Exhausted from parenting/ASD children/Welcome to Schmolland!

[Piper]

I know it must have been traumatic for him. You did a good thing to comfort him and give him time. Just continue to reassure him when needed. Your area is in my prayers. I know it is difficult for you even though your own home is okay.

 

[pls5286]

I need an hour to myself for my own mental stability. I will be glad when my son gets home so maybe I can grab just a few.

DF is working insane hours, and the little kids are at one anothers throats. It is normal kids bickering but I am done. I have not felt well since I got home so it is not helping matters at all.

Stress level is at its peak but I have kept my cool with the kids...please be proud of me for that!

Sorry for venting but I am just done right now! Too much going on. I need someone to talk too. I have tears streaming.

 

[lovethattink]

Patty, I hope you can get a quiet moment for yourself. I really am so proud of you that you have kept your cool. Speaking calmly to the kids when you are at your peak takes so much practice and energy! Way to go!!

I hope you feel better soon.

Vent away. We all understand on this thread.

 

[bookwormde]

PLS5286

One of the best things parents can do for our kids it to take the time to take care of themselves and get supports when needed.

bookwormde

 

[sl_underwood]

PLS5286

One of the best things parents can do for our kids it to take the time to take care of themselves and get supports when needed.

bookwormde

You are so right!

 

[Ultra violet]

I agree with you 110% Bookwormed!

Pat on the back PLS for not "loosing it". I don't know about you, but weekends can be tough around here and my son doesn't have siblings to argue with. Hope you feel better soon. Sending some happy vibes your way.

 

[pls5286]

It has just been a rough several weeks period here. The school DSS was in was on spring break so he was here visiting his dad, then he moved in, and it took the new school time to get him set up so he was home with me, then my kids were home with me for spring break while DSS went to school. Add in a sick child and it has been over a month since all 3 were in school at the same time!

DF and I talked last night when he got home and he is off tomorrow and Tues and so Tues he is gonna be Mr. Mom! We has to take DSS to the dr tomorrow but he is going to cook and do homework tomorrow and Tues. I am excited!

 

[Clochette nordique]

This is our first real vacations together, but we've been many places for one day or one afternoon, or even a week end. It's always been more work than fun. I felt very guilty to get both the GAC and the wheelchair, but it's the first time ever, I have it easier and I have to enjoy it too!

You were so helpful, guys, when I was preparing our trip, I had to log in and say a big huge thanks!
It's way too late right now to make a small trip report, but as soon as I can, I'll report about MY, good time!

Till then, Poussière de fée!

 

[lovethattink]

It has just been a rough several weeks period here. The school DSS was in was on spring break so he was here visiting his dad, then he moved in, and it took the new school time to get him set up so he was home with me, then my kids were home with me for spring break while DSS went to school. Add in a sick child and it has been over a month since all 3 were in school at the same time!

DF and I talked last night when he got home and he is off tomorrow and Tues and so Tues he is gonna be Mr. Mom! We has to take DSS to the dr tomorrow but he is going to cook and do homework tomorrow and Tues. I am excited!

Sorry it's been a rough several weeks. Hopefully, the rough patch is over! Glad your husband able to help you out! I don't know what I'd do without mine! Since we homeschool, I am with my son 24/7. He even sleeps with us because his seizures are simple partial and hard to detect otherwise. So many times during the night we have to turn him on his side so he doesn't choke, or aspirate.

My husband is so amazing at pitching in. I hope he doesn't burn out.

This is our first real vacations together, but we've been many places for one day or one afternoon, or even a week end. It's always been more work than fun. I felt very guilty to get both the GAC and the wheelchair, but it's the first time ever, I have it easier and I have to enjoy it too!

You were so helpful, guys, when I was preparing our trip, I had to log in and say a big huge thanks!
It's way too late right now to make a small trip report, but as soon as I can, I'll report about MY, good time!

Till then, Poussière de fée!

Glad all is going well on your vacation!!

 

[Clochette nordique]

Glad all is going well on your vacation!!

