SilverLight
Earning My Ears
- Joined
- Nov 15, 2015
- Messages
- 3
Wow. Here I am, posting-in all seriousness- that I am taking my little princes, brave Knights all, our precious and isolated family of five to Disney World for Christmas and to finish 2015 in the most magical way, all thanks to Make a Wish and the glory of God. Some days it feels surreal still, that we are at this point. It feels like it's coming up too soon and I still don't know how I'll prepare us. Part of it is because it's so out of my hands, the Make A Wish foundations is taking care of the trip planning and the world seems to spin into chaos if I can't control it. But that's life, you don't get to control everything. Because out of that chaos the most beautiful things are born. Like my son, our Wish Kid, Chance. After a steadily terrifying two weeks of coughs, sickness, extreme loss of muscle control, and fruitless doctors appointments that finally culminated in a life changing, earth shattering ER visit, Chance was diagnosed with B cell Acute Lymphoblastic Leukemia. He was only four. I'd be lying if I said the road wasn't bumpy, but as I write this he is laughing in his room with his big brother, who had to share his tenth birthday with his brothers diagnosis. He is SEVEN! He.is.the.best. He talks about his trip every day. I worried so much when we were first referred to Make A Wish. When the cancer ravaged his body, it took it's toll on his speech, and although he was an excellent nonverbal communicator, it was almost impossible to understand him. All I wanted for him was to get HIS wish. His one, perfect wish. I might have secretly hoped for Disney, but when we talked about options, I managed to avoid up selling the D word (or the idea of say, a cruise or a trip to Hawaii for that matter). Still, it seemed a no-Brainer for him, "Disney World!" He enthused...
Last edited:
