Early roll call for March 20-23rd 08 Wonder cruise

[mom x4 grandma x4]

HOORAY!!!!

Your finally all set to go!!!
I hope you have a great weekend.

we probably wont get there this weekend due to puppy training but will make it soon.
I have so many things to catch up on soon that have let go with all the training stuff.

we are doing good though. She did sleep through the night and NO accidents in her bed and only one on the tile by the doggie door after returning from the vet yesterday. i take her out every 30 minutes or as soon as she wakes up from her nap. she already is getting the idea of where she is suppose to go . She watched Minnie use the doggie doors the first day and learned to use them in just 3 o 4 hours. so she must be fairly smart.

well they both will be awake soon. I will keep us bumped up over the weekend. I know sometimes there will be somebody else going with us.

going to relax with a up of tea for a few minutes before they wake up.

enjoy your day and new freedoms!!!!

kathy

 

[brady961]

yeppers keep us bumped up. have a good weekend and enjoy your babies.

 

[mom x4 grandma x4]

well it was another busy day here.
just about time ot make another potty run to the yard. I think I know every blade of grass now.

Hope you have a great time this weekend.
watch out for the heat, today seemed really bad outside when I was out.
I guess it will be a good test for your vest!

I'll check back later,
Kathy

 

[brady961]

you have a good weekend too. nite

 

[mom x4 grandma x4]

morning,

just doing my morning bump today.
Things are going pretty well here today.
No weekend plans due to puppy training, which is going pretty well .

I hope to get a little scrapbooking done this weekend too. Greg will be here to help me watch the doggies. Since we cruise 6/30 I have to keep at the training really hard so maybe both dogs can just use doggie door while we are gone.
Our adult son Peter will be here but he has to work, so wont be here all the time. I dont want to have to lock them out while he is at work. I may have to just block off the livingroom area and then it would be all tile,s o no real problem while we are gone for peter in case she doesnt go out. I have baby gates to keep dogs in livingroom and kitchen and short hallway areas only until training is complete.

well off to take Minnie for a walk and puppy for a potty break first.

kathy

 

[mom x4 grandma x4]

Good night Marsha,
hope your having a blast!!!


kathy

 

[mom x4 grandma x4]

Hi Marsha,
i know your out and having fun at WDW right now. It looks like your going to have great weather today too.
I am anxious to hear how the vest works for you. I am keeping my fingers crossed and hoping it will help you to really enjoy your weekend. You deserve it!!


Just keeping us bumped up.
kathy

 

[mom x4 grandma x4]

Just saying good night!!!


Hope your having a blast

 

[mom x4 grandma x4]

bumping us up for the day.
Hope you had an awesome time!!!!


kathy

 

[mom x4 grandma x4]

good night Marsha,

it has been very quiet here since you've been gone.
glad you'll be back tomarow,

kathy

 

[mom x4 grandma x4]

morning Marsha,
hope you get a little rest time today after your weekend.

kathy

 

[mom x4 grandma x4]

good morning Marsha,
hope your ok, just busy.
I worry when I dont hear from you for awhile after you were suppose to get home.

We have appointments each day all week long, so that makes for a busy week for me. Friday was suppose to be free, but Dr. wants me back that morning for more blood work. So I have something everyday.

It is getting hot out early today.

I'll check back soon, hope all is well,
kathy

 

[mom x4 grandma x4]

Good evening Marsha,
it was a busy day today. But it is getting calmed down now.
Greg has a late meeting so he wont get home until 9 p.m. tonight.

That is such a long day!!

will catch you later,

kathy

 

[brady961]

Hiya
Had a great weekend. the cooling vest worked well when the therma paks were frozen (first day about 3 hours). Although I had a refrig in room, no freezer. I took a cooler with ice blue paks, and ice, hoping that would freeze the paks or at least keep them cold enough to work. Well that didn't work out that well. I have ordered another type of paks that suppose to regenerate in ice water in about 20 mins. Of course that means about 2 or so hours having to stop, get some ice and water to soak them. But I figured at WDW that would be ok. Cause after about 2 or so hours will be time to find a cool place to sit, and relax. Giving time to regenerate the paks. Will see how those work once I receive them.

