Foster child with neurogenic bladder/bladder spasms, WWYD...?

[SueM in MN]

This would very likely qualify for DAS (I have two adult friends with bladder issues who previously qualified for DAS). I also use DAS. I've never done the pre-register and always gotten it at my first park of the trip, but just make sure the whole family is in line so they can link everyone's magic band to his DAS account.

If he has no warning, using DAS is not likely to keep him from becoming wet. It would take longer than that to get out of line and at least 5 minutes to find a restroom. Plus, most of the time, there is a line, so he would not be able to get into the stall before he’s wet.
If he truly has neurogenic bladder, he may not be able to be toilet trained no matter how he tries - the bladder and nerves/brain are just not able to coordinate to hold when it needs to and release completely when it’s time. My youngest daughter has neurogenic bladder and bladder spasms due to cerebral palsy. She never developed the ability to know when her bladder was full. We took her to the bathroom, but she was often successful and 15 minutes later was wet.
We worked with her doctors and did come up with a surgical and medication system thst works well for her.

Since he's young enough that he will still wear a daytime pull-up, that's an excellent back-up protection; as he ages you might look into leakproof underwear which has improved over the years. The Bedwetting Store carries kid sizes, and probably Amazon or other specialty stores. And I always carry extra clothes for her - trying to find a pair of shorts in the right size isn't fun and usually costs much more than I like to spend.

If the drinking is just out of habit, you can easily limit some of that. DD has kidney issues and needs to drink a lot on a regular basis, even more when it's hot and humid and/or if she's more active. As a teen she was diagnosed diabetic, so they'd be smart to keep it on the radar if there is a family history.

The Bedwetting Store is a good place to look for products.
I don’t know if the reason the OP is thinking of diapers instead of pull-ups is absorbency; If you are using regular pull-ups, you might want to consider Goodnights or a similar product.
They are basically higher capacity disposable pull-ups for older kids.
If the child is able to get to the bathroom before becoming wet, they would be easier to take down and can be pulled back up if they are not wet.

I would ask him what he wants to do. Also definitely try to go before getting into line. He is going to need some form of protection on. Even the lightning lane line plus ride time can be rather long and if there is no warning he will need protection.

Agree about the Lightning Lane - it can be 5 minutes in line or close to 30; it’s not usually as long as 30, but it is a possibility

 

[Narcoossee11]

Definitely vote for pullups/depends, something that can be thrown away,
I would bring several outfits each day to park.
Have Ziploc bag with: Outfit, wipes, pullups, trash bag, something to help with smell of dirty outfit.
Have a large bag to store all 'dirty' bags.

 

[Feebzmom]

If he has no warning, using DAS is not likely to keep him from becoming wet. It would take longer than that to get out of line and at least 5 minutes to find a restroom. Plus, most of the time, there is a line, so he would not be able to get into the stall before he’s wet.
If he truly has neurogenic bladder, he may not be able to be toilet trained no matter how he tries - the bladder and nerves/brain are just not able to coordinate to hold when it needs to and release completely when it’s time. My youngest daughter has neurogenic bladder and bladder spasms due to cerebral palsy. She never developed the ability to know when her bladder was full. We took her to the bathroom, but she was often successful and 15 minutes later was wet.
We worked with her doctors and did come up with a surgical and medication system thst works well for her.

The Bedwetting Store is a good place to look for products.
I don’t know if the reason the OP is thinking of diapers instead of pull-ups is absorbency; If you are using regular pull-ups, you might want to consider Goodnights or a similar product.
They are basically higher capacity disposable pull-ups for older kids.
If the child is able to get to the bathroom before becoming wet, they would be easier to take down and can be pulled back up if they are not wet.

Agree about the Lightning Lane - it can be 5 minutes in line or close to 30; it’s not usually as long as 30, but it is a possibility

We were told almost the exact same thing the one time I've been able to get him to a pediatric urologist (specialist appointments are a nightmare where we live when it comes to wait times). They basically told us there is a chance he could eventually be potty trained, but also a high likelihood that it won't be possible. He's been bounced around way to many families in the past year for various reason, so my hope is we can give him a bit of stability finally--and have another discussion with a uro team about what we can do, going forward.

At home, he primarily wears diapers at night, because we found them to be *much* less likely to spring a leak--that was my main reasoning behind considering using them for Disney. He's usually not able to tell us in time before he needs to go (very much). So we'd discussed privately focusing on getting him to the bathrooms for going #2 while actually at the parks--but potentially backing off on regular trips just for him to try and pee. DH thinks this is the way to go, (I'm undecided). Long line waits are for certain a concern.

Greatly appreciate everyone's suggestions! This will be just my 2nd DIS trip in the past two decades, so I'm admittedly a bit rusty on this!