Early roll call for March 20-23rd 08 Wonder cruise

[mom x4 grandma x4]

Hi marsha,
well it took all day to make it on line it seems.
I had early 7:30 doctor appointment and it took for ever!! Tech who draws the blood had bad hiccups and couldnt draw blood because she jerked so bad. Took her 20 minutes to get rid of them. I did feel badly for her but I was hungry and wanted to get home!! Has to fast today for blood work.

Then Dr. for got to write out new RX's for me and check out girl got called away for a few so 20 minute appt took almost 2 hours. I was so hungry I was getting ill, plus the anitbiotics always make me feel ill.

Then of course puppy needed to go out when I got home before I could get food in me,s o wont get my daily quota today but that just happens sometimes. I should only be 12 oz short so that's ok.

Infection is starting to improve but it always takes about a week for meds to kick in and work.

Sounds like you have some appointments to get out of the way too. Hope they go well for you.

Time to take puppy out for apotty run, back later
Kathy

 

[mom x4 grandma x4]

Just dropping by to say Good night!!

Will check back tomarrow,

Kathy

 

[mom x4 grandma x4]

Good morning Marsha,

Hope your having a good day. we are going to concentrate on yard work today. greg will be doing it, not me due to my infection but i will supervise and bring ice water put to him.

I hope to make some cookies today for him. A reward for all his hard work.

We are keeping our fingers crossed this week. Greg works for a builder and times are hard for them right now so thursday they are going to lay off a lot of people in Florida. We are hoping not to get laid off and our son also works for them, hopefully they both will have a job on Friday!!


Then if things dont improve by end of summer they will probably merge all the areas in the state to 2 larger areas and lay off tons more people and at that point I know our son wouldnt have a job and Greg will probably be laid off too.

If that happens we will have to cancel our November cruise because he couldnt get the time off work if he had a job or if he wa slaid off he would need to be here to look for work. So it doesnt look good.

If sales improve by end of summer we will be safe unless he gets laid off next week.

with unemployment and our savings we wont have a problem for quite awhile but we are planning for the worst. dont want to use up our retirement savings.

greg is a licensed builder so he could probably keep busy with remodeling and such until times get better ont he builders market but tha tis har don him physically.

So keep your fingers crossed for us!!! I have been through this before, so nothing new to us, just need to tighten the belt until we know what is going to happen.

We are having anice weekend at home and catching up on house hold chores and take the dogs for a bath tomarrow. That will be an event!!

well best go while I feel good. Mornings are ok, just by afternoons I start feeling bad from the meds.

Hope your foot is better.
Are you doing anything this weekend??

Kathy

 

[brady961]

So sorry I haven't kept up here posting much last few days.

Seems I have been busy with something or another. Plus I started some new meds that really are doing a number on me grrrr. Body has to adjust to the affects but geesh this initial period of starting them makes me not want to take them at all. grrrr

I did some errands today. Beall's is having a great sale so of course I just had to go. I bought a couple pair of capri's, and tops to match. I like buying capri's/pants/tops that I can mix and match. I have one pair of capri's and one top to match in my hands at the register. Then I thought wait I don't have anything else to match this one pair of capri's or anything I could wear that one top with either. So I didn't buy them, just the ones I knew I can mix/match with what I was buying plus what I already have here at home.

I use Epass but when I transferred the transponder to my new van, the adhesive on velcro just keeps getting hot and then transponder slides down windshield. grrrr I called Epass who stated I could get a suction cup bracket at Publix, or Lowes. Ok so I go to Publix, nope they don't sell just the bracket, they sell only the package of Sunpass that comes with suction cup bracket. Ok so over to Lowes today too. Nope they don't sell the bracket either. Thankfully this woman, another customer, walked up while i was asking Lowes employee and she said she got her suction cup bracket at Pep Boys. So ok off to Pep boys. HOORAY!!!!!!!!!!!!!!! They sell just the bracket for Sunpass or Epass. Now hoping the suction cup bracket holds <G>

Monday I am heading to Clearwater/St Petes as I have an appt with my neuro on Tuesday morning. No way am I going to drive thru Orland and Tampa morning rush hour traffic to make it to st pete for a 10a appt.

So decided I would go over on Monday and stop at Busch Gardens. I have an annual pass for there and Sea World. Haven't been to Busch Gardens in over a year. I will stop there to check out things, see if anything is new, etc...

