Any one with Thyroid issues?

I've been taking Synthroid for over 10 years and swithched to the generic when it became available a couple of months ago. I do not feel any different and the pharmacist assures me it's the same. I will be setting up an appointment for bloodwork in the next month or so and will see how the results are. My regular doctor has been monitoring me for a long time so I haven't needed to see the endocrinologist in 10 years or so.

Everything has been under control and my bloodwork has been in the normal range since the first year of use. I am more sluggish and have a slower metabolism than others without a thyroid problem. Doctors say as long as your counts are within normal you shouldn't have a weight problem, but those of us who have had hypothyroidism for a long time know differently.

Nancy J
 
Nancy J,

Congratulations on losing 25 lbs.!

It's very hard to lose weight ~ and with a thyroid issue, it's near impossible.

Best to you,

Laura
 
Hi everyone!

Thanks for posting your dealings with hypothyroidism! I was beginning to think I was crazy. I cannot lose weight and I keep thinking it's my thyroid - that even though it's within "normal" range, it must make it harder for me to lose than someone without a thyroid issue. Do you guys think that is true?

Basically, I was diagnosed hypo as a fluke when I was about 20 - they were searching for answers to another medical problem. Anyway, I was on the 25 does for many years. When I was pregnant, I was up to 85. Now it's been absolutely crazy and I am up to 100. I still think it's off, and will see soon since I had more bloodwork done yesterday. Even if it's within what they consider normal, can't it be abnormal for me?

Sorry this was so long! I don't usually read these boards, but I think I am going to stick around. I am considering joining Weight Watchers also (any thoughts on that?). I just have to do something! I went clothes shopping today and came home very depressed.

Thanks for listening!
Kristi
 
Originally posted by Kristi1357
Hi everyone!

Thanks for posting your dealings with hypothyroidism! I was beginning to think I was crazy. I cannot lose weight and I keep thinking it's my thyroid - that even though it's within "normal" range, it must make it harder for me to lose than someone without a thyroid issue. Do you guys think that is true?

Basically, I was diagnosed hypo as a fluke when I was about 20 - they were searching for answers to another medical problem. Anyway, I was on the 25 does for many years. When I was pregnant, I was up to 85. Now it's been absolutely crazy and I am up to 100. I still think it's off, and will see soon since I had more bloodwork done yesterday. Even if it's within what they consider normal, can't it be abnormal for me?

Sorry this was so long! I don't usually read these boards, but I think I am going to stick around. I am considering joining Weight Watchers also (any thoughts on that?). I just have to do something! I went clothes shopping today and came home very depressed.

Thanks for listening!
Kristi

You're not crazy, but your thyroid can make you think you are! I can't count how many times my GP told me I was depressed and it wasn't my thyroid because my "levels" are normal. I haven't gained weight in 6 years (except for pregnancy), I just can't get it off. I've seen a nutritionist, joined a gym (and went 4-5 times a week on a specific weight loss program) and couldn't lose. My endo. is trying to get the right dose for me now, but it takes so long before he can test again. I'm anxious to have another child, but want to get my thyroid in check and lose some weight first. People who don't have hypothyroidism don't understand the struggles we go through. I don't think a lot of dr's do either. I try not to shop for clothes anymore because, for once, my GP would be right in telling me I'm depressed:tongue:
Good luck!
Dawn
 

I hope no one minds me bumping this back up but I could use a little support myself. I've really been struggling with losing weight for the last 3 or so years. I spent 15 months on Weight Watchers and had great success the first 3 months and then BAM, I started exercising and didn't lose another ounce for over a year (I didn't lose much in the way of inches either, and I have a LOT to lose). I went to see my doctor and she told me I was doing the wrong kind of exercise (biking and swimming in the summer, water aerobics class and worked with a personal trainer in the winter) and that I should do curves. She also told me I had to be lying to myself about what I thought I was eating. Did I ever eat when I was stressed? I said yes, who doesn't? She wanted to prescribe prozac for me.

Anyway, we started househunting and dealing with a move and life got crazy for a while. We moved in May and I joined Curves with a friend of mine and was doing great... again, exercising 5 or so times a week, I was doing a combo of south beach and WW (following the south beach way of eating but keeping a WW journal and counting points) and nothing after 3 months. I started trying to see a different doctor up here. I went to one who essentially told me that curves was bad and that I was eating the wrong kind of oatmeal. :rolleyes:

After being highly discouraged I finally found a doctor who has absolutely no bedside manner but was interested in at least trying to figure out what was wrong. She ran some tests and in the meantime I started reading up on thyroid stuff. Of course I'd been focusing mostly on the weight issue, but it turns out that I have a lot of other symptoms (attributed to other things by various doctors). The fatigue is the worst (of course docs say "lose weight and you won't be fatigued"), but I am also freezing all the time (I never was before the last couple of years), I have really awful dry skin on my legs and hands (I'd forgotten how bad it was because I am in the habit of always applying lotion). The other thing is that in spite of the fact that I've been eating a really healthy diet for the past several years (lots of whole grains and lean proteins, fruits and veggies and good fats) my LDL cholesterol has been creeping up.

