Make a Wish (and other organizations) ~ Wish Trippers UNITE! Volume FOUR!

[blessedmom4]

The apron idea worked very well because she could have her regular clothes underneath and was not sitting on a bulky skirt. She also could wear a long sleeved shirt underneath or a short sleeved shirt, depending on how warm it was.
We are going back in October and she will wear the same costume for Mickeys Not So Scary Halloween Party. I am going to add some longer flower petals to the underneath part to make it longer. She was wearing Capri pants because it was too cool for shorts and the Capri pants stuck out.

I have also altered dresses for her. She was in a dance recital where the young ladies were supposed to wear ball type gown (song was Phantom of the Opera).
I bought a long one piece dress at Goodwill and altered it to become a 2 piece dress with a skirt and a top. She wore a black camisole and black capris underneath it and then we put the dress on just when we needed to for the dance. The top went over her head and we leaned her forward to pull the top into place. I put Velcro on one side seam of the skirt for ease in getting it on and off.

I have also made Halloween costumes with velcro on both side seams of the skirt - the back of the skirt was already in place in her wheelchair when I lifted her in. Just had to do a little adjusting, then place the front of her skirt on top and Velcro the side seams together.
She has also had some dresses where one whole side was closed with Velcro from the underarm seam down to the hem. You can do most of the placing while she's sitting in the wheelchair, move her a bit for getting the skirt underneath and then do final adjustments before velcroing up the side seam. That might work well for G tube access, if you make the side seam on the side you need more access on. Minimal arm bending is needed because you can slide the first arm on and the other armhole is completely open.
If you use Velcro, make sure you get the extra soft, flexible kind. The regular kind is scratchy, but the extra soft is not.

I'll try to post a picture of her dance costume today. That was pretty involved sewing, because I completely remade the dress. But for some outfits, it would be fairly simple to just take out the side seam and replace it with Velcro to close it back up again.

To be so talented...Wish I was!

Come over and Check out our TR because it's FINISHED

LOVED IT!!!!

It's surgery week for Madison! She has pre-op tomorrow and surgery on Tuesday so if everyone could say a little prayer, send good vibes, whatever it is you do, we would GREATLY appreciate it!!!

Prayers and

 

[princessmamaof5]

We have been to disney before but mackenzie did not have such high braces then, now she has 2 bilateral ground reactive braces to her knees will she be able to fit herself and these into most of the rides? Also since our wish grantors are coming tommorow whats a good time to request to go the last visit it was rediculously busy and very hard to manuver throughthe huge crowds we went over spring break last time.

 

[livndisney]

We have been to disney before but mackenzie did not have such high braces then, now she has 2 bilateral ground reactive braces to her knees will she be able to fit herself and these into most of the rides? Also since our wish grantors are coming tommorow whats a good time to request to go the last visit it was rediculously busy and very hard to manuver throughthe huge crowds we went over spring break last time.

With the "magic button" you should not have to worry about crowds no matter when you go. Most MAW trip children get "front of the line" or darn close to it LOL. When does your daughter want to go for her Wish?

 

[princessmamaof5]

She is wanting to go soon she has a few urology tests and we should know if she is in the clear. I was hoping late september to november but we want to have a little money saved so well just go with it and go from what the MAW people say and suggest .Mackenzie is so excited about GKTW and shes been reading the stories and oogling over the little princess girls and prince boys, she does her very best to fit in but she has a hard time keeping up with her friends. I am happy she gets to go to the front of the line she will be excited about that too.

 

[wishin' on a star]

When catherine's wish granters came, they asked us that day for our top three choices of dates, so you may want to be prepared for that. With the GKTW button, you will be able to move through the rides very quickly, but a crowded park is still a hassle to maneuver through, esp with several little ones! Also take into account how hot it may be and how well your kiddo deals with the heat. Anytime you go will be magical on a MAW trip though! Can't wait to hear how it goes tomorrow!

 

[starienite]

I don't know if anyone else has heard of this, but if you qualify for MAW (and also in case you don't) there is a wonderful group called Inspiration Thru Art. http://www.inspirationthroughart.org/

When we were approved they were only offering photography, but they have expanded.
In our case out wonderful photographer did a free session with us and then she surprised us a dvd with 42 images and copyright on the photos.

Not all photographers will do what she did, but you do get the session fee waived and in most cases at least a few prints free and a generous discount on any that you wish to purchase.