Stay there a few hours then head over to Clearwater and spend night at hotel (using points HOORAY!!!). Then will be only about 10 mins from my neuro's office and can get to appt easily Tuesday morning. Plus I will be going opposite of rush traffic. This is neuro that made initial dx and I haven't seen him in about one year. So my primary and I both agreed I need to see him again. He needs to see the progression, how rapid, and new issues. I think my primary as well as myself are wondering if he will change the diagnosis esp with such rapid progression and new symptoms. I guess doesn't matter diagnosis cause the one I have now, or the one PCP and I think could be changed to, neither have a cure, only can treat symptoms, and both really are so rare ppl just don't know that much about either. So even if he does change diagnosis won't change treatment, or progression.

I have to say though with the new chair, ramp, sidewalk, and van, I can get so much done in errands without being exhausted just walking out the door and to the van. What a blessing this chair and van is and has been so far.

No way could I have gotten done all I did today if was walking with crutches. I would have been drained just getting out the door to the van much less having walk thru Beall's, Lowes, Pep Boys and Walgreens. No way could I have done it without the chair/van. What a blessing these items already are to me.

ok enough of my rambling. I realize I probably should be emailing this info instead of posting in a cruise thread <G> but at least keeps the thread close to the top, and if anyone finally joins us, they will have good idea of who you and I are, what we like, do in daily life etc..... Or maybe they read it and think these two women are nuts LOL.

Tell Pixie and Minnie hi and throw a toy for them to play with for me.

later

 

[mom x4 grandma x4]

Hi Marsha,
i didnt have the net all morning so I didnt post early like I usually do.
Ha d aquiet day today. Greg washed the cars and cleaned the pool filters. Now Greg, Peter and Catherine have gone out for pizza so no cooking tonight which is nice for me.


I just finished watching the Wonder pull out of port. The weather looked great for them. I love watching it pull out even though I have almost a year before getting on her again.
You must be getting really excited for your June cruise, it is almost here. Next week it will be June already!!

I have a bunch of cards to get in the mail on tuesday. June 4 is my brothers anniversary, the 6th is grandaughters 16 birthday, june 8 is my daughters birthday. Everything all at once!! At least I was smart and have my birthday towards the end of the month

We watched the movie De Ja Vue today with Denzel Washington, it was pretty good. If you get the chance to see it, do it. It is for rent now.

Well I need to take Pixie out to GO!! So I'd better sign off for now.
I know you have a busy week with doctors and such so I wont worry if I dont hear from you much. I will try and keep us bumped up.

One of these days someone will join us here, if not they will be missing two great people

Kathy

 

[mom x4 grandma x4]

Hi Marsha,

well it is the last day of the 3 day weekend.

today i need to do some grocery shopping but that is about it. I may make some cookies this afternoon. Not sure what kind yet.

my oldest son randy went to gatorland yesterday for the first time since he moved ehre 2 years ago. I havnt talked to him yet, but I hope he liked it. He likes reptiles so he should of had a good time.

Not much else to report right now.
Are you making a door sign for your next cruise?? i always make a simple one with stickers each time we go. Nothing fancy, just kind of cute to decorate with.

i 'll be in touch,

kathy

 

[mom x4 grandma x4]

Hi Marsha,
well I turned on the BBQ, came inside to start the potatoes. Then went back outside to throw the steaks in the grill and it was cold.
I ran out of propane.
So I grabbed out the forman grill and used it but I cooked them more done than they usually like them. They were good and tender so all was well, but I dont like to cook them in there, they were tasting BBQ.

Oh well, as long as it tasted good, which they say it did
At least once we get the new propane we will be secure to know I can use it all summer without worrying about running out of propane.
Grandkids will be here in a month and we will be using it a lot.

well off to load the dishwasher and get ready for bed.

I'll be in touch,
Kathy

 

[mom x4 grandma x4]

Hi Marsha,
I know your out of town at a Doctor appointment , but I thought I would stop by and say hello anyway.

Heard we are in for a hot week all week long.

Well the dogs were out ont he patio racing around early this morning and Minnie's head hit my knee on the full run!! OUCH!!!!
It didnt phase her but it hyperextended my knee so I had pain from my hip to my toes

So today I will try to stay off of it as much as I can. No swelling , just pain.
I took a couple of migraine stength excedrin which is helping some.
It's going to be a long day today

Oh well, if the dogs co-operate I may get some scrapbooking done today. Luckily I got all the done yesterday.

I'll be in touch,

kathy

 

[brady961]

Hi I am back home finally. Sounds like you have been busy!!!!!

