GRAND OPENING - GRAND CLOSING (Florida)

[DGsAtBLT]

Thread from a woman in her early 30s - you don't want this thing.

I just crossed the 4 month mark of being sick w' COVID19. I am young, & I was healthy. Dying is not the only thing to worry about. I still have a near-daily fever, loss of cognitive function, essential tremors, GI issues, severe headaches, heartrate of 150+, viral arthritis, heart palpitations, muscle aches, a feeling like my body has forgotten to breathe. Over the past 124 days I've lost all feeling in my arms & hands, had extreme back/kidney/rib pain, phantom smells (like someone BBQing bad meat), tinnitus, difficulty understanding text/reading, difficulty following conversations, sensitivity to noise & light, nonstop bruising. *Thinking* can cause headaches now. I'm not alone in the cognitive issues; it's as common a symptom as cough. No one knows when #longcovid patients aren't contagious; many are alone for months.

This is what worries me most, not dying. The focus on the dead and the hospitalized misses the bigger and scarier issue, IMO. I am hugely skeptical of the “recovered” numbers and what they really mean.

 

[TLSnell1981]

Florida's testing is such a disaster, honestly. It's no wonder the virus is running rampant.

My parents are in their early 70s. They live in a retirement community near Kissimmee. My dad got tested 14 days ago. He STILL has not received his test results.

Here is his timeline of "illness":

July 8: symptoms began. Fever, chills, lethargy, headache, body aches

July 11: last day of symptoms

July 13: COVID test done

July 14: he had to take my mom to the hospital for an angiogram (mom had been tested a week prior to the procedure, but BEFORE my dad started showing symptoms....got her negative result AT the procedure). My dad stayed in the car.

July 16: my dad went in for a scheduled CT. He had called the center the day he took the Covid test to ask if he should reschedule. They told him "as long as you aren't having symptoms the day of, you are good to come in." (Excuse me, but WHAT???)

July 22: new onset wheeezing

July 27: still no test results

In the meantime, my parents have been out to eat breakfast at a restaurant (the morning of my moms procedure), he had been out shopping at Costco and Publix WITH SYMPTOMS (don't even get me started on that...I yelled at him for being so irresponsible, but he is VERY stubborn), and who knows where else he went without telling me.

This is a major problem that test results are taking so long to come back. Florida is FULL of stubborn elderly people who just WILL NOT stay home if they feel sick. When I expressed outrage at the fact that my parents went out to eat when they both should have been staying home, they said "well, what are we supposed to do, just stay in the house forever?" Ugh.

And WHY are medical offices allowing probable positive people (and those who live in their houses) in for non emergent medical procedures? What the heck?

So, the lesson here is, Florida is the worst.

Is there a number to call if you haven't received notice of your test results?

 

[TLSnell1981]

Disney has pushed back dates on opening some resorts.

• October 4: Disney’s Polynesian Village Resort (was Aug. 12)
• November 1: Disney’s Art of Animation Resort (was Aug. 12)
• Open Date Removed: Disney’s Beach Club Resort & Disney’s Boardwalk Resort (both were Oct. 1)

I'm not sure why Disney didn't anticipate that opening during a raging pandemic might cause people to think twice about coming.

I think they are still available for DVC members.

The heat and mask requirements are also a factor.

 

[Farro]

This is what worries me most, not dying. The focus on the dead and the hospitalized misses the bigger and scarier issue, IMO. I am hugely skeptical of the “recovered” numbers and what they really mean.

I'm not being sarcastic, really, but I thought hospitalizations and deaths were the numbers everyone wanted everyone to be focused on all along?

 

[roomthreeseventeen]

I'm not being sarcastic, really, but I thought hospitalizations and deaths were the numbers everyone wanted everyone to be focused on all along?

That was the case in March.

 

[dlavender]

I'm not being sarcastic, really, but I thought hospitalizations and deaths were the numbers everyone wanted everyone to be focused on all along?

Still should be the focus.

