i had surgery recently and now have an ileostomy. I have a few questions (even though I’ll be going next year)
1) I wear cut to fit baseplates when security checks my emergency supplies (which has a few full changes including baseplates and bags) will my dull scissors be allowed in?
2) will they rummage through my supply case or will they look and see it’s ostomy supplies and be satisfied (I keep it pretty well packed and it’d suck to have to reorganize it)?
3) I understand I wouldmaybe qualify for a DAS so I could empty my bag before I go on a ride (so I wait outside the line) would I be able to go on a ride which the line is short while I wait for my return time? This is for my kids and if I’m confident in my bag- I am also not asking if I DO or DO NOT qualify-There’s a lot of focus on me getting a DAS period, that was not my question. Not only that but there are several reasons why the DAS would be helpful in my situation-my bags pop, my bag fill quickly and without notice so emptying before waiting in a long line won’t always work, I still have my colon with active disease and urgency issues with that. Please don’t give me uneducated answers about a question I didn’t even ask and certainly do not tell me to time my “potty breaks” I have an ileostomy and there is no “timing” and having active disease in my colon, again there’s no “timing” thanks
4) swimming with an ostomy (as a general question) do I need to tape down my edges or do anything special to prevent leaks? Change out my 2 piece to a one piece while swimming then back to my 2 piece after?(I feel like thatd be rough on my skin though, maybe I should tape around the rings?)
5)any tips for doing Disney or flying with an ostomy? Right now I’m in a 2 piece but I wear a one piece sometimes.
6) do I need to show tsa my ostomy supplies with my small travel scissors or can I keep those in my personal item? (ATM I used rings and no paste but I do use stoma powder and barrier spray)
Thanks for your answers. I’ve dealt with crohns for 10 years and thankfully have been in symptomatic remission everytime we’ve done Disney so I haven’t used the DAS but it’d suck if I waited in line, my bag filled and I had a massive blowout while on a ride. I wear ostomy wraps from Ostomysecrets so that helps keep the bag supported. Thanks everyone!
*we aren’t sure yet if we’re doing Disneyland or disneyworld so if there are differences between the two please point those out*
1) I wear cut to fit baseplates when security checks my emergency supplies (which has a few full changes including baseplates and bags) will my dull scissors be allowed in?
2) will they rummage through my supply case or will they look and see it’s ostomy supplies and be satisfied (I keep it pretty well packed and it’d suck to have to reorganize it)?
3) I understand I wouldmaybe qualify for a DAS so I could empty my bag before I go on a ride (so I wait outside the line) would I be able to go on a ride which the line is short while I wait for my return time? This is for my kids and if I’m confident in my bag- I am also not asking if I DO or DO NOT qualify-There’s a lot of focus on me getting a DAS period, that was not my question. Not only that but there are several reasons why the DAS would be helpful in my situation-my bags pop, my bag fill quickly and without notice so emptying before waiting in a long line won’t always work, I still have my colon with active disease and urgency issues with that. Please don’t give me uneducated answers about a question I didn’t even ask and certainly do not tell me to time my “potty breaks” I have an ileostomy and there is no “timing” and having active disease in my colon, again there’s no “timing” thanks
4) swimming with an ostomy (as a general question) do I need to tape down my edges or do anything special to prevent leaks? Change out my 2 piece to a one piece while swimming then back to my 2 piece after?(I feel like thatd be rough on my skin though, maybe I should tape around the rings?)
5)any tips for doing Disney or flying with an ostomy? Right now I’m in a 2 piece but I wear a one piece sometimes.
6) do I need to show tsa my ostomy supplies with my small travel scissors or can I keep those in my personal item? (ATM I used rings and no paste but I do use stoma powder and barrier spray)
Thanks for your answers. I’ve dealt with crohns for 10 years and thankfully have been in symptomatic remission everytime we’ve done Disney so I haven’t used the DAS but it’d suck if I waited in line, my bag filled and I had a massive blowout while on a ride. I wear ostomy wraps from Ostomysecrets so that helps keep the bag supported. Thanks everyone!
*we aren’t sure yet if we’re doing Disneyland or disneyworld so if there are differences between the two please point those out*
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