Make a Wish (and other organizations!) - Wish Trippers...UNITE!! Volume 2!

[WishMom09]

Hey guys! We are new MAWers! My son Caleb just found out he was chosen for a wish! He wants to go to Disney World! SO I have been reading all of your wonderful trip reports and info! I am so excited! We are hoping to go in May! (before it gets too hot or crowded!)

 

[maroo]

Hey guys! We are new MAWers! My son Caleb just found out he was chosen for a wish! He wants to go to Disney World! SO I have been reading all of your wonderful trip reports and info! I am so excited! We are hoping to go in May! (before it gets too hot or crowded!)

Welcome to the Wish Trippers Thread!

We are glad you found us over here!

Caleb is going to have a fantastic time!

I love the term MAWer! We might have to use that around here.

 

[Khalana]

Yay!! That is awesome!! Feel free to jump on in and ask questions and share your story. We would love to hear more about your journey to this point. When you have your dates you should start a Pre-Trip Report.

 

[Khalana]

We just bought tickets for Disney on Ice 100 Years of Magic and we're soooooo excited!!!!!
I just can't wait to get another dose of Disney magic!!!!

 

[dmbfan]

We just bought tickets for Disney on Ice 100 Years of Magic and we're soooooo excited!!!!!
I just can't wait to get another dose of Disney magic!!!!

Oh we saw that one, and Jake loved it. Tomorrow night we are going to the "World of Fantasty" Disney on Ice and Jake wants to wear his Mickey outfit...think he will be too cold...

You will love it, I cried during that one and will be crying tomorrow night too, more so during the songs...I am a big sap when it comes to the Disney music...

 

[dmbfan]

Hey guys! We are new MAWers! My son Caleb just found out he was chosen for a wish! He wants to go to Disney World! SO I have been reading all of your wonderful trip reports and info! I am so excited! We are hoping to go in May! (before it gets too hot or crowded!)

YEAH.... Wonderful news, can not wait to hear all about your family and Caleb....

 

[chcmama]

Hey guys! We are new MAWers! My son Caleb just found out he was chosen for a wish! He wants to go to Disney World! SO I have been reading all of your wonderful trip reports and info! I am so excited! We are hoping to go in May! (before it gets too hot or crowded!)

Congrats!! May is a great time, we went the last week of Aprl,first week of May it is was a great time to go. Not too crowded, not too hot. It was wonderful, I hope you can get the dates you want.

 

[WishMom09]

I just made that MAWers up...thought it was pretty clever!

Do you get to choose your dates when the wish granter comes to visit? Or do they pick your dates?

A little about Caleb (shortish version)...he was born with bilateral hip displasia and low muscle tone. His ped. just kept telling us "that is just the way Caleb is"...no diagnosis. Well we switched peds last year (age 7) and she doesn't buy the "that's just the way Caleb is"..so she sends us to Children's to a new neurologist.
And after many tests and a muscle biopsy....Caleb has muscular dystrophy!
They didn't get enough muscle to determine the type (there are 43 different types of MD) SO we are going to have to do another Muscle biopsy to determine they type.
We are hoping and praying for a non-progressive or slow progressive form!
He has the best attitude and such a brave boy! He is truly a blessing from God!

I am looking forward to getting to know you all more as we plan our trip!!

 

[maroo]

I just made that MAWers up...thought it was pretty clever!

Do you get to choose your dates when the wish granter comes to visit? Or do they pick your dates?

A little about Caleb (shortish version)...he was born with bilateral hip displasia and low muscle tone. His ped. just kept telling us "that is just the way Caleb is"...no diagnosis. Well we switched peds last year (age 7) and she doesn't buy the "that's just the way Caleb is"..so she sends us to Children's to a new neurologist.
And after many tests and a muscle biopsy....Caleb has muscular dystrophy!
They didn't get enough muscle to determine the type (there are 43 different types of MD) SO we are going to have to do another Muscle biopsy to determine they type.
We are hoping and praying for a non-progressive or slow progressive form!
He has the best attitude and such a brave boy! He is truly a blessing from God!

I am looking forward to getting to know you all more as we plan our trip!!

Aw...bless your heart! How frustrating! I am glad that they figured it out, though. And hope you get even more answers soon!

Most MAWers get to pick their dates. Or maybe choose a few sets and then let the MAW chapter pick for you. Lauren was not able to, because they assigned her to the Wish Flight (once a year thing with American Airlines) but we didn't end up getting to participate in Wish Flight, but our dates had to stay. Which turned out great for us!!!

You guys will all have a blast!

If you want, you can check the "crowd calendar" and see which dates are the busiest and try to sort of plan around it, if they are all ok to get out of school.

The way Caleb was diagnosed reminds me of the way Lauren's friend was diagnosed with MD. She was 7, too, when they figured it out! She was just stumbling and such and they finally figured it out.