This is her blog post of our session with the photographer we selected.
http://www.amiciphotoblog.com/index.cfm?q=Devon&x=0&y=0

It is one more thing to look forward too before the big trip!

 

[katieb4]

welcome new people!

Sue, what a creative and cool way to do it!

Prayers for Madison!!!!

We're going in October and hoping that the crowds are low. We'll see!

I got my to do lists done this weekend so I am free to plan Disney now in earnest! Gabbie had a rough week last week, but a blood transfusion has her rarin to go again. (plus she's on a chemo break, always nice)

Question, Is the bday party at GKTW super cool? We're going to miss the Christmas party, so weighing what we should go to. My kiddos love fireworks so we know we need to hit a few late night Disney shows.

 

[maroo]

I am so sorry for my long absence....

Things are busy in my world....trying to catch up on here...

Hi - we are new here.
My daughter Holly (16) has just made her wish and we are waiting to see if it will be accepted. We are very nervous. Hollys wish was to go to Florida and become a princess - she wanted to do the complete bibidi bobidi boo thing. As she is in a wheelchair she very rarely gets to wear a dress as it just isnt practical, especially with feeding tubes etc, she also rarely gets make up or hair done because of the oxygen.
Hopefully I will be back soon to let you know if the wish was granted.
Hope I am in the right place!!

so glad you are here!!

You are definitely in the right place!

I am new to this and somewhat confused how all works but my daughter is a Wish child and we are meeting with our wish volunteers on monday. How and where do you get put on the big give wishlist? We will probably not being going for a few months and we have a family of 7 traveling thanks for you help and im hoping to get to know some of you well on here. Oh btw whoever makes those crayon holders they are sooo darling

! I think you are getting the hang of this! I posted a link to your pretrippie on the first page.

There is also a section in the 2nd post (below the first LOOOOONNNGGG post of trip report links) where you can get answers to all sorts of freq. asked questions, including a bit of info about The Big Give.

Here’s a picture of my youngest daughter in her fairy costume. It looks like a whole dress, but was actually an apron. Very much easier to put on than a dress!

Here’s a picture of the Fairy costume by itself:

and a picture of her wings:

Sue - your daughter is so cute!! And that is a great idea for a costume!

I was talking to Lauren yesterday about needing some new "wheelchair" friendly clothes for school...she will be out in the cold a lot more next year and we are going to need to come up with some sort of cape or something that she can use to keep herself from freezing that can go on and off easily as she goes in and out between classes. College is freaking me out for her.

Mackenzie(Wish Child) and Caitlyn a few years ago

OU family photo at disney in 2009 our son was not yet in the picture i actually found her was coming 2 weeks after we returned from the Magical Disney. After 4 girls maybe it really was magical.

Chase our lil stud muffin as my girls call him has definitely brought some flavor to our household

oh and sorry about the pics on this page i plan on moving to my post trip report . Im just so excited i figured how to put pictures on here

great pics! beautiful family! and that worked well!!

Could you post my PTR Link on the front page please. We meet with our wish makers monday UPDATED MY PTR

http://www.disboards.com/showthread.php?p=41593352#post41593352

Done!

It's surgery week for Madison! She has pre-op tomorrow and surgery on Tuesday so if everyone could say a little prayer, send good vibes, whatever it is you do, we would GREATLY appreciate it!!!

Prayers being said!!!!! Keep us updated!

We have been to disney before but mackenzie did not have such high braces then, now she has 2 bilateral ground reactive braces to her knees will she be able to fit herself and these into most of the rides? Also since our wish grantors are coming tommorow whats a good time to request to go the last visit it was rediculously busy and very hard to manuver throughthe huge crowds we went over spring break last time.

?? I am confused on the ride question... can she bend her legs at her knees with the braces on? I think most rides should be completely fine because Disney designs their ride to really accomodate people of all sizes, etc.

I would go during a down time...October has good weather...December is awesome with Holiday stuff! It is a special trip...so I say, ditch school and go during a school time so that you can avoid the biggest crowds.

Button or no button, you still want fewer crowds...parades, restaurants, etc, etc will all be busy with crowds and the button can't help you find a table. Trust me. LOL

 

[jj0plin]

Hi! I am still around, though I have been mostly lurking because it's very hard to post from my phone. I just got back from a week at my mom's in Naples, Florida and it was great! After I got back I spilled a glass of tea on my laptop! I've got it working again and might be able to get to finishing my trip report sometime this year

Here is a link to today's post of Naples pictures, thanks for looking!

http://www.disboards.com/showthread.php?p=41628943#post41628943

 

[princessmamaof5]

[/SIZE]today is the day in two hours we go to meet our wish makers. I feel like its the first day of school or something and its not even my WISH. So excited for Mackenzie and what is to come!!

