Amy's Journal: Comments Welcome!

Hi Amy,

Words fail me, and that is a rarely happens. You are such a strong and brave woman. You are also incredibly unselfish. I am glad that yopu can now look at the positive, and see how deep a bond you have developed with your mom. I also think your attitude towards your health is the right one too. You have too many people depending on you to let yourself slide. You continue to inspire me.

Take care,
Beth
 
Thank you Beth and Anna.

This will be quick, I am sorry I haven't gotten to your journals, life has spiraled a bit for us.

We have put my mom on hospice. The oncologist wouldn't do the chemo yesterday but still wouldn't give up. She kept saying to take her home and feed her and bring her back next week. Nurses finally broke down and said its time, put her on hospice. I called the people, they couldn't come out because STUPID oncologist wouldn't sign the order. I was fumed. I talked to her and she said maybe on Monday. This was Friday afternoon after stepdad and I had to drag her from the car after the appointment. She wouldn't even prescribe a wheelchair or more pain meds. Nurse practioner did give me a prescription for a chair at least. So I called the social worker, burst into tears, she got in gear, told me to call the primary care and see if he would give the verbal for a hospice evaluation. Got a hold of his partner and he said he would do it no problem at 8:00 last night. We had a long night of pain, vomitting up blood (very scary but dr. said keep her home as long as she was comfortable because God knows what the hopsital would do if we took her). I thought that night would never be over. Stepdad and I dragging her to the bathroom and finally gave that up. If I had known that oncologists home number I would have called her at 3:00 a.m. yelling. But the hospice nurse came today, its all set, a hospital bed is coming, nursing care and health aide coming tomorrow and I think we are over the hurdle. And my mom seems to feel better, I think taking her to the doctor put her over the edge. Her stomach is settled, and while she wont' eat, she is drinking some which is good. And I fired the dumb oncologist. I have power of attorney and am my mother's guardian. Social Worker and hospice say there is nothing the other doctor can do. I will never feel the same way about doctor's again I can tell you that much.

I am going to stay at my mom's until this over, she has no internet so I probably won't be online too much but I"ll try. I really hope all of you are doing okay as 2008 starts up, please know I think of all of you and will get back to Wishing one of these days. Thank you so much, myself and my family has felt the power of your prayers and good wishes and are so thankful. :grouphug:
 
Amy, your post brought tears to my eyes. I'm glad the nurse, social worker, and primary care dr were able to do what you needed to give your mom some peace. Take care WISH sis. You, your mom, and all of your family are in my prayers. :hug:
 
:hug: Amy,

I am so sorry to hear about the terrible treatment you have had. You did the absolute right thing in firing that woman. Unfortunately, some doctor's allow their own personal beliefs get in the way of what is best for their patients. You and your mother deserved much better than this. Everyone deserves to enter this time with dignity, and you are ensuring this for your Mom. You are a good woman. You and your family are in my prayers.

Beth
 

Oh Amy, I am so sorry for all that you have been going through.:sad1: Please know that you, your mom, and your family are in our thoughts and prayers. :grouphug: If there is anything that we can do for you, please let us know.

Sending our love and prayers.....:grouphug:
 
Amy,

So sorry to hear about such a rough time! Sometimes it seems we know more than the doctors... Sending :wizard: to help get you through this rought time.

All the best :flower3: ,
Stacie
 
Hi AMy,

I just wanted you to know that I am thinking about you. Please don't forget to care for yourself as well.

Love,
Beth
 
Many prayers are heading your way, Amy! :grouphug: I'm hoping & praying that you can have God's peace & strength thru this!
 
Thank you Wish Sisters,

My mom passed away tonight. She was at home, she was surrounded by her family and she is at peace at long last. I feel so empty and so lost. But I got online to email some friends around the country and of course all of you came to mind. I couldn't have gotten through this time without your friendship, prayers and encouragement. Thank you so much. I am so thankful I had this gift given to me of being with my mom her last days. She is gone but that can never be taken from me. Thank God for hospice, those people are heaven sent. I will update soon and get back to all of you.


Thanks so much again.
 
I am sad for you, but glad that your mom's ordeal is over and that she is at peace. Will be praying for all of you! Take good care of yourself & your family!!!
 
:hug: Amy,

I am so sorry for your loss. I am glad she passed peacefully. Know that your friends are here for you during this time. The next few days will be very difficult. I will be praying for all of you.

:hug:
Beth
 
Oh Amy,

Sweetie, I am so very sorry. :sad1: I know how hard this is for you.:hug: I know there will be moments of sadness in the days and weeks to come...Remember all of the wonderful memories that you share and know that she is at peace and no longer hurting.:hug:

Sending our love and prayers to you and your family. Please let us know if you need anything at all. :grouphug: We are here for you. :grouphug:
 
You have my deepest sympathy for your loss. I know this past year has been especially hard for you and I am so glad that you were able to spend some quality time with her these past few weeks. Please know that we are always here for you and will help you get through this!
 
Oh, Amy. I am so sorry to hear about your mom's passing. You have my deepest sympathies. :hug:

Stacie
 
Thank you so much everyone. The last four days have been very hectic and very sad. Having my mother die at home was good and yet at the end it was scary and there was no patient call button. I hope I never have to go through that again.

This event has brought out the best and worst in people. I have received emails, calls, flowers, dinner and so much love from many friends and family. I have also gotten nasty emails and phone calls from my two stepbrothers. It got very, very ugly. It all capped off with me uninviting them to the funeral. This hurt stepdad but he understood and knows down deep I am right. He loves his sons. My mother did not. She loved their children and I am sorry they cannot attend their stepgrandmother's funeral, the oldest granddaughter in particular. But you know what, its my mother. And when someone calls you less than 24 hours after your mother has died and basically tells you that you aren't handling things right, the service is at an inconvenient time and never once says, "hey I loved your mom and she'll be missed" they can go straight to you know where. I am surprised I didn't have a stroke. Blended families really suck sometimes. Other stepbrother said he would come but not speak to my sil, and that his wife couldn't be in the same room with sil. No idea why. Sil is lovely. So I thought you know what, I love my family and my mother too much to have them be treated like this. So I told them "you are not invited, don't come, period. So now I am the bad guy. They should be ashamed. I told the one that when his mother dies, I hope he is treated better. I feel better at least that I stuck up for what I thought was right.

We leave for DL tomorrow. Not packed, Christmas tree still up but I guess we'll get ready somehow. I have mixed feelings, I never would have gone if my mom was still here on hospice. But now she is gone so I guess we will. Don't know how fun it will be but its 18 here tomrorrow and 68 in Anaheim so thats something. And a change of pace will do us all good.

Thanks so much for caring. I will be so glad when this is over. I can't wait to get back to working out and walking. I have been so so with food. Mostly I am just too upset and distracted to eat. But we have been eating out a lot and thats not easy to do well at. Oh well, who cares, I just have to get thorugh this. I wish I wasn't so fat for my mother's funeral. I hate looking like this. I have nothing to wear, I have some nice clothes from the cruise but they are summer clothes. So I'll have to shop for that when I get home and ds who has nothing but jeans and school uniforms. There are so many details, my head is just swimming.

I am off to pack but did want to update you. I am surviving but will sure be glad when this ordeal is all over. A week from Thursday is my Mother's funeral. I just cannot believe she is gone.
 
Hi Amy! I really hope you guys have great time in DL! Hopefully it will help.

So sorry to hear about the Stepbrothers! How rude! Sometimes I just do not understand people.

We're thinking about you and here for you during this difficult time!

Stacie
 














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