I am so glad that you guys are going to DISNEY!!!! Or that he wants to...but usually they can grant that wish!!

I am glad you found us!

 

[macntosh]

Hey guys! We are new MAWers! My son Caleb just found out he was chosen for a wish! He wants to go to Disney World! SO I have been reading all of your wonderful trip reports and info! I am so excited! We are hoping to go in May! (before it gets too hot or crowded!)

Seeing your address, I'm assuming your going through the North Texas Chapter. A few of us here went through that exact chapter and can share with you how they do things locally. Welcome to our club!

 

[WishMom09]

macntosh, We are actually going through the North Texas branch in Tyler.
I would love to hear how things are done though! Any info you can give I would love to have!!
Thanks!

 

[WishMom09]

Maroo,
Which type of MD does Lauren's friend have...do you know?
I read somewhere you said she is now in a wheel chair. What age did that happen to her?

 

[maroo]

Maroo,
Which type of MD does Lauren's friend have...do you know?
I read somewhere you said she is now in a wheel chair. What age did that happen to her?

Her best friend, Mary Claire, has MD. I am not sure what kind, but I do know that it is very progressive. She was diagnosed at 7 and is in a wheelchair full time now (she is 15). I think her life expectancy is lower 20's...for her particular type of MD. Very progressive type.

I know 2 brothers with MD and they are both in wheelchairs full time now, but they are college age. One of those brothers just got his Masters Degree in Computer Science and the other is about to graduate from College and will get his Masters online. They are doing VERY well!!

When we went to MD camp this last summer, to recruit for a wheelchair soccer team, they had children with all types of MD...some were walking without any assistance and a few were on ventilators...so I know it varies greatly.

I think you guys will probably know a lot more once you get that muscle biopsy back.

I am sorry that you are going through all of that! I can't imagine how frustrating it is to be told that nothing was wrong and then get a major diagnosis.

 

[ndloewen]

Just wanted to let you all know that Noah is finally home!!! I've updated on his pre-trip report. Can't believe we leave in less than 10 days!!

 

[Soon2B4]

Hello all!

I am new here and thought I would just say hi. I have sent in my paper work to my MAW and am just waiting response. I didn't even know I qualified until my sons oncologist told us to get in touch with them. Aidan was born with neuroblastoma cancer in his right lung cavity, but it wasn't found until he was 5 months old at stage 4. Short version-One night he stopped breathing and they did x-rays. They kept us over night and told us he more than likely aspirated. They sent us home and called later that day to tell us he needed a CT, that someone at the local children's hospital read his films and felt there was more there. So we took him and no sooner did we get home, they called and told us to get to the hospital right away that they were waiting for us. So 4 rounds of chemo, 3 surgeries later, we now have what seems to be a healthy 2 1/2 year old. He is currently in a watch and make sure state with scans and urine tests. We are just waiting an a urine sample to come back, having the last one about 2 months ago come back elevated. (Neuroblastoma increases something in your urine when it is present.) I am hoping for the best!

I can't imagine MAW saying no, but I am not really that familiar with the whole process. If anyone has any experience with the Ohio chapter, I would appreciate hearing your experience!

Also, how long from the time you are approved do you generally go to Disney. We are currently planning our own trip in November.

 

[keetmommy]

We applied right after Christmas, our wish granters came on Wed, we are hoping to go in June as soon as the kids are out of school...we are just waiting on clearance from our doctor to travel....then they can book it...

 

[maroo]

Guess what!!


I am going to Disney!!


THIS WEEKEND!!

Check this out:

Mary's Crazy Last Minute Trip to the World!

My dates...Thursday, Feb 19 and going home Monday, Feb 23!!

And I am pretty sure that it overlaps with some of you guys!

 

[dmbfan]

Guess what!!


I am going to Disney!!


THIS WEEKEND!!

Check this out:

Mary's Crazy Last Minute Trip to the World!

My dates...Thursday, Feb 19 and going home Monday, Feb 23!!

And I am pretty sure that it overlaps with some of you guys!

I just read the thread... AWESOME!!! I also replied to it as well....

 

[dmbfan]

I just posted some pictures of Jake when we went to Disney on Ice Friday night on his pre trip thread in case anyone wanted to see them....

http://www.disboards.com/showthread.php?p=30306301&posted=1#post30306301

 

[maroo]

We applied right after Christmas, our wish granters came on Wed, we are hoping to go in June as soon as the kids are out of school...we are just waiting on clearance from our doctor to travel....then they can book it...

You guys are going to have a GREAT time!!!!!

I just posted some pictures of Jake when we went to Disney on Ice Friday night on his pre trip thread in case anyone wanted to see them....

http://www.disboards.com/showthread.php?p=30306301&posted=1#post30306301

Cool...


*runs to go look*