Well.... what about "croup" at 5 am? She didn't have any episode for the last 2 years. So in emergency measures, since she was not panicking, to prevent a little trip in ambulance... I gave her my, "puffer". Apparently, it works. She is still sleeping right now (here goes our "early morning at the parks...", but she'll recup and we'll enjoy this WONDERFUL weather we have right now. (Changes from the great north, anyway!)

So, her sleeping late gives me the opportunity to sit on the balcony with (free) wireless Internet (don't tell anyone - I tried and it works, so I don't have to pay... I think...), listening to the Poly music, relaxing (finally) and reporting to you.

As I said yesterday, it's my first time really enjoying our time out. What I didn't say is that the little one is enjoying herself too, most of the time, which is greatly helping for us (my godmother and me). I'm more than glad I'm not alone with the little one. It would be impossible for me to manage DD11, the first time at the parks, the wheelchair and the mood swings.

She just woke up and she still has this "whooping cough..." I'll go take care of her.

Poussière de fée!

 

[Ultra violet]

Pls: Glad you're getting a bit of a break and hope that the rough patch is over soon. It's so nice when spouces step in to give a few breaks from reality.

C. Nordique: My son has had croup often (I understand the sleepless nights...but they suck even more when on vacation). Have you tried getting a single dose RX for an oral dexamethasone? It works wonders almost overnight for that nasty cough. Glad you're enjoying your vacation and that the GAC and wchair are working out well for you. Thanks for the tip. I don't think DS would be able to handle all of the walking and was wondering how I could accomodate his needs.

Sending happy and good health vibes to all and uhm with a very thick accent I imagine... "Poussiere de fee" as well (I had to google and translate that one

 

[Ultra violet]

My son had to be picked up from school today because some other child ripped his book out of his hands. Even though he was quite hyper and excited (that before meltdown mania like state) he told me that he asked nicely to have his book back and said it was his and the other (older) child said he wasn't giving it back to him and was kind of waving it in his face and running away with it just before he could grab his precious books. (Note: This is his collection book. He collects flowers and petals since he was very young with my late mother who had travelled quite a bit and wanted to bring it for show and tell because it was so special to him). So he pushed the other (who fell over and was startled and started to cry). Zero tolerance for physical violence. So I got "the" call. Some of the flowers were destroyed. Thankfully, we salvaged most of them. I know that pushing him wasn't the right thing to do, but gees! I sometimes feel that because he has ASD (not usually physically aggressive either) that they tolerate less of his behaviors unlike if he were a regular child. All I have to say is "DISNEY TRIP PLEASE COME QUICKLY.....WE NEED A BREAK FROM REALITY AND HAVE SOME FAMILY QUALITY TIME!"

Don't get me wrong, this is a minor incident really, we're stronger than that here and have dealt with much MUCH worse THINGS within the last few years, but I am honestly happy to be able to vent to a group of people who have been through somewhat the same frustrations. Thanks everyone!

 

[lovethattink]

Well.... what about "croup" at 5 am? She didn't have any episode for the last 2 years. So in emergency measures, since she was not panicking, to prevent a little trip in ambulance... I gave her my, "puffer". Apparently, it works. She is still sleeping right now (here goes our "early morning at the parks...", but she'll recup and we'll enjoy this WONDERFUL weather we have right now. (Changes from the great north, anyway!)

So, her sleeping late gives me the opportunity to sit on the balcony with (free) wireless Internet (don't tell anyone - I tried and it works, so I don't have to pay... I think...), listening to the Poly music, relaxing (finally) and reporting to you.

As I said yesterday, it's my first time really enjoying our time out. What I didn't say is that the little one is enjoying herself too, most of the time, which is greatly helping for us (my godmother and me). I'm more than glad I'm not alone with the little one. It would be impossible for me to manage DD11, the first time at the parks, the wheelchair and the mood swings.

She just woke up and she still has this "whooping cough..." I'll go take care of her.

Poussière de fée!

Oh no!!! So sorry she got sick at Disney! I hope she is doing better today. I am so glad she has been enjoying herself as well, and that's great you have another person to help you out. It is very difficult to manage at the park sometimes.