Found out though that a HC at POP Century isn't very HC friendly. The walk in shower was great. however, the door just to get into the room was so heavy it was hard for me alone to open. On top of that when you open the door the kingsize bed is right there which means difficult to hold door open, turn between bed and door to get in or out. I did bang up my foot the first day. grrrrr

The other issue I had was only rooms with walk in showers have king size beds. I let them know how it felt that they assume a HC person requires only a king size bed. Like if going with a friend, or even a care giver that doesn't mean you both will sleep in same bed. So they gave me a standard room that adjoined to HC room that had double beds. So ended up with two rooms, a bed for my friend and a bed for me. (They didn't charge me for standard room).

And to move around the room in an electric/power chair wasn't easy due to way room was set up.

I am finding it more and more amazing how little places will do to meet ADA compliance. Not just WDW although I have found the parks do very well for accessibility.

I went to Centra Care yesterday due to my ankles/feet so swollen, and the abrasion looked like was getting infected. They didn't have a bathroom that I could use. They had a bathroom that was suppose to be HC accessible meaning it had a grab bar beside the toilet. and maybe a manual wheelchair could have gotten in, but im not sure. I know I couldn't get my chair in, and know no other power/electric chair could get in. So i sat there for 3 hours needing to go potty and they had no bathroom I could use. Although they had two HC parking spaces neither were for vans. I am thankful that when I came out no one was parked in HC space beside me, cause if had I wouldn't been able to get into my van with my chair using the ramp.

Even today I went to see my primary which is in a large medical professional building. Their public bathrooms have a HC stall but its not large enough to get any type of chair in there. So had to pull up to door. Hold on to door, grab bar, etc.... leaving chair outside the door.

Parking were and other places I have gone lately has or can be difficult to finid a space one can park using a van with ramp. And often the ones that are van accessible a car is parked there, and the other HC spots can't be used with a van/ramp. I understand ppl find a HC spot and park, and don't even think when signs says HC Van accessible that maybe they should park in another HC spot so in case a van needs that space. I am guilty of parking in such a spot as it was the only HC spot available and didn't consider if someone in van needed it. So I seem to think more about HC parking and HC bathrooms esp with having the chair.

ok back to weekend, it was great. my friend from MD surprised us on Friday with a lunch at the Brown Derby with an Imagineer. WOW. I didn't even know they did this (Mon, Wed and Fri). So we had a wonderful lunch in a private room, limited number of ppl, (there were 7 ppl and one imagineer). The imagineer shared what he did, about different imagineers and what they do, and we got to ask questions. Great time and I hope to do that again someday.

We celebrated my friends birthday all weekend which was lots of fun.

Since I got home Sunday early evening all I have wanted to do is sleep LOL.

hope you are ok, the pup is learning well. And Minnie is still her happy self.

nite

 

[mom x4 grandma x4]

good morning Marsha,
it sounds like you had a good time. also it seems it was a good trial run to work out the bugs of using the vest. Perhaps next time you could ask at the hotel is the kitchen area could freeze your stuff for you if you explain it is for medical purposes??? I know that wouldnt help once in the parks, but for over night to have them frozen good to start the next day with, it may help until the others arrive.

I would think perhaps in the parks you could ask at the first aid station if they could freeze your paks if they have a freezer or if they could make arrangments for a restaurant in the park to freeze them while you ate.
It usually takes an hour to eat and those big industrial freezers can freeze things solid in that amount of time.

It couldnt hurt to ask, although I dont know if you could get through the door at the first aid stations? As I recall they are quite small.

Sorry to hear you had so much trouble with door ways not fitting your chair.I have to admit I wouldnt of thought that your chair couldnt go through because they do have larger doors on the HC bathrooms.

It may not do any good, but I would wirte WDW and tell them about this and I would write to which ever office is in charge of over seeing that people meet these requirements and explain what happened and what they need to do to correct it. I'm sure your not the only person to have this problem and they need to be told.

well puppy is now named Pixie by vote of the grandkids. i told them 3 names to vote on.
Potty training is coming along very well. I still have to take her out all the time to remind her to go. But she is just 3 months today, so she is doing quite well. Minnie still plays with her all day accept when they stop to nap, like now. They are both asleep after a busy couple of hours of playing.


well got to get alittle stuff done before they wake up.

