Disney done differently, (BOG dining updates pages 202 and 203)

[lovethattink]

I am glad that chocolate was not the trigger and he can enjoy himself now and then with special treats!

OMG...Boo and Goo saw the monorail picture and want to go back right now to ride it. Jeff took them to the drive in last weekend (I stayed home and slept...did not get much while I was in STL...) and they LOVED THE MOVIE. Both boys (and Jeff, too) are trying to figure out how to go see it again this weekend...

Ooooh! Anakin wants to go see the movie sooooo bad. I think we might take him this weekend. There is so much we want to do this weekend. The new turtle thing at Sea World is another. We need to stop by Universal to take care of our APs. I guess they don't update the credit card expiration date automatically. We have to go there in person. So we might as well stop at a park too.

 

[lovethattink]

My poor little guy had cluster seizures last night. He had to take his magic bullet to calm his brain. He had a few seizures after the pill, then things calmed down.

I knew something was up last night. His behavior was off the charts. I had a coupon for $10 off a $25 purchase at Bealls, so I took him with me to find a shirt. I knew exactly what shirt I wanted as I had seen it there the other day. We got into the store and as soon as we got to the clothing rack where this shirt was, he climbed into the racks and started rolling on the floor. Then hiding from me. I reprimanded him. And tried to get him to help me to find the shirt. I couldn't find it, so we checked other racks. His behavior got worse. Needless to say, I did not get the shirt and we headed out of the store.

At home he came up to me as I was sitting and he choked me. Later in the evening he threw his ball at me which is now high in my closet hidden, and he wacked me with his water noodle, which is also hidden now.

I am wondering if this behavior is from too much stimulation (we were up early transporting Grumpy around and stopped at AK for lunch where he was so scared of the ducks wondering around the tables) or from the new medicine for his anxiety?

Before bed, he was leaning his chin on the coffee table for deep pressure. All things he hasn't done in a very long time. This morning he is back to having myoclonic twitching, not just a little but some are pretty strong jerks.

Except for the ducks, he seemed to have a great time at AK. We saw Russel and Dug, he and Goofy rode PW, then we ate lunch and headed home. He was fine in the car except for mentioning about how horrible those ducks are.

 

[lovethattink]

Grumpy got cap and gown pictures taken with his umbrella school. This was him waiting his turn. The actual graduation is June 1.

As we headed to Dinoland yesterday we saw Russel and Dug standing at the Tree of Life.

This was the first of the sensory issues for Anakin yesterday. The line to see them was long, but for the most part it was shaded. He needed his ear phones to block the noise of the people. While he seemed to love seeing Dug and Russel he said that Dug hurt his head when he hugged him. I asked how and he said Dugs head konked his head when they hugged. This was taken right after that and he looked like he was enjoying them.

He loved this attraction!

For lunch we headed over the Yak and Yeti QS. Goofy got chicken fried rice and egg rolls, Anakin got chicken tenders,grapes, apples and fries. Nothing on the menu looked good to me. So I didn't get anything there.

Anakin and I found a table while we waited for Goofy. Anakin was so scared of the two ducks walking around. He was afraid they were going to bite him because he got bit feeding a duck years ago at a lake near our house. He wimpered every time they came near us. When one went under his seat he nearly jumped out of his skin. I looked for other seating, but there were birds and ducks scattered throughout.

When Goofy came back with the food, I headed down the path to get Teriyaki chicken! It was sooooo good!!

Goofy said the chicken friend rice was mediocre. He had to keep adding soy sauce to it to give it flavor. He said he will NOT order this again.

He also ordered 2 egg rolls, one for him and one for me. He loved these and said next time he will skip the fried rice and get himself 2 egg rolls. They were filling and very tasty!

The fries had some kind of seasoned salt on them. They were thin cut fries. We really enjoyed them!

My chicken was worth the extra walk! Back in December I got them and posted pics. They had sesame seeds sprinkled over top of them. I ended up picking them off, so I asked for mine this time without sesame seeds. I was informed they no longer put the seeds on top. In fact, they didn't have any sesame seeds at all.

After lunch we headed out of the park and home.

 

[mommy2mrb]

Sorry Anakin had such a rough night....hope he can rest today and the twitches stop!

Grumpy looks very handsome in his cap and gown!


love the photo with Dug and Russel.....those ducks and birds can be annoying, people really need to stop feeding them!

