Hi! This is my first time on here other than registering. My husband and I have 2 sons. My 12 year old has had severe pain in his right leg around the knee for 6 years. I have taken him to numerous doctors in all fields and all of them said they couldn't find anything wrong with him. They told me to take him home and maybe he would grow out of it. Finally the last 2 years his leg has started to get a visible lump on it, so we saw another pediatrician in October and drew his attention to it and he didn't know what it was, but sent us to another doctor, who sent us to a tumor specialist. He thought it was a nerve tumor and wanted to do a biopsy to make sure. When he did the biopsy he saw more cells than he was expecting. The biopsy was sent to Emory. They had it for 2 weeks and finally indentified it as Synovial Cell Sarcoma, which is one of the rarest of the rare cancers. In January the majority of the tumor was removed along with a lot of muscle to get a clear margin. A small portion had moved to the synovial fluid in his knee and could not be removed surgically, so in March he started 31 radiation treatments 5 days a week. He finished at the end of April and is now taking Physical Therapy 2 days a week to learn how to walk right again, because he has limped for the past 4 years. He has to go for X-Rays every 2 months to make sure his growth plate in that leg is still open and growing and an MRI every 3 months to make sure it is not coming back or spreading or another kind of cancer developing from the radiation and a CT Scan once a year. He has been on the hold list for Make A Wish Foundation since November and we got a call from them 2 weeks ago saying that he has made it up on the actual list now and we would be getting a call for someone to come to our house and get his wish. He wants to go to Disney World. He has been very upbeat and smiles all the time and never complains about anything.
You will find lots and lots of information here! Hope to read more about your family and your trip plans- everyone here will try to help with any questions you may have! 
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Did he really?!? That is soooo 12 year old boy. Yuck! Talk to ya later! Start a PTR (Pre Trip Report!!!) We want to know all about your planning and how the wish granter visit goes and all. Go back to the first page and look at Maroo's post for the how to lesson, or call me if you need too. lolVery very sad!