But, with this being a novel virus and all, we didn't know what we didn't know.

I'm hoping the long term effects are not proven to be widespread. But as we find out more, it's prudent to look at the new info.

 

[Farro]

Still should be the focus.

But, with this being a novel virus and all, we didn't know what we didn't know.

I'm hoping the long term effects are not proven to be widespread. But as we find out more, it's prudent to look at the new info.

Thanks!

I've read a few news stories about some long term effects, but then of course I've heard both through people I know personally and people that know others personally who had it that recovered just fine.

Time will tell, hopefully most make full recoveries.

 

[roomthreeseventeen]

Still should be the focus.

But, with this being a novel virus and all, we didn't know what we didn't know.

I'm hoping the long term effects are not proven to be widespread. But as we find out more, it's prudent to look at the new info.

Of 100 patients and an average age of 49 — “78 patients showed structural changes to their hearts, 76 had evidence of a biomarker signaling cardiac injury typically found after a heart attack, and 60 had signs of inflammation.

 

[DGsAtBLT]

I'm not being sarcastic, really, but I thought hospitalizations and deaths were the numbers everyone wanted everyone to be focused on all along?

It tells us how much the system can handle sure and is important in terms of not overwhelming hospitals, but there are so many people who look at a death rate and see a low number (don’t even start me on how it’s not really that low), and look at the likelihood of being hospitalized, and then decide COVID is not a big deal and they’ll engage in high risk behaviours because most people recover at home from a “mild” version or are asymptomatic.

I think it’s really important for people to understand what riding this out at home can really look like.

 

[dlavender]

Of 100 patients and an average age of 49 — “78 patients showed structural changes to their hearts, 76 had evidence of a biomarker signaling cardiac injury typically found after a heart attack, and 60 had signs of inflammation.

Well, that's not comforting.

This is a big issue that isn't really brought up too much yet.

I'm waiting on more studies to be done, but I know enough to know that I don't want Covid and I have to do everything I can to stay safe.

 

[RamblingMad]

Well, that's not comforting.

This is a big issue that isn't really brought up too much yet.

I'm waiting on more studies to be done, but I know enough to know that I don't want Covid and I have to do everything I can to stay safe.

There is a lot of focus on death rate, not on the complications of having COVID and what happens afterwards.

 

[Jrb1979]

Just to add on for those saying you can't get to young people. This is what our Premier wants done here after a bunch of parties happened with over 200 people attending.

He wants enforcement to come down hard on them. The home owner should be fined $100,000 and anyone at the party should be fined $800. I fully expect the next time it happens that will be done.

 

[sam_gordon]

Of 100 patients and an average age of 49 — “78 patients showed structural changes to their hearts, 76 had evidence of a biomarker signaling cardiac injury typically found after a heart attack, and 60 had signs of inflammation.

First, Twitter should not be "fact source" IMO (other than to say "so and so tweeted this"). So I did your work for you. I went to the article linked in the tweet.
https://www.statnews.com/2020/07/27/covid19-concerns-about-lasting-heart-damage/

One study examined the cardiac MRIs of 100 people who had recovered from Covid-19 and compared them to heart images from 100 people who were similar but not infected with the virus. Their average age was 49 and two-thirds of the patients had recovered at home. More than two months later, infected patients were more likely to have troubling cardiac signs than people in the control group: 78 patients showed structural changes to their hearts, 76 had evidence of a biomarker signaling cardiac injury typically found after a heart attack, and 60 had signs of inflammation.

Now, I did not go to the study. But, one question (and it may be mentioned in the study), of the 100 C19 survivors, how many had cardiac issues before C19. And no, I'm not saying they all did, but wouldn't that be a good thing to note when you say 'x amount' had this issue after?

 

[Southernmiss]

NPR has a report and interview today with a Dr in Houston who was talking about the long term effects that he is seeing. People are showing Guillain Barre syndrome and are unable to walk and have lost muscle function.