Anyway, my doctor referred me to their diabetes center and an endocrinologist there and he reviewed my numbers and put me on a lowish dose of Synthroid. From what I've been reading, some less conservative endos are considering a TSH of 3.0 to be the upper limit of normal rather than the old 5.5, and mine was 2.94. The endo said whatever "normal" is, mine is not optimal and I could need a boost. On the other hand, he didn't want me to think that this was a magic bullet or anything and that metabolic issues are so underfunded and understudied, it may be something else that they just don't know how to address... but certainly given my symptoms, he is hopeful that getting my TSH to more optimal levels will help alleviate the symptoms.

That was last week and yesterday I went to a nutritionist. I've been at this for long enough that there was nothing she could really say that I haven't already researched on my own, but she does want me to keep a food log to show her in 6 weeks so I am back to weight watchers and trying to eat healthy (ie no processed crap). Today was my first day and I KNOW it's too soon to expect any results (only been on Synthroid for a week, it will take a month to see where my levels are and then possible adjustment).

I guess I just need some encouragement. Somehow it seems really unfair that I have SO much weight to lose (a whole other person) yet no matter how hard I work I can't seem to make any progress. I'm afraid that even though I have read lots of stuff on the web indicating that people with TSH levels over even 1.5-2 can exhibit hypothyroid symptoms and benefit from some replacement therapy that it won't help me one bit. I'm not talking about being able to lose 2-3 lbs/week or anything but even to be able to make steady progress of just .5-1 lb/week would be a godsend at this point. The nutritionist did say that they get lots of people with numbers "more normal" than mine who benefit from treatment and that she is pretty confident it will help, but I'm still scared as I have no idea what my next move after this would be.
 
It sounds like you have a good doctor! I'm glad to hear that your endo said whatever "normal" is, that you're not optimal. I think it's easy to get caught up in the "well it's in the normal range" type of thinking. If there was an exact "normal" then it would be a specific number not a range!!!

Like you said - don't expect sudden changes. What might happen is in 6 weeks from now you realize that you have more energy or something like that. It slowly creeps up on you. :)

Make sure you take your medicine properly and at the same time every day...don't take a generic (although your endo probably didn't prescribe one anyway)...

That's all my tips! Good luck! Post or pm if you have any questions or need support!
 
Thanks so much for starting this thread. I always feel as if I'm alone or somehow "failing" at every weight loss effort I make!

Although my GP insists that my med levels are "fine" and tells me that my thyroid has no effect on my weight, I KNOW he's wrong!!! Prior to being diagnosed with Graves Disease in '91 and having Radioactive Iodine treatment, I had lost 25 pounds and reached my goal at Weight Watchers. After the treatment, my weight ballooned back up and then some! I managed to lose 20 lbs on Jenny Craig prior to my '94 wedding, but after having my DD in '96 (gestational diabetic pregnancy) losing weight has become almost impossible.

As others have stated, some programs start out well, but the "plateau" effect kicks in very quickly. Exercise also makes no impact. It's so discouraging - I feel that I'm stuck at this weight whether I'm watching what I eat or eating whatever I want. I tried South Beach this spring, which worked really well for about 3 weeks - then plateau again. After becoming totally depressed about it, I returned to my regular eating habits but decided I was only hurting myself. I've gone back to WW yet again a month ago and have lost a grand total of ... 1.8 lbs!!! Not much when I've got over 60 to lose!

As another poster suggested, I may try combing the South Beach eating plan but counting the points. The accountability factor at WW is something I need right now.

Thanks for listening ... BTW, it's interesting that several of us are from Ontario!

Arlene
 
Arlene, my endo. (who is GREAT) recommends South Beach, but discourages Atkins, if that helps any. And hey, a loss is a loss - whether 1.8lbs. or 18lbs. - you are not gaining, right!

My numbers finally are around 2 (lowest it's ever been, I think). I was so encouraged by those numbers, that I started WW three weeks ago and have lost 6 lbs.!

