Make a Wish (and other organizations) ~ Wish Trippers UNITE! Volume FIVE!!

[Nevada Jen]

Welcome Victoria! My advice for you is to read the Legoland thread noted above. We have found Legoland to be extremely non disabled friendly and the rides generally not appropriate for anyone other than able bodied normal sized adults. Personally, I wouldn't waste a day of a Wish Trip on it. Congrats on the trip!

 

[nuts4wdw]

It has been a while since I posted we had a bad bout of holiday illness that plagued our whole house along with the Christmas craze! But things are good! I, too, am having a hard time not being able to plan. I am driving myself crazy with where to stay after our wish trip as we are allowed to extend. I would like to make ressies, but.... Anyway, all my boys are getting excited to go and make this a phenomenal trip for Prescott. I am also excited to see that Star Wars weekend coincides with the dates that we gave MAW (hoping we get our requested dates). I am going back and forth on whether we should do universal/IOA for one day or Legoland. We are huge Disney fans, so Universal has never peaked our interest. However, I don't care if I go to a park that has hokey fish, large singing toucans, or dancing pigs, as long as Prescott loves it that is all that matters. LOL So, exciting to see upcoming trips and happy posters. Hugs and prayers to all!

 

[Lilfoot93]

For those of you who have had extra people come with you were they able to stay at GKTW with you in your villa? We would love for my Dad to come with us. He has no problem paying for airfare, tickets and food himself. He has been with us through all of Trev's hospital stays and surgeries. Plus it would be nice to have an extra set of hands too

I am SO excited that we can now pick dates and actually start planning! I tried to start planning earlier but it just seemed so far away and with no SWW dates announced it was hard to plan. Now to figure out what days work without missing Trev's field trips and the girls preschool graduation. School isn't out until the middle of June so no matter when we go Trev will be missing school.

Jackie

 

[angel's momma]

Victoria. Sorry Jack, and your family, has been through so much. Glad he is getting his wish. The meals with Pooh at Crystal Palace are great, I hope it works out for you. Add me to the list of planners. Angel's wish is for a cruise though.

However, I don't care if I go to a park that has hokey fish, large singing toucans, or dancing pigs, as long as Prescott loves it that is all that matters.

 

[Oneplustwins]

Thanks everyone! One other question, everything I have read in books and a lot hear say to get to the parks at opening. We are not an early morning family....and jack fatigues a lot just in general so worried about pushing him. I was thinking maybe when we go to MK get there early, but the others not? How late is breakfast served at GTWT?
Also we are looking at April to go, no official dates yet. We live in MN so be nice to go while still cold hear. Lol! But heard October is less busy. Is this true?
Lastly, sounds like we are better using wheelchairs there then bringing Jack's wheelchair from home?
I am sooooooooo excited! If you can't tell!
Nervous about His health and praying we are all healthy!
Thanks everyone!
Victoria

 

[Cassondra]

We are going to start packing today Only 7 days to go!!!

 

[angel's momma]

I am sooooooooo excited! If you can't tell!
Nervous about His health and praying we are all healthy!

Yay for being so excited. Praying for your family's health, and that you won't be worried.

We are going to start packing today Only 7 days to go!!!

So exciting!

 

[Nevada Jen]

Victoria, I would definately bring his wheelchair from home. The wheelchairs there at Disney are either adult sized or are impossible to push kids wheelchairs. Plus you have to make it to the park entrance without a chair. That is frequently a long walk. You may be able to get MAW to rent you a special needs stroller for your trip if your at home wheelchair is not really meant for all day use.

Cassondra, you are way more ahead of the game than me! We leave in 4 days and I have not even started packing and am still considering making another dress for my DD!

MAW came over with gifts and all our final travel stuff! They brought a backpack for each kid. The one they got for my DD actually hooks to her wheelchair. It is awesome. Because of the shape of her handle, we have never been able to find anything that actually works for this chair. The weather sure looks variable while we will be there. I have the feeling we are going to end up packing for winter and summer!

 

[Lilfoot93]

We are going to start packing today Only 7 days to go!!!

Victoria, I would definately bring his wheelchair from home. The wheelchairs there at Disney are either adult sized or are impossible to push kids wheelchairs. Plus you have to make it to the park entrance without a chair. That is frequently a long walk. You may be able to get MAW to rent you a special needs stroller for your trip if your at home wheelchair is not really meant for all day use.

Cassondra, you are way more ahead of the game than me! We leave in 4 days and I have not even started packing and am still considering making another dress for my DD!

I hope you both have a magical time on your trips! I can't wait to hear all about it when you get back!

 

[Lilfoot93]

So now that dates for SWW have beenn announced it is time to start thinking of some dates we would like to go. We have Allie and Kara's preschool graduation which I do not think we should miss and hubby thinks it would be fine to miss... Then Trev has two field trips in May that he REALLY wants to go to and one that he really should go to as all the 2nd graders go to outdoor school for some team building as some of these kids may be in their class next year.

BUT, if we go the last weekend we could be in Disney World for my birthday!! I kinda like that idea The only bad thing about that is Trev would miss out on the last 3 of 4 days of school. That is always a fun week for them! The 2nd weekend of SWW is out as The girls preschool graduation and Trev's outdoor school fall right in that window. SO many decisions! Is it really that much hotter and rainier the beginning of June than the middle of May?

Jackie

 

[disneymom04]

Good morning all,

I have another question... this time about the disney tickets that GkTW gives.

Here is our situation:

We have leftover days from previous tickets that are not park hoppers. Could we use those tickets and hold on to the ones that GKTW gives us and use those a year of so down the road?

The reason we would want to do this is because we know we will not want to park hop for our Wish Trip. We want to spend most of our time at the GKTW village. And this way, on another trip, we would have the option to park hop.