I have heard about patients spending time in rehab. I thought it was more about the respiratory issues. But hearing that they have to be taught to use and regain strength in their muscles again explains why rehab can be needed.

I don't see a link to the NPR story, yet, but there are some about Guillain Barre and Covid https://www.nejm.org/doi/full/10.1056/NEJMc2009191

https://www.webmd.com/lung/news/20200625/us-guillain-barre-case-linked-to-covid-19
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7239011/
https://nn.neurology.org/content/7/5/e781 Conclusions Emerging data indicate that COVID-19 can trigger not only GBS but other autoimmune neurological diseases necessitating vigilance for early diagnosis and therapy initiation. Although COVID-19 infection, like most other viruses, can potentially worsen patients with pre-existing autoimmunity, there is no evidence that patients with autoimmune neurological diseases stable on common immunotherapies are facing increased risks of infection.

https://theconversation.com/rare-ne...lain-barre-syndrome-linked-to-covid-19-141511

 

[roomthreeseventeen]

Broward County sent a memo to teachers that they cannot discuss their COVID status with other teachers or on social media.

 

[KBoopaloo]

Is there a number to call if you haven't received notice of your test results?

I saw a tweet yesterday from a woman who said she was finally able to track down the results for one of her elderly parents by calling all of the labs processing tests in Florida. She made 3 or 4 calls before she got the correct lab so it seems there is no central number to call.

 

[KBoopaloo]

Here in Boston the big story is that our best starting pitcher who had COVID back before the season started had to be shut down this week because of inflammation around his heart. He is 27 and an athlete. This stuff is no joke even for the young and healthy. Yes there are many, many mild cases but there is a whole gray area between those mild cases and deaths and that is the area that makes me the most nervous.

https://www.espn.com/mlb/story/_/id/29542729/red-sox-eduardo-rodriguez-awaits-heart-test-results

 

[Pyotr]

There are two labs in my county that give results within 30 minutes. There is a catch, these tests are $100 and they test for both current infections and the antibodies. If you want the free test, you just go to a state collections site (UTC Mall) and be prepared to wait 5 days for the results.

If I start feeling symptoms, I’m paying the $100.

In some good news, in my county we are seeing the new infections and hospital admissions leveling off a bit. Let’s hope it continues.

 

[godisney14]

First, Twitter should not be "fact source" IMO (other than to say "so and so tweeted this"). So I did your work for you. I went to the article linked in the tweet.
https://www.statnews.com/2020/07/27/covid19-concerns-about-lasting-heart-damage/

Now, I did not go to the study. But, one question (and it may be mentioned in the study), of the 100 C19 survivors, how many had cardiac issues before C19. And no, I'm not saying they all did, but wouldn't that be a good thing to note when you say 'x amount' had this issue after?

From the actual study paper:
"Demographic characteristics, cardiac blood markers, and cardiovascular magnetic resonance (CMR) imaging were obtained. Comparisons were made with age-matched and sex-matched control groups of healthy volunteers (n = 50) and risk factor–matched patients (n = 57)."
"Compared with healthy controls and risk factor–matched controls, patients recently recovered from COVID-19 had lower left ventricular and right ventricular ejection fraction, higher left ventricle volume and mass, and raised native T1 and T2 measures. A total of 78 patients recently recovered from COVID-19 had abnormal CMR findings, including raised myocardial native T1 (n = 73), raised myocardial native T2 (n = 60), myocardial LGE (n = 32), and pericardial enhancement (n = 22)"

Barring actual MRI of patients before being infected, they did try to control for common preexisting conditions between the groups. Quoting the paper, "using Mann-Whitney U tests for continuous data and Fischer exact tests for proportions", this outcome is impossible just by random.

This isn't the first study to show this clinical finding among recovered patients. It's an additional supporting paper among many from around the world on this topic.

 

[DGsAtBLT]

Yes there are many, many mild cases but there is a whole gray area between those mild cases and deaths and that is the area that makes me the most nervous.

This is exactly how I feel too.