Have you done Hyperbairc Therapy? **!!UPDATE!!**

[cancer_survivor_06]

The title says it all but I am just curious if anyone heres has done it and if so can you share your personal expierence/thoughts about w/ me. If you have not done but have looked into it and are considering this please share your thoughts as well.

To give you a little info my dd4 Lily who will be 5 on the 21st is currently doing PT, OT and speech we also do intense PT sessions every three to four months, we do stretch and speech at home and use her stander a good bit as well, and occasionally she does suit therapy. The day she was born her blood sugar dropped to 7 and from that day til she was just shy of turning 1 was a constent search to find out what happened and what was wrong at which point she was diagnosed w/ Septo Optic Dysplasia.

Any thoughts would be greatly appreciated she has been doing well but lately seems to be slacking off which she does but this time seems more significant than usual so I thought something new for her would maybe be and encouraging change. I have just started my research for this so if you have any helpful websites please let me know.

thanks mandy

 

[1stluvispooh]

My DD is autistic and her bio medical Dr. has suggested it as well. We have not done it yet because of price and I would have to take her 1.5 away to have it done. This doesn't mean that we won't be doing it eventually but as of now since it is not covered my insurance we won't.

 

[cancer_survivor_06]

If you don't mind me asking where is the center/location that is closest you right now I know the closest to me is about 4hrs away in Birmingham. The other two places I have looked at one is in PA the www.jennyrosecenter.com and the other is www.abilitycamp.com I am not sure where this is located but they are both much further away. I just mentioned it to my dh this past wed before he left for work, he works offshore so he is gone for two weeks which helps I actually haven't checked w/ my insurance yet or do none of the companies cover it period.

 

[LauraVV]

My DD is autistic and her bio medical Dr. has suggested it as well. We have not done it yet because of price and I would have to take her 1.5 away to have it done. This doesn't mean that we won't be doing it eventually but as of now since it is not covered my insurance we won't.

We wouldn't do hyperbaric treatment as we are thought to have mitochondrial disease. For those with autism, especially, I would be very cautious as it appears that mitochondrial disease is not that unusual with autism. Some kids with mito have had developmental regression with hyperbaric oxygen.

www.umdf.org

 

[1stluvispooh]

If you don't mind me asking where is the center/location that is closest you right now I know the closest to me is about 4hrs away in Birmingham. The other two places I have looked at one is in PA the www.jennyrosecenter.com and the other is www.abilitycamp.com I am not sure where this is located but they are both much further away. I just mentioned it to my dh this past wed before he left for work, he works offshore so he is gone for two weeks which helps I actually haven't checked w/ my insurance yet or do none of the companies cover it period.

My DD's DAN Doctor has a chamber in his office, actually both of his offices. His closest office is in Columbus, OH I am in Dayton. It's not that bad of a drive and I do have a sister in law who lives in the area. As far as insurance goes, I don't know. Most insurances do not recognize any biomedical treatments for autistic children so they don't pay for it. Since we still have to do the blood work he recommended, yet another thing insurance won't pay for because it goes to a lab that "isn't in the network" doing the hyperbaric chamber is way off if we ever do do it.

 

[cancer_survivor_06]

OMG, I am so happy I am crying right now. I am on the phone w/ insurance company and they just let me know that they will cover 90 % of it which is my normal coverage so that leaves me w/ my 350deductible which has been met for this year and 10 % out of pocket.

 

[Momelie]

Hooray for y'all!!!! That's fantastic news!

I honestly think its the first time I've heard positive news about insurance and a non-standard treatment. Congratulations!

 

[cancer_survivor_06]

I have to admit that our insurance is awesome and I have told my dh that he can never leave the company he works for b/c our coverage is fabulous especially since it is BCBS. We have had them before and the coverage was like 80/20 plus. I have to admit I kind of had a feeling they would pay for it especially since they pretty much covered all of my medical during my chemo radiation and stem cell transplant. We have ppo and it makes thing so easy we don't need referrals for the specailists we see which makes the process so much faster and to top it all off I found a clinic close to home it is just outside of new orleans on the westbank where I grew up and the doctor who does it is in my network.

Talk about doing the banana dance!

For anyone who would like to see an interesting video the website for the clinic that we will be going to it is www.harchhyperbarics.com