Make a Wish (and other organizations) ~ Wish Trippers UNITE! Volume FIVE!!

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Speaking of power-walking...I just signed up for my very first 5k! It's the 12 annual Cobb County 5K to benefit Make a Wish!:love: I have about 2 months to prepare myself...man, I hope I don't collapse! :faint:
 
Got some great news... our son's "Wisher's" are coming this Sunday evening! We are so excited to meet them. They are a newly married couple, and the wife has been volunteering with MAW for several years, but this will be her husbands first wish-granting experience.

She was so nice on the phone, and said she lives only a few minutes away from us. She asked about what Braden's wish might be, and I mentioned that we were 99% sure he was wishing for Disney. I also briefly mentioned that if he did wish for that we were hoping to go in mid-October during his fall break, so as to avoid him missing any school. She said she wasn't sure how quickly things would happen. Then, after finishing up our call, she called me back a few minutes later and said she spoke to someone at MAW about our possible date request, and was told it was a perfect time now to request October dates, as they have are currently

How exciting :cheer2: I ant wait to hear his official wish! Hoping you get the dates you want!

I just received the call that my wish grantors are coming Tuesday the 14!! This is all happening so fast. My head is spinning. We talked about two possible wishes for Luke, and she is gathering info on both. She is checking out if it is possible to swum with dolphins in Disney. That is his main number one wish. I am so excited to meet the volunteers. They wanted to come this Tuesday, but ds is at camp, so we had to hold them off for a week. Can't wait to find out more details!


Yay! That is so exciting! Can't wait to hear what he wishes for! I know what you mean about it happening so fast. We got a call that Trevor would be granted a wish and two days later we got a call to set up an appt! About a week after the wish grantors came we found out his wish would be coming true! But now we have to wait until May as he wants to go to Star Wars Weekend...


We got a call from Spencer's wish grantors today! They are coming by next Friday night (the 10th) to bring Spencer's trip package by and have him a small send off party! They will be bringing cake and balloons for him! They should also have our expense check and plane tickets. (and other things he said!) I'm pretty excited and I know Spencer will be over the moon! It's getting closer!!

That is so exciting! I can't wait to hear all about it and see pics from his party!

had to tell you all the most amazing thing that happened to me today. About a year ago a new fitness after 50 franchise opened in our neighborhood. always wanted to join but they dont even share the price openly- and you know if you have to ask you probably cant afford it. I had gotten a survey from them a few weeks ago asking if I had considered joining and why not. I said I would love to join but sure I could not afford it. and I told them it would be great if they gave wish families with parents the right age a short membership to go with travel trips. they called me today and said while they cant do big give aways yet, because they are still in the starting up phase they would give me a 3 month free membership with trainer to help me get ready for Mollys trip! I am super excited to have the chance to get in shape before we go. they have all the cool machines for antique joints like I have and assured me it would make a huge difference for me on the trip. What is extra cool about this is wish girl really wanted each of us to have something special and she is thrilled that I get this gym membership as part of her wish. (also helps keep me from having to think of something special for me that she can pull off). Pretty much no one else is excited for me but I knew you guys would be!

:cheer2::cheer2::cheer2:

That is wonderful! I have been thinking I need to get in shape for Trev's trip too... Good thing I have 10 months:rotfl2:


Jackie
 
Hi everyone! I'm happy I just came across this thread! My 6 year old has just been approved for his Wish! We are soooo happy for him! He's been dreaming of going to Disney World since I can remember and now it seems it will become a reality! :) He's a Stage III Hepatoblastoma survivor, after a year of chemo and a full liver transplant, he's cancer free and doing well! Still lots of scans and labs and a few minor bumps in the road, but he's alive and proud to show off his scars at the pool this summer! :) He is immunosuppresed due to his anti-rejection meds, so I'll be armed with sanitizers...but for this week he can hug and touch anything he wants! LOL :goodvibes

Looking forward to getting to know you all and reading all these super wish reports! There's so much to research, I don't know where to begin...LOL
 

Hi everyone! I'm happy I just came across this thread! My 6 year old has just been approved for his Wish! We are soooo happy for him! He's been dreaming of going to Disney World since I can remember and now it seems it will become a reality! :) He's a Stage III Hepatoblastoma survivor, after a year of chemo and a full liver transplant, he's cancer free and doing well! Still lots of scans and labs and a few minor bumps in the road, but he's alive and proud to show off his scars at the pool this summer! :) He is immunosuppresed due to his anti-rejection meds, so I'll be armed with sanitizers...but for this week he can hug and touch anything he wants! LOL :goodvibes

Looking forward to getting to know you all and reading all these super wish reports! There's so much to research, I don't know where to begin...LOL

Welcome! :wave2: Fellow transplant mommy here (kidney). we went to Disney for my son't one year kidney-versary when he was 2.5 years old. We came armed with lysol wipes and hand sanitizer too. We got a lot of "looks" getting on Peter Pan and wiping the boat down - guess they thought we were getting rid of the pixie dust or something.:lmao: But he did great actually...until we headed back home and stopped at a pizza hut. He got food poisoning from eating at the buffet. I know, I know - our transplant coordinator has told us - NO buffets! But I thought, we've just been to Disney - pizza isn't going to hurt him. :rolleyes: Oops - four days of puking later and a week in-patient to get labs back to normal...not doing that again!
I hope y'all enjoy planning your trip! Have you started a PTR yet? Who is he most excited to meet?
 
I haven't posted much on here lately, and quite honestly this board was pretty quiet when I first joined! It is awesome to see so much chatter, and to hear about so many wishes being granted! My daughter, Sarah, will be going on her trip November 18-24. We are all very excited and there is a link to our PTR at the bottom of this post! Good luck and happy planning to all of you yet to travel;)
 
Hi i'm shelby. My mom used to get on here but she died. I wanted to say i'm on the make a wish because I have seizures and I like the make a wish to.

:hug:
So are you a wish child, too?

I am very sorry to hear about your Mom. :hug:

Our wish granters are coming to our house on Aug 18th -:cool1::dance3::cheer2::banana::hyper::jumping1:
Both of our wish granters are guys. I was wondering if anyone had given their wish granters cards or something your children made. They are now going to be part of a very important memory and I just wanted to say thank you to them in some very small way. Cheesy or nice?:confused3

A homemade card would be awesome!! I just love the cards I have gotten over the years from kids - they are the best! :)

Hi Everyone.. been lurking for quite a while and just thought I would post. My little guy is Nate. He is 7 years old, has Down Syndrome, had a tracheostomy for 6 months when he was three, was decannulated and diagnosed with leukemia 1 week later. We are almost done with treatment and will be taking our wish trip next year in May. Our wish granters have been great and encouraged us to think beyond what we would normally ask for... think of a great wish for Nate besides just going to Disney. Nate's verbal skils are remedial and he can't say what he would really want so we are responsible for coming up with that wish. So, we came up with riding on a float with Mickey Mouse at WDW. Just got an email saying that his wish wasn't possible. We thought about asking for Nate to be an animal trainer for the day at Seaworld, but they said that would be a double wish through email. I'm waiting for the wish granter to call me. I'm really confused about all this. Don't get me wrong, I'm not complaining, but our wish granters planted this seed to go "over the top" and everything we come up with is squashed. Any advice?? Thanks to everyone.

Disney is very guarded as far as having wish kids in parades and stuff like that...

Does he have a favorite character that he could meet?
Is there a certain time of year that you guys want to be able to go?

Would he enjoy a big Halloween party? Or meeting a special character?

Honestly - the trip - staying at GKTW and going to the parks - really is such a magical experience!!! :) Something you can not get any other way.

We didn't do anything over the top for my daughter's wish trip, and it still was amazingly over the top. It is such much more than just going to Disney World! I hope they can work something out for you guys!

I have been posting detailed updates on my blog about our recent wish trip. The link is in my signature.

Also, we just came back, so anyone who has questions I will be happy to answer!

This is so true!!!


Hello everyone! I have a rather weird question/ request for those that have been to Disney or are on their way... We are wanting to dress up for the MNSSHP and does anyone know if you can purchase the goofy hat with ears at the Parks and about how much they cost? I need them for my husbands costume because I am really not feeling up to trying to make a hat on top of sewing everything else :) Thanks to anyone who may know.

You CAN purchase a goofy hat! :) I still have mine from one of my trips. I ended up buying a Goofy shirt and hat and calling that my costume for one of my trips! :)

Got some great news... our son's "Wisher's" are coming this Sunday evening! We are so excited to meet them. They are a newly married couple, and the wife has been volunteering with MAW for several years, but this will be her husbands first wish-granting experience.

She was so nice on the phone, and said she lives only a few minutes away from us. She asked about what Braden's wish might be, and I mentioned that we were 99% sure he was wishing for Disney. I also briefly mentioned that if he did wish for that we were hoping to go in mid-October during his fall break, so as to avoid him missing any school. She said she wasn't sure how quickly things would happen. Then, after finishing up our call, she called me back a few minutes later and said she spoke to someone at MAW about our possible date request, and was told it was a perfect time now to request October dates, as they have are currently scheduling September dates!

In keeping with some of the recent above posts, we have been talking with Braden about his wish. He has asked lots of questions about Disney, and one of the things we told him about was MNSSHP. When we were talking about that, he asked if he could go trick or treating at Disney with Jake the pirate! We told him if that's what he wanted to do, that he could wish for that, and we'll see what happens! He put it together in his head, and came up with it on his own after talking about all the things he can do... so I think some kids will come up with that extra bit of wish-specificity (new word?) on their own!

Now, only a few more days of Braden asking "Are my wisher's coming today??? " :rotfl2:

This is so cool!! I love this process!!! :)

I just received the call that my wish grantors are coming Tuesday the 14!! This is all happening so fast. My head is spinning. We talked about two possible wishes for Luke, and she is gathering info on both. She is checking out if it is possible to swum with dolphins in Disney. That is his main number one wish. I am so excited to meet the volunteers. They wanted to come this Tuesday, but ds is at camp, so we had to hold them off for a week. Can't wait to find out more details!

That is so awesome!!!! :) I can't wait to see what he wishes for!
 
Hi everyone! I'm happy I just came across this thread! My 6 year old has just been approved for his Wish! We are soooo happy for him! He's been dreaming of going to Disney World since I can remember and now it seems it will become a reality! :) He's a Stage III Hepatoblastoma survivor, after a year of chemo and a full liver transplant, he's cancer free and doing well! Still lots of scans and labs and a few minor bumps in the road, but he's alive and proud to show off his scars at the pool this summer! :) He is immunosuppresed due to his anti-rejection meds, so I'll be armed with sanitizers...but for this week he can hug and touch anything he wants! LOL :goodvibes

Looking forward to getting to know you all and reading all these super wish reports! There's so much to research, I don't know where to begin...LOL

Welcome! Can't wait to hear what his wish is!

Jackie
 
Welcome! :wave2: Fellow transplant mommy here (kidney). we went to Disney for my son't one year kidney-versary when he was 2.5 years old. We came armed with lysol wipes and hand sanitizer too. We got a lot of "looks" getting on Peter Pan and wiping the boat down - guess they thought we were getting rid of the pixie dust or something.:lmao: But he did great actually...until we headed back home and stopped at a pizza hut. He got food poisoning from eating at the buffet. I know, I know - our transplant coordinator has told us - NO buffets! But I thought, we've just been to Disney - pizza isn't going to hurt him. :rolleyes: Oops - four days of puking later and a week in-patient to get labs back to normal...not doing that again!
I hope y'all enjoy planning your trip! Have you started a PTR yet? Who is he most excited to meet?