I see my endo on the 16th of this month and I am going to TELL him that I need more frequent bloodwork (once a year is not enough for me - my thyroid has been crazy since I had DS) and that I feel great when my level is around 2. Normally, they won't up meds for me even if it's hanging around 5 and I think that was my problem for years!

Kristi
 
Kristi - do you mean your TSH levels? That's great that you have an endo who listens to you! I've had a few that strictly go by the numbers and not how I feel, that just doesn't work out. :)
 
I guess it's TSH - I always get confused with that and T3, T4...

He really is a good endo - just VERY busy. The ony reason I was even allowed as a patient was because my sister worked for him and I was having problems & preggo to boot. So now I am in! :D I am just going to be more assertive this appt. and let him know that I truly feel a 2 is a much better normal level for me, even if a 5 is in the "normal" range.

I am esp. going to let him know since I have been doing so well on WW the past few weeks!
 
It still amazes me how different you can feel on the "right" dose! My endo just increased my dose and after about a month I suddenly realized - wow! I have more energy and am happy again! This is the second endo I've had since we moved here a year ago - the first, who came highly recommended, reviewed my history (thryoid cancer, no thryoid anymore, no parathyroids) and then said, "So why are you here? You don't need to see an endo." I found out later most of her patients are diabetics, so she doesn't deal much with folks like us.

I'm sure your endo will be concerned that you have too much but I'm also sure he'll ask you all the questions to check it out. Once you tell him that you're feeling great he'll say "see you in 6 months!" and you'll walk out that door! At least that's what we're hoping, right? :)
 
I did read an article a couple years ago in some women's magazine about thyroid levels. Basically, it said that each individual's "normal" can vary - whether it be the high or low end of the normal range. So, for example, I could have my TSH test at 4.8, which is in the normal range, but my normal could be a 2.0.

Does that make sense? It certainly feels right for me since that's where I am and I feel SO much better now. Didn't know how bad I was feeling until I got down to this level!

This article was suggesting that all women have baseline thyroid tests done in their 20s or 30s for their records. This way, you know what your personal normal is. Mine thyroid has been hypo since I was about 22 and they found out on a fluke - so I have no idea what my levels were beforehand.

I am going to make sure my endo knows how great I feel now and I will stress keeping me around this level - since I now feel "normal!" AND, I am finally able to lose weight too - 2 lbs. a week on average which is safe, healthy & not too fast either.
 
I have been diagnosed as hypothyroid for about 8 years now. At first I tried just going to my PCP, but then I got so frustrated that I went to an endocrinologist & it was the best thing I could have done. They know how to regulate your levels. The 1st MD I talked to about how I felt said I would need to go on diet pills for the rest of my life......that was the last time I saw him!

I had done WW when I was still seeing the PCP. Was being good but the weight wasn't coming off. One week I gained more than I thought I should have & said to h*$% with it.

I started WW again in August 2004. I am now down 19.8 pounds & down about 42 pounds since 2000 [when I was still seeing the PCP].

It feels really good buying smaller clothes!!!!

I would, & I have, paid out-of-pocket to see my endocrinologist.

Good luck.
 
ive had thyroid problems since i was 8 (im 20 now)..
when i was 8, i had half of my thyroid removed, due to a tumor
then it happened again when i was 15..so the whole thyroid was removed..ive been on synthroid for the past 5 years and it is never stable for me..this past month, wehn they checked my blood, this was the first month i stayed on the same dosage 2 months in a row!
 
I went to my endo today. I explained how much better I felt and that I was going to WW and doing good so far. He said my levels (tsh?) were around 2.25, which is good, but that depending on what my bloodwork comes back like, he's going to up my meds to help me with the weight loss! :tongue: I love this doctor! One that really, really listens to what you are telling him! :bounce:
 
I am waiting for my consultant job to turn permanent so I can get better benefits. Then I can go get blood work done to help me with my thyroid.

It's sad, but true.
 
Originally posted by Laurajean1014
I am waiting for my consultant job to turn permanent so I can get better benefits. Then I can go get blood work done to help me with my thyroid.

It's sad, but true.

I'll keep my fingers crossed for you!

Have you been having symptoms, or just haven't been checked in awhile?
 
I've been tired and short tempered and have trouble concentrating. I've had thyroid trouble in the past, so I am prone to it.

Probably around the first of the year, I can get checked out.

Only a month and a half away.
 
That stinks you have to wait that long!

I thank God I have very good insurance and am able to get prompt treatment for my many health issues. Not everyone is nearly as lucky as I am.

Hang in there Laura Jean!
 


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