Article about Autism

It's a thought-provoking article. Our youngest has ASD, and we definitely try to expose her to everything (well almost everything---I won't try a plane ride or anything else without an exit strategy;) . With sensory issues, we just keep trying things over and over, like restaurants, theme parks, church, etc, hoping each time makes it easier for her next time. We've seen a lot of improvement.
 
I have brain quirks and am a picker. I have quit my church because I MUST conform to their standards. They did not like that I would not wear a dress even though you would never see me in a low cut blouse for example. They wanted me to sit quietly in the pew and pay attention. Right now I am in a horse sim, club penguin, scrabble, two chat rooms, and this board. I do ahve a bit of ADD. I was to grow up and be an adult when nobody ever taught me how to clean a house.

Churches and public places have their rights and people have their rights. But I remember Brother Baldwin who was a trucker's missionary. He asked our church what would they do if a urine soaked man drunkenly came into church and tore it up. He said he would throw him in the baptismal thing (think large bath tub), get him clean, feed and clothe him, and then find a shelter for him while trying to teach him about God and Christ.

The problem is that there is no definite line here. Is it fair to a person to have another person screaming, kicking and piddling while they are dining? "Dear God" is interupted by a person bouncing on pews but is that fair? In my church they bent way backwards for me and for the disabled kids and adults but how far can they go.

I do not know all sides so I take none. I understand from first hand knowledge how it is to be ostracized for being not able to conform to a mold. I also understand the need for the ability to hear a movie or preacher. I have celiac so please so not send a roll flying over my meal. I have a sensitive back so do not touch it or especially poke it. 'OMG they are so mean to kick a kid out of that place!!!" but at the same time you hear "Can I please not be kicked during services" or "That is disgusting and please do not do that while I am eating."

No dividing line and people will take sides without hearing or knowing all the facts. I miss my church. I also know there is no going back until my picking, ADD, SID, celiac, and brain quirks are irradicated. Before judging walk in the shoes of everyone involved.
 
it reminds me of an interesting article i read about taking responsibility for your disability... similar to what disney says about stamina concerns. They have made lines accessible. If you cannot stand in line for a long time, they have given you access to rent wheelchairs and scooters. They do not have to allow you to the front of the line.

I cannot be in the heat for very long, but i do not demand that disney allow me into the front of the line to avoid being in the heat. I just go at a time of year it is not so hot.

I do not have children, so i cannot speak as a parent, but i can say that as a person with a disability, as well as some sensory issues, I get how it is a fine line to walk between my rights and other peoples...
 

It was a good, thought provoking article. I've always tried to onloy take my two kids where thier behavior wouldn't cause problems for other people. On the other hand, autistic kids do need to be with other people, like on t-ball teams, shopping excursions, or movie theaters.

I take my kids to WDW so they can have fun just like "average" kids. I just have to put a lot more planning in for a trip anywhere then most people do. :) If my kids exhibited behavior that impacted anothers experiance, then I would have to make adjustments. When my oldest son was younger, I could only grocery shop for four items a day. That was the length of time I could be in the store before Ben would freak out and start throwing things at people. Heck, he had to ride in the shopping cart until he was twelve! My youngest does better socially, so he goes to more places with me. I think the level of social exposure just depends on the kid. ;)
 
Okay, here goes the bitter sarcasm, I apologize in advance 'cause we've had a very long bad week.

Restaurants are privately-owned businesses and if the owners want to turn someone away, so be it. If the manager of Wal-Mart wants to toss you out, they can, although I wouldn't want the publicity. Our local Wal-Mart hires some people with disabilities, no doubt so they'll *appear* to be understanding, I question their sincerity but Wal-Mart is generally so money-hungry that I suspect you can get away with some inappropriate behavior if your cart is full of electronics. :rolleyes:

However. Churches. Sorry, different matter. We're all made in God's image, even the kids with autism. And from what I know of the Bible, Jesus didn't only hang out with the perfect people. However you treat the lowest is how you treat me. Treat others the way you want to be treated. Hmmm, so WWJD?
 
Amen, Becky.
Do we as a disabled community hear the views that are being expressed? That autistic individuals should be institutionalized? Can we not remember how hard those around us have fought for the simple right to exist? For those of you who don't happen to deal with autism in your daily life, I would ask - Will you speak out to defend the rights of our community when they come for you? When they ban service dogs, or do not provide wheelchair access, or ... Allowing some of the most vulnerable in our society to be ostracized and dehumanized merely sets the stage for "the public" to do the same to others with impunity.
 
However. Churches. Sorry, different matter. We're all made in God's image, even the kids with autism. And from what I know of the Bible, Jesus didn't only hang out with the perfect people. However you treat the lowest is how you treat me. Treat others the way you want to be treated. Hmmm, so WWJD?

