understand. Then he said: Okay, what do you want me to do? I gave him the refferal paper and he filled in the fax numbers etc. He then told me to fill out the parts by myself. I am going to pass it on to the document in my computer and email it to the foundation. I even told the doctor that I was so embarrased, and then he said: "Embarrased of what? Don't be. I'm here to serve my kids." aaaaaawwwwww He also asked my what my wish would be. I told him either Disneyworld or getting to pet baby lions and tigers. He joked and told me that I coud go over to his house, pet his four dogs, and even bathe them too! So, near the end, I told him that he needs to understand that he is the one that determines I get a wish or not. He laughed -but like in a good way. So yeah....
Also, my ECHO came out okay. The leak in my valve is stable. Though, he said that it's good thing Im on pills to lower my blood pressure cus even with the pills, it's on the high end of normal and abnormal levels early in the morning. Also, he said that for now, he can see no development of hypertensive heart disease.

I'm so happy for you. I would wait 2 weeks and then call. Hurry and think what you want. lol

 

[blessedmom4]

So sorry to hear that! Prayers going out for Lisa and your whole family!

Hoping Lisa feels better soon and everything "settles" down.

Bearshouse

Prayers going out to princess Lisa and her family!!!!! Everything will be alright

Lisa is in our prayers.

You have my heartfelt Thank You for praying for my precious Princess Lisa. Please continue to pray as we wait to discover on Monday if her ECHO shows her heart improving on the new medication.

 

[Happy Dreams1]

I'm so happy for you. I would wait 2 weeks and then call. Hurry and think what you want. lol

thanks for the advise!!!! I mean, I just want dad to call to figure which email Im supposed to send the refferal to. lol soo lost. I am thinking, and fast! billwendy suggested to combine my love for animals and disneyworld. And I think I will. My mom and I were joking right that it'd be devasting and funny that if we get a call that I wasn't approved because my doctor rejected the wish because he forgot who I was. Our doctor is like that..fogetting EVERYTHING. But, somehow him and I have a speical relationship as I mentioned before:he welcomes me into his office very differently than other families. It's beause these past two years have been crazy with appt.s to the cardio. Right now, my next appt. with him is in 8 months. Thank you for being excited lol!!

 

[Happy Dreams1]

You have my heartfelt Thank You for praying for my precious Princess Lisa. Please continue to pray as we wait to discover on Monday if her ECHO shows her heart improving on the new medication.

You're welcome. Still praying for princess Lisa!! Oh and thanks for wishing me well on the wish process! I really do hope and pray all goes well!

 

[Mom2mitokids]

thanks for the advise!!!! I mean, I just want dad to call to figure which email Im supposed to send the refferal to. lol soo lost. I am thinking, and fast! billwendy suggested to combine my love for animals and disneyworld. And I think I will. My mom and I were joking right that it'd be devasting and funny that if we get a call that I wasn't approved because my doctor rejected the wish because he forgot who I was. Our doctor is like that..fogetting EVERYTHING. But, somehow him and I have a speical relationship as I mentioned before:he welcomes me into his office very differently than other families. It's beause these past two years have been crazy with appt.s to the cardio. Right now, my next appt. with him is in 8 months. Thank you for being excited lol!!

Diffenently ask for it, but don't be upset if you can't get both. Korissa wanted Disney World and swim with the dolphins and couldn't get both. She loves dolphin..or really any animal just like you. If they say no...you can always call Animal Kingdom and ask for yourself. I'm going to call Sea World and see if Korissa can get a private meet and greet with the dolphins.

 

[Happy Dreams1]

Diffenently ask for it, but don't be upset if you can't get both. Korissa wanted Disney World and swim with the dolphins and couldn't get both. She loves dolphin..or really any animal just like you. If they say no...you can always call Animal Kingdom and ask for yourself. I'm going to call Sea World and see if Korissa can get a private meet and greet with the dolphins.

Okay, I won't. I know that either way, it's a blessing to be getting a wish. I would love it if Korissa gets to swim with the dolphins! Please keep me updated on that!