starienite
Mouseketeer
- Joined
- May 25, 2011
- Messages
- 181
As I have posted previsously my son is getting a wish trip due to his AVM.
The American Stroke Assocation has an excellent resource that defines it and apparently I need to post 8 more times to post it properly.
Devon's was diagnosed by a bleed in his brain. On January 1st of this year around 3 in the morning my dh couldn't wake him up and he was rigidly posturing. He was taken to er and then life flighted to a childrens hospital. He was in a medically induced coma for 12 days while a drain was placed to remove the blood and relieve pressure in his brain. People thought that he wasn't going to make it. He was transferred to a different hospital 8 days later and had brain surgery to remove part of the AVM, the worst bit.
They weren't able to get it all so in March he had a treatment called Gamma Knife which is a radiation treatment that delivers precise delivery of radiation to the avm without damaging healthy brain tissue. That treatment could take a few years to see if it worked.
He miraculously has few impairments from his bleed. Some issues with impulsiveness and paying attention and he can't wiggle his left toes without moving his whole foot.
An another messageboard I am a part of informed he may qualify for MAW so I applied for it and we were informed around the end of March/start of April that he was in, just waiting to meet with the wish grantors.
The American Stroke Assocation has an excellent resource that defines it and apparently I need to post 8 more times to post it properly.
Devon's was diagnosed by a bleed in his brain. On January 1st of this year around 3 in the morning my dh couldn't wake him up and he was rigidly posturing. He was taken to er and then life flighted to a childrens hospital. He was in a medically induced coma for 12 days while a drain was placed to remove the blood and relieve pressure in his brain. People thought that he wasn't going to make it. He was transferred to a different hospital 8 days later and had brain surgery to remove part of the AVM, the worst bit.
They weren't able to get it all so in March he had a treatment called Gamma Knife which is a radiation treatment that delivers precise delivery of radiation to the avm without damaging healthy brain tissue. That treatment could take a few years to see if it worked.
He miraculously has few impairments from his bleed. Some issues with impulsiveness and paying attention and he can't wiggle his left toes without moving his whole foot.
An another messageboard I am a part of informed he may qualify for MAW so I applied for it and we were informed around the end of March/start of April that he was in, just waiting to meet with the wish grantors.