Make a Wish (and other organizations) ~ Wish Trippers UNITE! Volume FOUR!

[PenelopeL]

MOST helpful thread ever! Thanks for all the tips, links, and thoughts!! I'm planning my son's MAW trip, which is coming up in late March, and this was so hepful! Thanks!

 

[blessedmom4]

MOST helpful thread ever! Thanks for all the tips, links, and thoughts!! I'm planning my son's MAW trip, which is coming up in late March, and this was so hepful! Thanks!

Penelope

We are so happy you have joined us!
I am going over now to check our your PTR.

 

[jwallaceent]

All wish kids are given free "fish" to feed the sting rays and the dolphins. When you get to the dolphin line, let them know (as early as possible) that you have a wish child that would like to feed the dolphins and they will do their best to make sure they get to actually touch one...

They do a great job trying to make sure each wish family has a good experience there.

Honestly...I would save the money on the tour and use it to buy the CD they take of you feeding the dolphins...

Here are some of the pictures when we did it...

At first Lauren was just looking...didn't want to touch one...

But then they encouraged her to touch one and said that they would get the dolphin to come to her.

We tried the first time and could not get her hand out far enough to touch one...so they tried again in another area to make sure she could touch it.

It looks like she got it here...but she could not quite get close enough...

So we moved again and finally got it!!!!
It was so cool!!!

The CD comes with stock photos too...

WOW....how amazing! She is going to be soooo excited! I just love your pictures! = ) Thank you so very much for the information! I am so looking forward to our trip for her! This site is awesome and amazing! Thanks again!

 

[jwallaceent]

Ok guys!!

I *think* I am caught up on adding all of the TR's to the first page...

so if yours is not on there...please let me know and I can add it!

Just post here....



Also...we *may* get an ice storm...which means I may lose power...so I may be in and out for a few days. Say a little prayer for us...as these storms down here in the South are dangerous...no one knows how to drive in this stuff and I think we have 2 salt trucks or something crazy like that.

Praying for you guys...I think Virginia was pretty much the only state not hit by this storm! We had our share last year! We lost power for 4 days. I hope that is not the case with you guys! All the best!

 

[jwallaceent]

Is it Friday yet???? I know it is only Wed, but this week has been a week and we are only 1/2 way through it. On my way to work from dropping Abby off at school, (she usually rides the bus, but with her back and having to have the wheelchair right now I have to take her) Tilear called me sobbing, his stomach was killing him and he couldn't hardly catch his breath. I took him to the ER where they think it is an ulcer. This morning back to the dr. his pedi, he thinks gallbladder or pancritis (sp), we go next Thursday morning to the hosptial for ultrasound, upper GI series and some other type of testing. Between Abby's back and now Tilear's belly, the pain my babies are in is killing me and there is nothing I can do for them. Abby can take pain meds, but Tilear they won't give anything for pain, because of the belly issues. I have never seen someone in so much pain from an ulcer. I had my gallbladder out and the pain he is in reminds me of that. It isn't a constant pain, but comes and goes several times a day and will last anywhere from 5min to 45 min, with him just balled up in a fetal position rolling around his bed.

Please pray that they figure out what is wrong with his belly and that all this gets figured out before our trip.

Keeping Abby and your family in my prayers!

 

[MitoDadMO]

MAW will be coming out to the house on Saturday for Mattie to make her wish. She plans on wishing for a trip to Disney. I have a few questions.

Mattie is heat intolerant, what are the best months to go to miss the heat?

I keep hearing that we should be more specific with our wish.. but we know very little about Disney. What are some of the special events that can be added to the trip that would be good for an older child?

I know that the cost it supposed to be covered by MAW. Is that really the case? Do we need to save up before we go?

That is all I can think of off the top of my head. Please feel free to offer up any advice you have.

My son is heat intolerante as well from meds due to epilepsy (associated with mito issue). We are going next month to Disney because it is still cool. I have also heard that Oct is a GREAT time because crowds are low and heat is low too.

 

[HeatherSP]

Hi everyone! I don't really have much of an update. I just wanted to let you all know that I have started a blog in case you like to follow along that way. I will continue to update my PTR here too. We are sooooo excited but still have what seems like a long wait.

You can read along http://whenyouwishuponastar2011.blogspot.com/

You can also join me on facebook http://www.facebook.com/HeatherStarr74

And of course I will update here

 

[xanphylus]

Just wanted to let everyone know that I have been praying for you all! I haven't been posting much here on the main thread lately.... but been lurking again. Hope everyone's trips are great and welcome to all the new people!!!!

 

[brookerene]

Hi everyone! I don't really have much of an update. I just wanted to let you all know that I have started a blog in case you like to follow along that way. I will continue to update my PTR here too. We are sooooo excited but still have what seems like a long wait.

You can read along http://whenyouwishuponastar2011.blogspot.com/

You can also join me on facebook http://www.facebook.com/HeatherStarr74

And of course I will update here

that is a great start on the blog... and great photo of you and your husband... I'm hoping we will run into each other on our wish trips! Take care!

 

[kailatilear]

WOOOHOOO! Are you feeling paniced yet?? I sure am!

YES!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

Just wanted to let everyone know we received our GKTW packet today It is seeming so real now, ONLY 19 DAYS, not counting today!!!!!!