Doc appt went about as well as I could expect. Since I haven't seen this neuro in a year, he and his nurse were rather shocked to see how far I have progressed just in this last year.

Nothing he can do but treat symptoms and my primary does a good job maintaining my scripts (primary is local) and neuro is in St Pete. Neuro felt the meds PCP has prescribed are fine, and agreed with them all.

Neuro did say when I needed any papers completed like for disability that he would complete anything I needed. Didn't really give me much hope but I already know that day will come. When I don't know but I will continue as long as possible working.

I was shocked as the neuro got up to leave the room, he bent down and gave me a hug. He has never ever hugged me so sorta I think his way of saying I am here for you, I have compassion for you, and I feel bad that I can't do something to make you better.

I am exhausted, swollen legs/ankles/feet so going to get some rest.

Catch ya tomorrow.

 

[mom x4 grandma x4]

morning Marsha,
Glad your back home to relax some.
I had a bad reaction to antibiotics last night so was really sick. Today is much better, just a headache and kind of tired, so will just take it easy today.

Dogs are sleeping so I can relax some now. they do entertain themselves very well, just need to take them out to the bathroom and feed them.


Going to be HOT again today. but I will stay inside and stay cool. hope you will be able to do the same .
I'll be back later, need to close my eyes to get rid of the headache.

Kathy

 

[brady961]

Sorry to hear about bad reaction to meds. Hope by now you are feeling better and no feeling the effects.

Yeppers it is hot here for sure.

I am on a couple new meds that my body hasn't adjusted to yet and they seem to send me for a loop <G>

I hope to assist this weekend at Nathinal Hope Make n Smile. It's an event for kids with special needs at Lake Eola. You can be a buddy where you are matched up with a kid and their family, go around with them a few hours to see exhibits, booths, fun things etc..... Or can be a volunteer to do whatever is needed. I registered to be a buddy. Of course now the news is saying 50 percent chance of rain on Saturday. grrrrr. If it does rain I know they have the event anyway, just not sure how I can manage it while keepingn the chair protected from the rain. I so hope I can be a buddy and help a kid and their family have some fun.

It feels today should be thursday or friday, i guess cause Monday was a holiday. I went to Busch Gardens on Monday, had a good time. Saw neuro in St Petes on Tuesday. And today overslept thanks to these new meds, and then been working on some projects/tasks needed with job.

Staying inside for most part and working from home. I did step out a minute and wow hot out there.

Placed an ad in newspaper to run on Sunday and next week in hopes of selling my scooter.

The chair is working out great and I am getting more and more used to operating it. Getting a little more confidence each time I go and about using the chair.

ok back to work for now.

hope you are feeling better and getting rest today.

 

[mom x4 grandma x4]

morning Marsha,
well my knee is better but i have soem virus or soemthing now. I have been having chills, fever, and very achy muscles. So I am laying down as much as possible today. I havnt had a virus in years. Hope I dont get another one for many more years!!
Better now than the end of June when we have a cruise to do.

Your cruise is getting so close too!!! I'm sure your kids are all excited and packed to go!!! I think they have more clothes than I do!! Hope you take lots of pictures to share while your cruising.

well I need to kick back and relax for awhile. I feel aweful!!!

I will check back later.

kathy

 

[brady961]

hiya kathy
you better rest and drink lots of fluids. that should kick out any virus you have or trying to get.

hope you feel better soon.

yes our June cruise is just around the corner.

I went to a outdoor sports store today and bought a hat, shirt, pants (that you can zip off legs to have shorts) all with 50spf protection. shirt is long sleeve white. I can use all these items for the cruise while on the beach, going to parks, or anytime going to be outside.

I have so much to get done for work in creating review tools. I have only completed two and have about 15 more to still do by end of tomorrow. So guess i better get back to work now and into the night.

later gator

 

[mom x4 grandma x4]

morning Marsha,

well i am still feeling off today, but better than yesterday.
got to rest a couple more days

Just wanted to say hello and keep us bumped up.

kathy

 

[brady961]

really hope you get to feeling much much better soon. rest and take care of YOU.

suppose to get some rain which we need. but of course tomorrow i am volunteering to be a buddy at a special kids events in Lake Eola. I think i have rigged a poncho/s to cover the chair so I can still go be a buddy.

been a rough week emotionally for me after seeing my primary last week and my neuro this week. neither give much hope of improvement and are amazed at how fast things are progressing. i think hearing and seeing them knocked some denial out but of course i prefer staying in the denial <G>

Both think i should start to consider going on disability but im just not ready for that. for me it would like giving up another part of me, and i have and am already losing parts of me that I am still trying to accept.

ok sorry for the downer. i want the rain this weekend but praying it holds off on saturday until after 3p <G>

take care of YOU!!!!!!!!!!!!!!!!!!