Hi Karen!!! Great to meet another transplant mommy! :goodvibes Congrats on 1 year! Ugh that just figures about Pizza Hut! LOL I'm glad to hear he didn't get sick at Disney! I figure it's better to carry wipes around and get "the stares" than to wrap him up in a giant bubble up there...:rotfl2: The coordinator that called to tell us about the approval said it may take a few weeks to get someone out here to meet with him but would be sending us a packet soon and to be patient! hehe we are so excited! He really loves Buzz Lightyear, so maybe somethingto do with him. :) Oooh no I'm gonna start a PTR this weekend! Might as well! I love planning and making lists, I'm a list freak! haha!

I haven't posted much on here lately, and quite honestly this board was pretty quiet when I first joined! It is awesome to see so much chatter, and to hear about so many wishes being granted! My daughter, Sarah, will be going on her trip November 18-24. We are all very excited and there is a link to our PTR at the bottom of this post! Good luck and happy planning to all of you yet to travel;)

Hi Kylee! How exciting Sarah's trip will be here before you know it! November sounds like a wonderful time to go! I have twins too, boys! :) Looking forward to reading your info! :)

Welcome! Can't wait to hear what his wish is!

Jackie

Thank you so very much! How fun your son did a Star Wars Wish!!! I'm gonna go read all about it, so fun!!! My son Brandons set on Disney, when I ask him about the characters he might want to meet etc, he says he's thinking about it but has always loved Buzz Lightyear or the Power Rangers. We'll see! I think we'll have a few weeks before his big wish reveal. :)

Thanks again ya'll! :)
 
Thank you so very much! How fun your son did a Star Wars Wish!!! I'm gonna go read all about it, so fun!!! My son Brandons set on Disney, when I ask him about the characters he might want to meet etc, he says he's thinking about it but has always loved Buzz Lightyear or the Power Rangers. We'll see! I think we'll have a few weeks before his big wish reveal. :)

Thanks again ya'll! :)[/QUOTE]

We haven't done Star Wars yet :) It will be sometime next May during Star Wars Weekend. So we have a long wait! I see you have twin boys. I have twin girls :) Buzz Light year sounds like fun! That was a favorite of Trevor's until he discovered Star Wars!

Jackie
 
Hi Karen!!! Great to meet another transplant mommy! :goodvibes Congrats on 1 year! Ugh that just figures about Pizza Hut! LOL I'm glad to hear he didn't get sick at Disney! I figure it's better to carry wipes around and get "the stares" than to wrap him up in a giant bubble up there...:rotfl2: The coordinator that called to tell us about the approval said it may take a few weeks to get someone out here to meet with him but would be sending us a packet soon and to be patient! hehe we are so excited! He really loves Buzz Lightyear, so maybe somethingto do with him. :) Oooh no I'm gonna start a PTR this weekend! Might as well! I love planning and making lists, I'm a list freak! haha!

You kind of HAVE to be a list freak to deal with all the meds and time schedules that come with transplant!:upsidedow I remember leaving the hospital and they gave me a notebook to keep up with how much fluid was going in, to weight how much was coming out, times of rejection meds, bp readings and calorie counts - to be so overwhelmed...I was in "anal retentive" heaven!:lmao:
let us know when you get that report started so we can subscribe!

And Lilfoot93 - Star Wars just plan and simple rules! I loved when my oldest son turned 5 and we were able to show him the original Star Wars - I loved watching his face more than the movie!:)
 
Did Make A Wish pay for any of your meals? We are trying to plan on how much money to bring with us.
Thank you,
Elisha Conway
 
You kind of HAVE to be a list freak to deal with all the meds and time schedules that come with transplant!:upsidedow I remember leaving the hospital and they gave me a notebook to keep up with how much fluid was going in, to weight how much was coming out, times of rejection meds, bp readings and calorie counts - to be so overwhelmed...I was in "anal retentive" heaven!:lmao:
let us know when you get that report started so we can subscribe!