 

[cantwaittoseemickey]

Hello

Ty wears tall afo's and had no problems with the rides when he went on his wish trip last year.

We have been to disney before but mackenzie did not have such high braces then, now she has 2 bilateral ground reactive braces to her knees will she be able to fit herself and these into most of the rides? Also since our wish grantors are coming tommorow whats a good time to request to go the last visit it was rediculously busy and very hard to manuver throughthe huge crowds we went over spring break last time.

 

[Em'swish]

Did not get to post after last Wednesday since Em was in the hospital, but the wish granter came to her and she made her wish!!!!!!!!! Her first wish was Disney and Snow White and her second wish was harder to get out, they asked her a favorite animal and for some reason she said dolphin. It's not that. So since she's only 4.5 they took that as Sea World. Which isn't that reallly just the same wish. They were so sweet and Em was happy to color with them. We gave our preferd dates, one of them being her birthday in the end of September. I can't wait to hear from them. I need to update my pre-TRP with the pictures. Might take a bit, we are still getting over being in the hospital and dealing with her MRSA. No fun!

Melissa
mom to Emily (wish kiddo) and Abby (best little sister)

 

[chelleydi77]

Thanks for the prayers! Madison's surgery was just bumped to the first of the day! I'll try to update as we hear things (I'll do it in our PTR).

 

[princessmamaof5]

Thanks for the prayers! Madison's surgery was just bumped to the first of the day! I'll try to update as we hear things (I'll do it in our PTR).

Still praying all goes well.

 

[princessmamaof5]

UPDATED Mackenzie PTR picture included from her wish grantors meeting !!!!!

 

[Synovial]

I have been posting on the pre-trip report, but I am still trying to figure out how to link it to this. I have tried several times and haven't had any success. I will try it again later when I have more time. If anyone is interested it is Preston's pre-trip report. Synovial

 

[blessedmom4]

I have been posting on the pre-trip report, but I am still trying to figure out how to link it to this. I have tried several times and haven't had any success. I will try it again later when I have more time. If anyone is interested it is Preston's pre-trip report. Synovial

Link to your PTR

Hope that helps!

ETA: I did the same thing Sue did below on your actual TR last night. The links on the front page of this thread are because I didn't know how to do them either and Christy and Tim were both kind enough to show me how. If I could learn how to do it ANYBODY can!

Sue, I don't think the link below is working, at least not for me.

 

[SueM in MN]

I have been posting on the pre-trip report, but I am still trying to figure out how to link it to this. I have tried several times and haven't had any success. I will try it again later when I have more time. If anyone is interested it is Preston's pre-trip report. Synovial

I will help you out - here's the link to your pre trip report:
http://www.disboards.com/showthread.php?t=2742923

You can add that to your signature ( I am on my iPad, so I have to go away a minute to add instructions for how to do that).

Edited to add: I see that blessedmom4 posted a link for how to add your pre trip report too while I was away.
here's a link for how to add a pre trip report to your signature.

Use the link above that ends in the numbers 2742923 - that's the link to your actual trip report without the coding that is in the link that blessedmom4 posted.

 

[cantwaittoseemickey]

Aww I hope you get to go for her birthday that would really neat. Sorry to hear about the MRSA. That is no fun Ty had a pretty bad run in with MRSA as well. Hugs

Did not get to post after last Wednesday since Em was in the hospital, but the wish granter came to her and she made her wish!!!!!!!!! Her first wish was Disney and Snow White and her second wish was harder to get out, they asked her a favorite animal and for some reason she said dolphin. It's not that. So since she's only 4.5 they took that as Sea World. Which isn't that reallly just the same wish. They were so sweet and Em was happy to color with them. We gave our preferd dates, one of them being her birthday in the end of September. I can't wait to hear from them. I need to update my pre-TRP with the pictures. Might take a bit, we are still getting over being in the hospital and dealing with her MRSA. No fun!

Melissa
mom to Emily (wish kiddo) and Abby (best little sister)

 

[mom2pixies]

Thanks for the prayers! Madison's surgery was just bumped to the first of the day! I'll try to update as we hear things (I'll do it in our PTR).

Thinking of you guys!