 

[mickeystoontown]

Oh man, I hate to hear that Anakin's seizures were back last night. Like you, I wonder if maybe the anxiety and seizure meds "don't like each other" (that's what John's doctor used to say ). Maybe you can put a call in to the doctor and see what he or his nurse think.

 

[pwdebbie]

I generally read but don't post. I'm sorry to read that Anakin had seizures again.

I am curious as to whether fluorescent lighting may affect him. My dh cannot shop in one of our local stores because the lighting messes with his head. I've heard of others who have seizures because of the lighting in that store and avoid shopping there. In fact, just last night there was a call for an ambulance there because of seizures.

 

[momabaarjo]

What a rough day for both you and him! Lots of hugs!

Grumpy looks so handsome in his graduation cap and gown. It is amazing how time flies so fast! Has he decided what he is doing next year? Did you ever get the college thing straightened out...with the testing and the admitting?

I think a fear of ducks is a pretty normal thing (although probably esculated for Anakin). Ab was bitten once by a goose when we were feeding them at a lake and to this day refuses to feed the darn things! Boo takes his fear out on them when he hunts with dad now... And Goo well he is now in the stage he would rather scare them then the other way around.

 

[mommy2mrb]

happy we got to talk a bit yesterday...hope Anakin was able to work through his anxiety about the room and you got settled in without Goofy's help! have a great time at the parks this weekend!

 

[kaoden39]

Hi there!


Sorry to hear about the rough night. I hope that the dr gets this under control and I hope whatever is causing the behavior change straightens out.


The chicken looks great. Kody loves orange chicken and will eat it every chance she gets.


Grumpy looks so nice in his cap and gown. It really brings out his eye color.


I totally get the duck fear. I was bit by a duck as a child of about 3 or 4 years old I was bit by a duck. To this day they still scare me.

 

[englishrose47]

Sorry to hear about Anakins seizure activity !! Hope it all gets straightened around very soon!!!

 

[lovethattink]

Sorry Anakin had such a rough night....hope he can rest today and the twitches stop!

Grumpy looks very handsome in his cap and gown!


love the photo with Dug and Russel.....those ducks and birds can be annoying, people really need to stop feeding them!

He had a very good day yesterday! No seizures last night.

 

[lovethattink]

Oh man, I hate to hear that Anakin's seizures were back last night. Like you, I wonder if maybe the anxiety and seizure meds "don't like each other" (that's what John's doctor used to say ). Maybe you can put a call in to the doctor and see what he or his nurse think.

We are 3 days into the new medicine. No more seizures, but he is behaving differently. I did call the doc office and spoke to a nurse. The med does take a few weeks to work. So going to give it some time.

Looking back at what he did and ate the last 3 really big seizures, chocolate, rollercoasters and sprite were in the mix. The veeg showed that chocolate wasn't the problem. My guesses would be the coasters. so we are banning them for a while.

 

[lovethattink]

I generally read but don't post. I'm sorry to read that Anakin had seizures again.

I am curious as to whether fluorescent lighting may affect him. My dh cannot shop in one of our local stores because the lighting messes with his head. I've heard of others who have seizures because of the lighting in that store and avoid shopping there. In fact, just last night there was a call for an ambulance there because of seizures.

Thanks for posting. Grumpy is in your neck of the woods.

Fluorescent lighting is something he really minds, but never caused seizures before. He has so much trouble at walmart, the grocery store, etc. We usually have to make shopping trips very fast, but this time it was record timing. We usually stick him in a cart out his chair and he can tolerate it longer. He says the lights are painful to his eyes.


Sorry to hear about that store. Does your husband have seizures?

 

[lovethattink]

What a rough day for both you and him! Lots of hugs!

Grumpy looks so handsome in his graduation cap and gown. It is amazing how time flies so fast! Has he decided what he is doing next year? Did you ever get the college thing straightened out...with the testing and the admitting?

I think a fear of ducks is a pretty normal thing (although probably esculated for Anakin). Ab was bitten once by a goose when we were feeding them at a lake and to this day refuses to feed the darn things! Boo takes his fear out on them when he hunts with dad now... And Goo well he is now in the stage he would rather scare them then the other way around.

He wants to be a chef and would love to work for Disney! And yes, time is just flying. Counting down the excitement and deadlines to graduation on June 1!! Everything has been worked out!