Oh yea! We got one of those notebooks too, we should get honorary nurse licences I think..haha! I started making spreadsheets soon after, full color ones too! :rotfl: I like your avatar by the way, do you guys have kidney pillows? LOL We have a liver pillow, and uh, liver stuffed animal thing. :P Thanks! I'm gonna get started on that soon!! :)

We haven't done Star Wars yet :) It will be sometime next May during Star Wars Weekend. So we have a long wait! I see you have twin boys. I have twin girls :) Buzz Light year sounds like fun! That was a favorite of Trevor's until he discovered Star Wars!



Jackie[/QUOTE]

OH! *bonks head* I just read and caught up with your thread! How COOL! What a fun wish!!! Your girls are adorable!!! Having twins is fun huh! :) lol
 
Did Make A Wish pay for any of your meals? We are trying to plan on how much money to bring with us.
Thank you,
Elisha Conway
Your wish granters will be able to fill you in on the details for your specific chapter, but on the Disney wishes I've done, MaW has covered:
Lunch and dinner for each person each day (breakfast is free at GKTW)
Spending money for the wish kid and siblings under 18
Money to check one bag per person if your airline charges for such things
Money for tolls
Money for gas for the rental car

Again, I don't know the details of your chapter, so I can't say what it will be for you in particular. But e-mail or call your wish granters - they will be able to explain exactly what they cover.
 
Your wish granters will be able to fill you in on the details for your specific chapter, but on the Disney wishes I've done, MaW has covered:
Lunch and dinner for each person each day (breakfast is free at GKTW)
Spending money for the wish kid and siblings under 18
Money to check one bag per person if your airline charges for such things
Money for tolls
Money for gas for the rental car

Again, I don't know the details of your chapter, so I can't say what it will be for you in particular. But e-mail or call your wish granters - they will be able to explain exactly what they cover.

This is exactly what was covered for us as well.
 
Oh yea! We got one of those notebooks too, we should get honorary nurse licences I think..haha! I started making spreadsheets soon after, full color ones too! :rotfl: I like your avatar by the way, do you guys have kidney pillows? LOL We have a liver pillow, and uh, liver stuffed animal thing. :P Thanks! I'm gonna get started on that soon!! :)

l

You and I would get along JUST fine! :thumbsup2 No, no kidney pillows - but I have seen them. We gave a "urine our heart" Valentine to our urologist when Matthew had surgery on Valentine's day this year. :rotfl2: I crack myself up sometimes...unfortunately most people don't get my humor! :rolleyes: And we give our donor, my aunt's best friend, a box of chocolate kidneys for the kidney-versary each year. :)
 
You and I would get along JUST fine! :thumbsup2 No, no kidney pillows - but I have seen them. We gave a "urine our heart" Valentine to our urologist when Matthew had surgery on Valentine's day this year. :rotfl2: I crack myself up sometimes...unfortunately most people don't get my humor! :rolleyes: And we give our donor, my aunt's best friend, a box of chocolate kidneys for the kidney-versary each year. :)

:lmao: haha! I love it! I have the same humor for sure, I made liver shaped cookies for his liverversary last year. :rotfl: How wonderful your aunts best friend was the donor!! What a special woman she must be in your lives, that's so cool! Our donor family wishes to remain anonymous :guilty: I'm sure it was a difficult day/decision for them, as it was a 5 year old girl. I have written them a letter and sent a picture of the garden we made in her honor in our yard, I hope one day they will want to communicate but I understand if not.

I stayed up late looking at all the menus...LOL I'm gonna have to wear some velcro granny pants for this trip! :rotfl:
 
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