Hope you get rested up soon.
Kathy

 

[mom x4 grandma x4]

Good morning everyone!!!

Hoping others are reading this to join us today.

I have to zip out to the vet with Pixie for her rabies shot this morning.
so got to run.

Have a great day everyone,

kathy

 

[brady961]

good morning. i got up this morning and went to do laundry. i am home and its done HOORAY!!!!!!!!!!!!!!!

No major plans today except get some work done via email or phone calls.

Can't believe we have like 28 days until our June 3 night cruise Yippee!!!!!

Then the Sept cruise, then this cruise WOO HOO.

Minn is packed for the June cruise <G> Of course I am not LOL.

hope you have a good day. give Pixie and Minnie hug from auntie marsha

 

[mom x4 grandma x4]

Hi Marsha,
I have laundry washing as I type. it is a never ending battle

Well Pixie and i have survived the vet appointment this morning. it was interesting. I had them clip her nails which was world war 3 It took 3 of us to hold her down to get it done.
Then she got her revenge on the ladies there. I wont get to detailed but they cleaned out her anal glands because puppies often dont push out everything when they "GO" You get my drift??
They take a wippee and put over her behind and squeeze her and catch stuff in the wippee. Well we all 3 heard a loud noise and it shot across onto a newly painted wall, into a sink and all over the tray of syringes laying there in a tray. Plus she filled the wippee.
She now holds the record ofr the longest SHOT OF POO!!!!

Then they cleaned out her ears which of course she didnt like to well then came the shots which she didnt mind at all. She goes back in 3 weeks for another round of shots.

Maybe Greg should take her for that one?

anyway we made it home and she started playing with minnie and allw as well again. She gained 3 1/2 pounds in a week. He said in 3 weeks she should be 15 pounds heavier!! I cant carry her in then so got to get her use to the leash at least to get into the vets office.

Minnie is no problem, she is trained and we just go and do what ever needs to be done. She is 66 pounds so there is no way I can carry her!!

Tomarrow I go back to have more blood drawn for routine work and get my prescriptions refilled. I have an infection around my feeding tube so they put me on antibitics so I dont feel great right now. They always make me off for a few days.

So now with both dogs and me having shots and meds this week we are all a little grumpy. Greg may go out the door as soon as he gets home tonight. Ha Ha

He wont really because I have a pot roast cooking for tonight. I thought Peter and Catherine were going to be here but they are going to a special showing of POC 3 tonight so they want to eat out and get in line early to get a good seat. They already bought the tickets.

So we will be having roast for 2 nights.

Time to relax, both dogs are asleep for a few minute so I can relax and hopefully get rid of my headache.

everything considered it is still a very good day!!!

Kathy

 

[mom x4 grandma x4]

Good night Marsha,
I'll post again tomarrow,

Kathy

 

[brady961]

Nite Kathy
hope you have good night and a restful tomorrow.

watch that infection. the scrape i got this weekend trying to get into the hotel room started to look like it was getting infected. i had it checked out, got antibotic, and putting antibotic cream on it still. finally it is looking better.

swelling finally has gone down some in legs/ankles/feet with help of lasix.

I go next tuesday to see neuro in St Petersburg that made the initial diagnosis of SCA. I haven't seen him in a year, so my primary and both want to get his opinion of how things are progressing, if still believes its SCA etc...

Saw primary yesterday and he was surprised how much i have progressed since last time saw him. we discussed autonomic neuropathy which now appears i am having along with the sensorimotor polyneuropathy.

My local neuro is good, I like him but i have him more to assure i have a neuro nearby if needed. I see him about every 6 months. Actually had appt today but cancelled since seeing St Petes neuro next week. The St pete neuro is part of the MDA clinic, my local neuro is a private office practice. Don't get me wrong my local is good, will do anything he can for me, but has less experience with SCA or MSA. He has lots of experience with Parkinsons, MS, and other more known neuro diseseases.

Ok, chat more tomorrow.