Churches are private organizations as well. The child mentioned in the article was spitting, urinating, and physically disruptive. They said he was a SAFETY HAZARD. It wasn't about being different, it was about being safe. How would you feel if this child decided to spit in your child's face? What if the your child got HIV from this interaction? I know that is an extreme example, but the church needs to keep everyone safe before they start saving souls.
 
WWJD is a slang term for What Would Jesus Do? Being a right wing fundamentalist baptist and backslider I can answer that.

My List

1. Jesus would have driven the demons out of that child.
2. Jesus would have healed the child and made him whole with no mental or physical impairments.
3. He would have told a parable or story. He would have used the child to teach others something. I do not know what but that was his bag, using examples from life.
4. Invited the kid and his family to dinner.
5. Saved his soul and given him one of the bestest spots in heaven.

==============================================

People get upset when someone uses the race card like "You did not serve us because of our race, you hate (insert race)". There are many cards out there like gender, age, sexual orientation, size, religion and ethnicity. It seems some people play the disability card. They believe they have rights just because they are disabled and/or they believe they are being singled out because of their disability.

Schmeck said what I was thinking. While we do not know all the facts one fact is clear. There is a limit to what people should endure because of the actions of another person.
 
How would you feel if this child decided to spit in your child's face? What if the your child got HIV from this interaction?
As a former Public Health Nurse and a current Infection Control Specialist, I have to point out that it is not possible to HIV/AIDS srom a spit in the face.

About the article though, I have read quite a bit about the situation and read quite a bit about the situation, since it's happening in my backyard, so to speak. I think it's very unfortunate that the whole thing got tossed into the public arena; it sounded like there was some room for compromise, but once it got to be public, all ability to cooperate with each other was off. It would have been an ideal situation to have an impartial observer/arbitrator. From waht I have read, both are probably guilty of some hyperbole. The situation can't be 100% the way either side has claimed (i.e. in the situation of urinating in the church, one of the people in favor of banning the child said that he urinates in the church in one article. In the same article, the family said that he does sometimes urinate in the church, but he is wearing adult incontinence products and nothing has ever leaked out.)

One of the problems I see in the future (and why I think the issue of institutionalization came up) is that a child with autism who is 18-20 has parents who are getting older. It may be possible to control a smaller child, but what do you do when the child is older and bigger than the adults. Some of the activities that were possible with a younger child are impossible once that same child has gotten older. There do need to be safe and nuturing places for people with a variety of disabilities to go - right now, a lot end up in Nursing Homes that are not prepared to handle the behaviors or the realities of dealing with a young person who could get out of control and hurt other residents. There needs to be something better, that will keep people out in the community as much as possible, not warehouses, but homes.
Some of the 'problem' this family may be having might have to do with families who had access and comfortability with going places/being in the outside world that previous generations of families in similar situations did not have. But, if they don't have the tools to help them successfully navigate out in the big world, they will run into problems when their child's behavior (which is connected to his/her disability) 'bumps up' against someone else's ability to engage in that activity. Some of what people need has been mentioned in this thread already - people are 'reading ' their child and know when he/she is becoming too stressed by a situation and needs to be removed from it - not only because their behavior is annoying others, but because the situation is distressing for the person who has the disability. Behavior can often be communication - someone who has no words to express him/herself may use behavior to do it.
There are people who want their child with autism out in the community no matter what. I know someone who is caregiver for a young man with autism. He enjoys outings like eating in a restaurant - as long as it is fast food and he can get his favorites. He has gone with the caregiver for shopping trips, school plays/concerts and other outings on a regular basis and usually causes no problems (other than some not too loud noises and hand flapping). He needs to exercise on a stationary bike and is OK with it - at home, but his parents want him to do it in a local gym, like other people his age. His behavior is OK as long as no one comes near him (although the caregiver still has to stand by him in case he gets upset by anyone looking at him). But, if anyone comes close enough to grab, he will scream, grab and pinch them. The caregiver sees that as a sign that the activity is just too much for him. But the parents don't and say he has a right to be out in the community no matter what. Who is right?
Well, I have a feeling it is the caregiver who pretty constantly has bruises on her arms from where he pinches her when he is upset.
 