 

[mom x4 grandma x4]

Hi Marsha,
Hey I think being in denial can be good for some people. i have always believed your mind can do marvelous things for your health that doctors and scientists cant explain.
I have 3 people that I know who stayed in denial with their illnesses. One lived over 30 years beyond her time according to the doctors, my FIL lived 5 years beyond what he was told, my dad was 3 years longer and I have 2 friends with MS who were told 5 years ago they would be in a wheel cahir within 6 months and would never walk again. Both are stubborn and said NO way!!
It has been 5years for both and both still walk and get around very well. They of course do have some problems but one still works and travels and raises her kids, the other doesnt work but rides a bike, hikes, camps and rides 4 wheelers. Their doctors cant believe it.

So NEVER give up and if being in denial helps with that, then more power to you!!! Yours is so different it could actually do into remission instead of getting worse at anytime. Only God knows for sure.


I say keep working as long as you want to!! Phoey on what others say about it. it's your life, if you want to work and can do it, then go for it!!

well we have had a couple of quick showers but nothing to really count so far. I am hoping for down pours tonight. Then clear for your fun events tomarrow.

I am feeling better tonight but I can still feel it, so will take it easy for a few more days. I hope nobody else gets it too.

I am going to take a hot bath to relax and then get ready to watch the POC movie on TV tonight. I know I wont stay up for the enitre show but will watch a few minutes of it. I own the movie so no loss by not watching it all on TV.

I will keep my fingers crossed for you tomarrow. Let me know how it goes.

kathy

 

[brady961]

thanks kathy

sorry to hear you still aren't back up to "normal". hope this virus clears up quickly and right that no one else gets it.

where and what time is the POC movie playing tonight?

I need to relax tonight.

OOO I got my luggage tags today for the June cruise. Plus got the Fl res rate. I did tell you a friend is going with me right? Well, she contacted me today and is going with me in Sept on the 7 night too WOO HOO.

She can't go in March so I will room alone but will find you guys around <G>

Ok its time to sit back, relax, and rest emotionally as well.

hugs

 

[brady961]

well the special event for this weekend has been postponed thanks to tropical storm barry. I am sad yet grateful that I don't have to get my chair out in the rain, or not even be able to go due to rain.

It will be rescheduled so I can be a "Buddy" at that time. It's a great event for kids with special needs, i.e. medical, physical, etc..... So I look forward to finding out the new date and hope I am able to participate by being a "buddy" to a special kid and his/her family.

so guess i will read, sleep, rest etc... this weekend as I have no desire to get out if it's raining.

nite

 

[brady961]

Morning

I slept in since the event was cancelled. Actually I would wake up check weather, go back to sleep, wake up etc.....

So glad we finally got some rain and hoping this helps put out some wild fires.

Tomorrow is to be a nice day. not sure what I will do today as the rain for our area is not hit and miss. little windy still. Wondering if should to go the mall just to get out of the house. Or maybe go tomorrow. dunno.

hope you feel better!!!!

 

[mom x4 grandma x4]

Hi Marsha,
well I thought I was doing better but last evening about 8 my stomach got upset and then the chills hit really bad. Took an hour before I could even get up the stairs to bed.
I was shaking so hard I couldnt even brush my teeth, so just crawled into bed fully clothed accept for shoes.

I was so sick all night. Greg even got up to help me some because I couldnt manage on my own too well.
Anyway this morning I do feel better, just a headache and am very tired from almost no sleep last night.
I am doing NOTHING accept laying around all weekend. Only getting up to go to the little girls room.
Since Greg is home he will do everything so I can get complete rest.

Minnie actually stayed by my side the entire night. She curled up next to me in bed and refused to leave. Everytime I would move even an inch she raised her head and looked at me as if to say , are you ok mom??
Guess she sensed I was ill. She didnt leave my side all morning accept to go to the bathroom too.

well time to put the computer down and rest more. I use a laptop so it is easy to get online and still be laying down or kicking back relaxing.

Hope you have fun at the mall, which ever day you go.
I was so happy to hear your friend will be going on 2 of your cruises with you and you got the Fl. rates!!! AWESOME!!!

I will try to check back this evening to see what is happening here.

kathy