Anyone diagnosed with

Stick People

Mouseketeer
Joined
Apr 2, 2007
Messages
124
Arterial Ventricular Recriprocating Tachycardia? Do you do meds or did you just do a pacemaker?

I'm 41, been on meds for about a year now and have breakthroughs every day. Now they want to install a pacemaker and I am scared:scared:

Anybody else?

Thanks!:hug:
 
I'm going to move this to our disABILITIES Community Board. That board is more for general questions.

:grouphug:
 
Hi there!
I'm not familiar with your condition, but my 4 year old, Harry, had a pacemaker implanted at 18 months for complete AV heart block (result of a virus he had at 6 months old). Even at that young of an age, he was happily bouncing around in his crib at the hospital just 12 hours after surgery (with a chest tube in), and he was released from the hospital only 36 hours after surgery!!! When we came home, (just 36 hours after surgery, mind you), he ran laps around the living room laughing--this is a child who had never taken more than 10 steps without getting dizzy and falling although he had been walking since he was 10 months. He simply feels great with his pacemaker!!! He will always need the pacemaker, and I'm told that his next replacement (age 5-7) will probably be an outpatient surgery. I guess what I'm saying is that for our son, a pacemaker wasn't so bad :) --it sure beat the "alternative"--we won't go there. The surgery was the "worst" part, and even that was quick. And now he only has to see the cardiologist every 6 months and do a "phone check" every 3 months between visits. It's really quite "easy". We did have a few "hitches"--getting the rate set at the appropriate level and eliminating "pocket pacing" which woke him at night, but those were relatively minor issues and were cleared up within 2 months. And I think that our largest battle now is avoiding sports and activities--like contact sports and typical little boy pushing/shoving/wrestling--that could result in a trauma to the abdomen (that's where they put pacemakers in the "little guys"). So if you do need a pacemaker, I hope that sharing Harry's story helps take the fear out of it for you. It has really greatly improved the quality (and probability) of his life!!!
Magical wishes and prayers!
 
Thank you for sharing your experience - what a brave little guy. Im just a big chicken;)

All the best to your family
 

You're not a chicken at all! I was terrified when we had Harry's diagnosis, and I wasn't even the one having surgery!!!
PS--Some 'words of wisdom'?!?? I told Harry about your post, and he said "tell her it's ok--you can still play tennis and swim. Just tell her no football, no swinging on her belly, and no sliding on your belly!"
 
I know it sounds so overwhelming but I want to tell you about my grandpa. In 1975, when I was 5 years old, my grandpa collapsed while singing in the church choir. It was very scary, they couldn't find the cause right away. After second fainting episode a week later, they found cause. He was diagnosed with stokes-adams which meant that he didn't get enough circulation to his brain because of a heart arrythmia. He got his first pacemaker back then. I can remember when microwaves first came out, he had to leave the room whenever it was on ;) He had an infection once of the pacemaker site because it didn't heal well, he was on blood thinners because he had a blood clot in the artery behind his eye blinding him in that eye. They moved the pacemaker to the right side of his chest after that and he had no problems with the pacemaker after that. He died of prostate cancer last year, his heart was fine. In those 31 years he got to see my aunt get married and have 3 kids. My 2 brothers were born and he also me and my oldest brother get married. He saw my 2 kids. If it wasn't for that pacemaker, we would have lost him back then.
 
You're not a chicken at all! I was terrified when we had Harry's diagnosis, and I wasn't even the one having surgery!!!
PS--Some 'words of wisdom'?!?? I told Harry about your post, and he said "tell her it's ok--you can still play tennis and swim. Just tell her no football, no swinging on her belly, and no sliding on your belly!"

:rotfl: What a little sweetie! I tell ya, kids really smack some sense into you sometimes, don't they?!

All the doctors tell me it's no big deal anymore but i just remember all the "beware the microwave" stories. I also had an uncle, now we're going back quite a long while, but he passed from complications from his pacemaker and that is just sticking with me.

Your little guy sounds like he may just change the world someday. What a great attitude! And tell him the swinging on the belly part, should'nt be an issue for me (my bellies way to big to swing on anyway;) )but I sure hope he dosen't miss it too much!

Peace to you and give Harry a hug :hug: for me and tell him thanks for being so brave, he has inspired me.:thumbsup2

I
 
Harry just loved the "rolling with laughter" emoticon! (He has insisted on saying prayers for you each night, and at dinner, so he was glad that you were laughing instead of "scare't"!
 



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