Everyone has consequenses for their behavior. I say, as a single parent of 2 with autism, to treat every shopping or church event as you would a homework assignment. You have to behave until the task is complete. If the behavior gets out of hand by all means remove the child from the situation, but that doesn't mean never try again. All they learn is the same lesson a spoiled child learns in the candy isle of the grocery store. (If I scream here I get candy...)
My DS no longer goes to church. His behavior was so disruptive I was afraid another child would be injured. (This was when he was 2!) My DD was a little different, not that she didn't exhibit behaviors, but she was non-violent. I sent her to church school anyway. My mom went with her just in case a problem arose. She at first hid under the tables in church school, but she realized that the other kids got juice & cookies by sitting in their chairs. Soon, she was sitting in the chair. Later, with her photographic memory, memorizing books of the bible for treats.
I take my son to outside events at the church now. Church picnics, Christmas tree lighting, Spring flower planting, Easter Egg hunts, we have also sat outside waiting for his sister on occasion. He likes the music.
My son is now able to help with shopping by pushing the cart. He still has his quirks. We can't always complete our shopping in one trip, but he can tell me he needs to leave now. I never shop alone with him. I always have an extra set of hands, because I am afraid of the unknown. Someday he will have to shop for himself, make requests, even answer questions like "do you want fries with that" somewhere.
If it is true that 1 in 150 children are diagnosed with autism, that is a heck of a lot of adults that are going to be running around not understanding how to behave long enough shop in a store. Who will be paying for their care? I think we need to be a bit more tolerant of a tantrumming child the next time we see it knowing that the parent is doing the best they can. These children didn't come with instruction booklets & there aren't always experts to consult.
 
Sue, are you sure that HIV is not carried in saliva, because I was sure it ws found in all bodily fluids besides urine. Also, I was taught that getting HIV on any mucous membrane (tear duct, nasal passage, mouth) could transmit the disease. There was a documented case of HIV being transmitted through a shared toothbrush, among children, wasn't there? Or was that found to be false?

I do not believe anyone should be banned from any activity based on a diagnosis. Nor do I believe that church has to be completely silent. I invited every baby I knew to my wedding, lots of little kids too. People sounds are a joyful sound. I do believe that safety has to come first in any situation, though.
 
I have a son with Tourette's and Asperger's Syndrome. As a parent I am thankful for the accomodations his schools gives him. I also want to make sure he is not disruptive to others. I always warn his teachers about his vocal tics. He is tested in a separate area so he won't distract others. I think it would be unfair for me to insist he stay with his class and disrupt others, even though it is not something he can help.

I know what parents go through with this. I am thankful that my child isn't violent and has learned through therapy to control melt downs. However, I still do my part by warning him of peotential meltdown situations and getting him out of public places when one is coming on. It is common courtesy, just like removinga crying baby from a theater or a restaraunt.
 
Sue, are you sure that HIV is not carried in saliva, because I was sure it ws found in all bodily fluids besides urine. Also, I was taught that getting HIV on any mucous membrane (tear duct, nasal passage, mouth) could transmit the disease. There was a documented case of HIV being transmitted through a shared toothbrush, among children, wasn't there? Or was that found to be false?

I do not believe anyone should be banned from any activity based on a diagnosis. Nor do I believe that church has to be completely silent. I invited every baby I knew to my wedding, lots of little kids too. People sounds are a joyful sound. I do believe that safety has to come first in any situation, though.

I believe that HIV can be found in saliva, but not in sufficient quantities to pass it on. And it cant be spread saliva to saliva (otherwise kissing a stranger would be dangerous, and we've all done it). i think it could possibly be spread saliva to blood, but I am not sure about that either...
 
Sue, are you sure that HIV is not carried in saliva, because I was sure it ws found in all bodily fluids besides urine. Also, I was taught that getting HIV on any mucous membrane (tear duct, nasal passage, mouth) could transmit the disease. There was a documented case of HIV being transmitted through a shared toothbrush, among children, wasn't there? Or was that found to be false?

I do not believe anyone should be banned from any activity based on a diagnosis. Nor do I believe that church has to be completely silent. I invited every baby I knew to my wedding, lots of little kids too. People sounds are a joyful sound. I do believe that safety has to come first in any situation, though.

I am quite certain.
There are elements in saliva which actually deactivate HIV, so it is very unlikely to transmit HIV. Contact with saliva (or spitting) is not going to be able to transmit HIV - there are no cases that have been spread that way.
Contact with saliva that has grossly visible blood (like during a mouth injury that caused visible blood) might if the bloody saliva went into the exposed person's eye (which is hard to hit because it is small 'target' protected by the blink reflex ) or the mouth (which would have to be open and is protected by the disease fighting properties of the exposed person's saliva).
Toothbrushinh is a different situation. During toothbrushing, the brushing often causes small cuts or abrasions, which will often bleed. The blood can be on the brush bristles. If the first person to use ythe brush had HIV/AIDS and had detectable amounts of virus , someone else who uses the same toothbrush quickly after that could possibly be exposed.
 












Save Up to 30% on Rooms at Walt Disney World!

Save up to 30% on rooms at select Disney Resorts Collection hotels when you stay 5 consecutive nights or longer in late summer and early fall. Plus, enjoy other savings for shorter stays.This offer is valid for stays most nights from August 1 to October 11, 2025.
CLICK HERE













DIS Facebook DIS youtube DIS Instagram DIS Pinterest

Back
Top