Abby's endo went great today, she is a prime candidate for the treatment to strengthen her bones and releive bone pain. It is a 1 to 2 day infusion treatment. She is also scheduled for a dexa/bone density scan on 2/8. I have been fighting for this treatment for her for over a year. We go back on 3/10 to find out for sure and to see what all her levels look like.

 

[brookerene]

great news!

 

[Glo's wish]

YES!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

Just wanted to let everyone know we received our GKTW packet today It is seeming so real now, ONLY 19 DAYS, not counting today!!!!!!

Abby's endo went great today, she is a prime candidate for the treatment to strengthen her bones and releive bone pain. It is a 1 to 2 day infusion treatment. She is also scheduled for a dexa/bone density scan on 2/8. I have been fighting for this treatment for her for over a year. We go back on 3/10 to find out for sure and to see what all her levels look like.

Congrats on the GKTW packet and the treatment! It's always nice when you can win one!!!

 

[tinytreasures]

YES!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

Just wanted to let everyone know we received our GKTW packet today It is seeming so real now, ONLY 19 DAYS, not counting today!!!!!!

Abby's endo went great today, she is a prime candidate for the treatment to strengthen her bones and releive bone pain. It is a 1 to 2 day infusion treatment. She is also scheduled for a dexa/bone density scan on 2/8. I have been fighting for this treatment for her for over a year. We go back on 3/10 to find out for sure and to see what all her levels look like.

Yah for your packet and getting treatment

Welcome to our newest families

 

[luvmygrlz3]

YES!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

Just wanted to let everyone know we received our GKTW packet today It is seeming so real now, ONLY 19 DAYS, not counting today!!!!!!

Abby's endo went great today, she is a prime candidate for the treatment to strengthen her bones and releive bone pain. It is a 1 to 2 day infusion treatment. She is also scheduled for a dexa/bone density scan on 2/8. I have been fighting for this treatment for her for over a year. We go back on 3/10 to find out for sure and to see what all her levels look like.

OMGoodness! You have GOT to be sooo excited! We are counting down the days now...at least mommy & daddy are...we're trying not to bring it up much w/ the kiddos...kinda letting them talk about it when THEY want to. My girls get really worked up when something big is coming up that we are planning...so we have decided to just let the date come quietly.

Do you have an itinerary set up yet? What parks have you decided to do? Anything special you all are doing ???

 

[blessedmom4]

Just wanted to let everyone know that I have been praying for you all! I haven't been posting much here on the main thread lately.... but been lurking again. Hope everyone's trips are great and welcome to all the new people!!!!

You are such a sweetheart , we appreciate all of your prayers and support!

 

[kailatilear]

OMGoodness! You have GOT to be sooo excited! We are counting down the days now...at least mommy & daddy are...we're trying not to bring it up much w/ the kiddos...kinda letting them talk about it when THEY want to. My girls get really worked up when something big is coming up that we are planning...so we have decided to just let the date come quietly.

Do you have an itinerary set up yet? What parks have you decided to do? Anything special you all are doing ???

Believe it or not, we do not have a formal itinerary set up. We are going to Chef Mickeys Sat 2/26. We know we are going to do MK, AK, DHS, Epcot and Sea World, we are not sure of Universal, although we are going to try. We have the calander and times of Wish's and other things, but we are pretty much taking it day by day. We want to be able to enjoy ourselves and relax. We do have specifics at each park we want to see and ride, but other than that it is pretty much what happens happens.

I know to many of you this sounds scary, not having a "plan", but we live so much by day to day, minute by minute because of Abby's bones, that we don't want a strict plan at Disney.

 

[kailatilear]

OMGoodness! You have GOT to be sooo excited! We are counting down the days now...at least mommy & daddy are...we're trying not to bring it up much w/ the kiddos...kinda letting them talk about it when THEY want to. My girls get really worked up when something big is coming up that we are planning...so we have decided to just let the date come quietly.

Do you have an itinerary set up yet? What parks have you decided to do? Anything special you all are doing ???

We are VERY excited.

Believe it or not, no big itinerary set up yet. We know we want to go to MK, AK, DHS, Epcot and Sea World are the musts, Universal we want to hit, but won't panic if we don't.

We really want this to be fun and relaxing. We know we will be doing Wish's and Chef Mickey's 2/26, but other than that nothing big planned. We have the must do's and must see's at each park, but other than that, we just want to take the time and smell the roses.

We live minute to minute with Abby never knowing when she is going to break something, that to be able to take a whole week and just be together relaxing and enjoying each other is so exciting to us.

I know to many people not having a plan is scary, but to us it isn't. Please tell me this is okay, because as I sit here and type this, I am really starting to panic.

 

[blessedmom4]

We are VERY excited.


I know to many people not having a plan is scary, but to us it isn't. Please tell me this is okay, because as I sit here and type this, I am really starting to panic.

I think it is IDEAL!!! You will be ready for the Pixie Dust when it finds you...WHEREVER that might be!

 

[kailatilear]

I think it is IDEAL!!! You will be ready for the Pixie Dust when it finds you...WHEREVER that might be!

Thank you, because I am starting to actually panic!!!!!!!!!!!!!

 

[blessedmom4]

Thank you, because I am starting to actually panic!!!!!!!!!!!!!

Don't panic, it is going to be GREAT! Just relax and go with the flow...you will be at Disney, whatever happens will be FUN!!!!