Hi my son Daltyn who is 6 years old was just approved for his wish trip to Disney our dates are for Sept. Daltyn has epilepsy (so do to his meds can overheat easily), was born with occipital encephlolcele, he has a VP Shunt and has Chirari Syndrome with Arnold 3 malformation. He has had over 18 surgeries since he was 2 days old. His sister, father and myself will be joining him on his trip. We are curious of the must do things in Disney, I have spoke to a few others who have kind of given me ideas on what we need to do etc..
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