We live close to the parks and are there often. Quick service meals are one thing that is impossible for me. Bathroom breaks are becoming increasingly impossible too. He doesn't want to stay with me. He either gets distracted by something while at the quick service restaurant, and in the case of the bathroom he hates the toilets flushing and the noise of the hand dryers in some, so he flees. If anyone has tips for how to handle these situations, I'd love to know them!

My son had to be picked up from school today because some other child ripped his book out of his hands. Even though he was quite hyper and excited (that before meltdown mania like state) he told me that he asked nicely to have his book back and said it was his and the other (older) child said he wasn't giving it back to him and was kind of waving it in his face and running away with it just before he could grab his precious books. (Note: This is his collection book. He collects flowers and petals since he was very young with my late mother who had travelled quite a bit and wanted to bring it for show and tell because it was so special to him). So he pushed the other (who fell over and was startled and started to cry). Zero tolerance for physical violence. So I got "the" call. Some of the flowers were destroyed. Thankfully, we salvaged most of them. I know that pushing him wasn't the right thing to do, but gees! I sometimes feel that because he has ASD (not usually physically aggressive either) that they tolerate less of his behaviors unlike if he were a regular child. All I have to say is "DISNEY TRIP PLEASE COME QUICKLY.....WE NEED A BREAK FROM REALITY AND HAVE SOME FAMILY QUALITY TIME!"

Don't get me wrong, this is a minor incident really, we're stronger than that here and have dealt with much MUCH worse THINGS within the last few years, but I am honestly happy to be able to vent to a group of people who have been through somewhat the same frustrations. Thanks everyone!

I feel so badly for him. What happened with the boy who taunted him with the book? I hope he was punished for bullying your son! I hope there is 0 tolerance for taunting too, afterall that is bullying! I sure hope the teacher took the time to explain to your son how he should have handled the taunting after he calmed down, so that in the future if he is bullies, he won't get in trouble and the one who started it will!

It's things like this, that make me glad I homeschool!

 

[bookwormde]

I hope they are handleing this as a bullying case.

bookwormde

 

[blondietink]

What about using the companion restrooms that are located around WDW? then it would be just you and your child in the bathroom and he wouldn't be distracted by the noise of the large restrooms?

 

[lovethattink]

What about using the companion restrooms that are located around WDW? then it would be just you and your child in the bathroom and he wouldn't be distracted by the noise of the large restrooms?

I tried the companion restrooms near Spaceship Earth and the one in The Land near Soarin'. Only twice did he stay with me without problems in the companion restroom. Once, I let him play in the sink. The other time I didn't pull up his pants and told him to work on pulling them up himself. That bought me some time. But if I ever needed to take time in a restroom, I don't know what I'd do? At least when the family is together at Disney, whoever isn't in the restroom with our son has guard duty at the door to watch for him.

 

[toodycat]

Happy Mother's Day to some moms with serious skills!

 

[ppony]

Happy Mother's Day to some moms with serious skills!

I second that!

 

[pls5286]

We found out last week that things are much worse than we feared with my step-son. His older Cousin (mid-20s) has been abusing him since his dad moved out.

We found this out when we took the kids out to eat and I got a steak knife out of the silverwear rack and he jumped up from the table panic stricken saying "please don't throw that at me, I promise I will be good." He was not misbehaving at all, but he is autistic. His dad was fixing his plate, so I cuddled him and asked him who was throwing knives at him and he told us his cousin throws knives at him for running in the house. I assured him we would never throw a knife at our house, we only use them for food and tools and calmed him down.

When we got him home, he told us the cousin punches him in his stomach and groin, hits him in the back and head, and pokes him in the eyes. This is a terrified little boy of his cousin and would most likely explain the drastic change in behavior in both houses.

 

[Clochette nordique]

Sending happy and good health vibes to all and uhm with a very thick accent I imagine... "Poussiere de fee" as well (I had to google and translate that one

Poussière de fée = Pixie Dust