Way to go Ab, Boo and Goo! Conquer your fears! I had a goose bite me once too. They sure have a strong beak in comparison to a duck! So do swans.

 

[lovethattink]

happy we got to talk a bit yesterday...hope Anakin was able to work through his anxiety about the room and you got settled in without Goofy's help! have a great time at the parks this weekend!

It was great talking with you yesterday!

Everything worked out great with the room! We arrived at CSR around 2pm. His medicine alarm was going off for the 2nd time just as we pulled up to the security check point. As they guard was checking my ID and marking his list, I gave Anakin his seizure medicine.

We went straight to online check-in and there was NO LINE!! We were handed our packet and on our way to the room.

We have an awesome room! It's a corner room so it has 2 windows. We are close to the quiet pool!!

We brought a few things inside then headed to his neurologists office to pay the remainder of the VEEG bill.

Got a call from Goofy while we were at the office. He said that they found someone to work for the person who called in sick, and he would be at the resort soon!

So it all worked out great!

 

[lovethattink]

Hi there!


Sorry to hear about the rough night. I hope that the dr gets this under control and I hope whatever is causing the behavior change straightens out.


The chicken looks great. Kody loves orange chicken and will eat it every chance she gets.


Grumpy looks so nice in his cap and gown. It really brings out his eye color.


I totally get the duck fear. I was bit by a duck as a child of about 3 or 4 years old I was bit by a duck. To this day they still scare me.

My niece, MIL and FIL love orange chicken too.

When he was little, his eyes looked like they were glowing when he was in a swimming pool!

 

[lovethattink]

Sorry to hear about Anakins seizure activity !! Hope it all gets straightened around very soon!!!

Thanks. We are very ready for things to be straightened out!!

 

[petals]

Checking back in. Sorry I've been MIA from your trip reports for so long been so busy with college work and everything only had time to follow my own. Anakin's practice birthday looks great.

 

[pwdebbie]

Thanks for posting. Grumpy is in your neck of the woods.

Sorry to hear about that store. Does your husband have seizures?

What's Grumpy doing here? I hope he is having fun. Gettysburg? Hershey? Funny, our kids her go to Florida for senior class trips!

No, my dh has not had a documented seizure and wasn't able to tolerate an MRI (tried twice) to see what was going on. He gets extremely dizzy and weak and ends up on the floor. Now that we know this, we make very short trips in WalMart, and he avoids the food side in particular, as that seems to be where the problem occurs. It was someone observing him down on the floor once that clued us in to the issue of flicker rate with the lighting. Since then I have been aware of regular calls for an ambulance to WM for seizures. You think they would do something about it.

 

[Schmoodle]

Hello, lovethattink! I found your report several days ago and have been addicted to reading it through from the beginning. I've only gotten about half way but in that time I've totally fallen in love with Anakin and with you. I have had tears in my eyes reading about his challenges and victories. And since it's Mother's Day, it seems like the right time to tell you what a wonderful Mom you are, and wish you a Happy Day!

You've also reminded me what it is I love so much about WDW. Aside from the face that I adore that feeling of being a kid again, I just love that there is a place where families can come to spend time together that will accommodate whatever issues they are dealing with. I really don't think there is such a place anywhere else!

I can relate a little bit because my DS15 has Aspergers, and although his symptoms are pretty mild, vacations are a big issue with him, too many unknowns. There is a place at the beach we've gone every year since he was born and that's fine, but I remember the first time I took him to WDW. We had to Youtube all the attractions, so he would know what to expect, and he carried ear plugs and a little flash light in case things got too loud or dark. In spite of the anxiety, he had a fun trip, and we've gone back once every year or two since. Now it's such a familiar place, there is no anxiety at all, except for the flight. Over the years, with his sister's urging, he's tried most of the rides and will ride anything but ToT. We are taking him to France this summer, though, and that is bringing lots of anxiety. But we have to go - we haven't been since he was very small, and his grandmother there is very old now and not in great health. Should be interesting...

Anyway, thanks very much for the trip report! I've enjoyed it so much. I get tired of the DIS because of all the negative posts, but posts like yours are a good reminder for everyone to slow down, not worry about big kids in strollers or "healthy-looking" people in ECVs. We all just need to relax and be happy that WDW is there for all of us. Okay, back to reading now.