Does this make sense? Would we be allowed to do this? I'm not trying to cheat... but if I can do this "legally", I will.

Thanks for your replies.

Jean

 

[mspols]

Three days till we leave for GKTW...can not believe it!! Jen I have not even started packing either...trying to figure out the clothes for the weather there....
We still do not even really have a plan just so excited for some down time. We do have a reservation for Boma on Friday night and Ohana on Tuesday . Have not been to either in the past...anyone like/dislike?

 

[Cheshire Figment]

Good morning all,

I have another question... this time about the disney tickets that GkTW gives.

Here is our situation:

We have leftover days from previous tickets that are not park hoppers. Could we use those tickets and hold on to the ones that GKTW gives us and use those a year of so down the road?

The reason we would want to do this is because we know we will not want to park hop for our Wish Trip. We want to spend most of our time at the GKTW village. And this way, on another trip, we would have the option to park hop.

Does this make sense? Would we be allowed to do this? I'm not trying to cheat... but if I can do this "legally", I will.

Thanks for your replies.

Jean

You will need to look at the tickets themselves. They are definitely complimentary tickets which cannot be upgraded or modified in any way.

One potential problem is that many comps have a "not valid after" date on them. I'm not sure if these do, but if they do the date is strictly enforced (by the ticketing computer).

 

[angel's momma]

We leave in 4 days and I have not even started packing and am still considering making another dress for my DD!

MAW came over with gifts and all our final travel stuff! They brought a backpack for each kid. The one they got for my DD actually hooks to her wheelchair. It is awesome. Because of the shape of her handle, we have never been able to find anything that actually works for this chair. The weather sure looks variable while we will be there. I have the feeling we are going to end up packing for winter and summer!

So exciting Wonderful about the weelchair pack. Sorry the weather is so variable - we've gone in Dec., and had a trip that had an overnight low of 35, and 2 days later the daytime temp was in the 80s.

Three days till we leave for GKTW...can not believe it!! Jen I have not even started packing either...trying to figure out the clothes for the weather there....
We still do not even really have a plan just so excited for some down time. We do have a reservation for Boma on Friday night and Ohana on Tuesday . Have not been to either in the past...anyone like/dislike?

Ohana is one of our favorites. For us, Boma is good, but there are many places that we like better.

 

[Kktraylor]

I feel guilty even asking about this since so many of your kids have it so much worse, but does Make a Wish grant for chronically I'll children? My daughter has Familial Mediterranean Fever. It's a rare genetic disorder that causes fevers and inflammation around her joints and organs. She's on medicine which should give her a normal life span, I just hate that she's missed out on a carefree childhood. Even with the medicine she still has frequent fevers, severe stomach pain, and joint pain. Without the medicine it would be life threatening. Has anyone had any experience with this type of situation?

 

[jon03015]

Will be posting an update! We are 19 days away. Planning a surprise send off party the night before. I hope it will be awesome, and people will come. This has been a long time in coming!

[/IMG]
Austin turned 5 yesterday!

Check out our PTR update!

 

[jon03015]

I feel guilty even asking about this since so many of your kids have it so much worse, but does Make a Wish grant for chronically I'll children? My daughter has Familial Mediterranean Fever. It's a rare genetic disorder that causes fevers and inflammation around her joints and organs. She's on medicine which should give her a normal life span, I just hate that she's missed out on a carefree childhood. Even with the medicine she still has frequent fevers, severe stomach pain, and joint pain. Without the medicine it would be life threatening. Has anyone had any experience with this type of situation?

There are many conditions in which a child can receive a wish. Your child has to be nominated/recommended by a social worker/Dr/nurse first then it goes to Make A Wish for approval. After they approve you for a wish you meet with the wish granters and they take it back to MAW to approve the wish.

 

[Cassondra]

I feel guilty even asking about this since so many of your kids have it so much worse, but does Make a Wish grant for chronically I'll children? My daughter has Familial Mediterranean Fever. It's a rare genetic disorder that causes fevers and inflammation around her joints and organs. She's on medicine which should give her a normal life span, I just hate that she's missed out on a carefree childhood. Even with the medicine she still has frequent fevers, severe stomach pain, and joint pain. Without the medicine it would be life threatening. Has anyone had any experience with this type of situation?

They absolutely do! I felt a little weird when I found out that my son had been offered a wish. I thought they were only for terminally ill children, which my son is not. I know it does vary with each situation and is up to the organization to decide what qualifies. In our area for a Make A Wish trip the child must also be referred to our Make A Wish chapter by a healthcare worker (physician, nurse, child life etc.) I hope this helps.

 

[Cassondra]

Three days till we leave for GKTW...can not believe it!! Jen I have not even started packing either...trying to figure out the clothes for the weather there....
We still do not even really have a plan just so excited for some down time. We do have a reservation for Boma on Friday night and Ohana on Tuesday . Have not been to either in the past...anyone like/dislike?

I LOVE Ohana!!! We will be going there on this trip as well.

 

[Cassondra]

Cassondra, you are way more ahead of the game than me! We leave in 4 days and I have not even started packing and am still considering making another dress for my DD!

MAW came over with gifts and all our final travel stuff! They brought a backpack for each kid. The one they got for my DD actually hooks to her wheelchair. It is awesome. Because of the shape of her handle, we have never been able to find anything that actually works for this chair. The weather sure looks variable while we will be there. I have the feeling we are going to end up packing for winter and summer!

Well since I'm going to be gone for 11 days (between our cruise and extra days at disney) my boss decided that I had to work all week. Since I won't have a day off until we leave I thought I'd better start packing. I'm glad we did it took me awhile lol. I too ended up packing for a little bit of everything. Do you have any reservations set up for dinner? Or any plans you have made for the trip? I can't wait to go and leave this cold weather behind!!!