All is out of control, we are bowing out.

Moderator-I’m sorry for the angry tone to this message. I hope I’m not breaking any rules.

Angry? If anger is an offense, then add me to the rule breakers because I'm furious. How anyone could imply that you did anything less than honorable is beyond my comprehension.

Angry? To think that you feel that you need to step away from the DIS because of this infuriates me. How dare we be denied from hearing about your remarkable family because of some insensitive remarks. You have been such an inspiration, I can't imagine not seeing the Nate updates.

I hope that you reconsider. If something is set up to help sick children on a more uniform basis, your insight is invaluable. You've brought up some important issues. While it's unfortunate that it's resulted in this, imagine what would have happened if you hadn't cautioned us about illegitimate claims?
 
OK I know I missed a lot today but do we know who this false claim is from. It is really scary that people would take advantage of others by using a child.
 
This is very sad indeed. :(

Dear Chris ~
I have the highest admiration for you and thank you for sharing your wonderful family and cruise adventures with our board. Your faith, strength, wisdom, courage, positive outlook, has been an excellent example of what we need more of.

Please do not let one 'rotten apple' spoil all the love, support, faith, hope and prayers you have received from our Dis board. The majority has your best interest at heart and so very sorry if someone said something to offend you or your family. Will keep you in our prayers...God Bless^i^
Thank you for the warning.

~ Sandie
 

Oh...words fail me.

The reason there was such an outpouring for the Page family and for Nate, is when a story is told simply...with love, sincerity and honesty...the truth shines through. We were touched by a situation that seemed so sad, but a family so strong, that we forgot the sadness, caught up in the special beauty of Nate's smile. We were awed and inspired, and felt a part of something special to be included in what many would find so difficult to share.

You are indeed blessed, Page family. Because no matter whether you write here or not, you have touched the hearts and minds of many.
 
I don't know what happened, or what was said, but I am sitting here now totally stunned.
Very few of us here truly know eachother, but I think we all feel as though we know Nate. And I think we all care about him and each other as if we were a family. To not know how Nate is doing will be heart-wrenching. To not be able to offer words of support or prayers when they are needed will be terrible.
We had some problems before our cruise that I shared with the others who were on our cruise, and I received more support, more prayers, more offers of help, and felt more acceptance from this family of board members than I received from "real" family.
For those of us who believe, we have been told that the devil is out there, trying his hardest to destroy our love.....it is our job to stand up to it, and also our job to warn others.
Please don't go, Pagehouse.....we've learned so much through you from Nate's pure heart.

:angel:
 
To all:

Scott and I had the extreme pleasure of meeting the Page family on the cruise. I can say that they are in fact the most geniune family that I know, you can see the love that flows from each and everyone of them! This is certainly no scam! If you believe this then you really need some help!

I was aware of the shipboard account problems-this put pressure on the family but they were not too sure on what to do seeing they did not know how much should have been there. If you did not receive a formal THANK YOU from them, then trust me most likely they did not receive it.

ERIC, CHRIS, DEBBIE (ELLA :) ), NICK, NATHAN and NASH,

You guys will always remain in our hearts and we certainly hope to see you again sometime!

We love you guys!

Dan and Scott
 
Chattykathy,
I'm just about out of patients for today, so forgive me for not being my most considerate self tonight. Under normal circumstances, I would prefer to keep this to a more private arena since I don't make a rule of airy my dirty laundry in public. However, you have chosen to have this out on the boards. While I don't agree with it, you have set the stage. I am going to try and be as polite as my mind will let me, but I'll admit, I'm still taking deep breaths and counting to 10 as I write this.
You have absolutely no right to talk about my son. The people on this board are not the idiots that you must think they are and to put "insert name here" won’t fool them as such. I made no reference to you in my post. Nor did I say anything about the email being sent by someone who has a wish child. I have no interest in pointing fingers and certainly didn't point one at you. If people made an assumption that it was you, that is not my fault. If you felt it was pointed at you, then it's probably because YOU gave them a reason to make that connection. As my Grammy taught me, guilty conciouses worry the most. You appear to be extremely worried even though no one seems to have said anything about you.
(Let me say I'm sorry in advance Disboard family because I am about to be at my most ugly)
You have opened up this line of discussion so I am going to give you my full take on this. I encourage you to keep in mind that I have not once said an unkind thing to you. I have not posted on a public thread one unkind thing about you. You however have posted some silliness about all the messages you sent me. Why you think it's necessary I don't know. If you wish to share the things you say about yourself that is your business, but you've no right talk about my son. The way I feel about you right now, I don't even think you deserve to know his name.
If maw has agreed to grant your daughter a wish, I sincerely hope she has the time of her life. I wish you would remember that ALL wishes that can be granted are done so because people, like those on this board, have donated to wish orgs. It seems very greedy tome to expect more than what maw is offering to give you. I am also concerned that you would shop around to see who would give you the best deal on a wish. I know this is what you did with Wishing Well, regardless of what you want to post. The WW are very good people and have been miracle workers for us. I am very protective of them for that and am not at all happy that you called them to see if they would give you a better deal. You have absolutely no idea what I had to go through to get a wish granted for my son. I was told by several orgs. that they would not grant him a wish. One place because they didn't understand his condition and said all he had was a birth defect. One place because he cannot speak and couldn't thank them for the wish. It goes on and on. That you would have the nerve to shop around for the best deal on a wish is appalling to me. While I am so grateful that you have the luxury to do that since your daughter isn't as disabled as Nate, I am furious that you think you should deserve better than what all other families get. I wish maw could see just how ungrateful you are. How would they feel to know that you have zero appreciation for their generosity? At any rate, I have apologized to WW for leaving them vulnerable to this situation.
I do not know your daughter or anything about her condition. I've heard it is seizure related and I do know a lot about that. I think you should be holding your daughter and thanking God for how lucky you are. Be grateful for maw's generosity and stop trying to encourage these good people to donate to extend your family vacation. It's not right. I've tried to give you the benefit of the doubt and just cant for some reason. You never have spoken about how you want this trip to be memorable. Or how excited your daughter is, or how grateful you are for the kindness of the people on here. You have only complained about your cruise not being long enough and trying to figure out how to make it more convenient for everyone to donate to you. Well Kathy, most people go there whole lives with no cruise at all. I bet 4 days in paradise seems mighty fine to them.
You asked me to be your "tour guide" well then what I would tell you to do is take a step back and think about what you are going to do next. Or better yet pray about it. If your heart is in the right place, then God will lead you down the right path.
If you feel you have been unjustly accused of something, I can only say I am sorry you feel that way. I cannot be held responsible for what other say or think. Again though, I did not ever indicate you in my post. What I do have control over is how much time I waste on this nonsense...that time is just about up. You have caused me to be away from the ones I love for too long already and I've no intentions of giving you that power any more.
DO NOT PM ME, I will not be reading anything else from you. You have crossed a line of common courtesy and I wont play this game with you.

To everyone else on here, I am so sorry you are seeing me like this. All I can say is I know what I know. You all make comments about how strong I am, well most of the time I feel like a fake when you say that because I'm not strong. But I'll tell you what I will not stand for this foolishness any longer.
Mickey- I'm sorry if I disappoint you :(
 
I tried to go to bed and got as far as burshing my teeth before I started crying tears of shame. I am embarrassed to have posted the message above. I am human and let my anger get the best of me. That is no excuse for acting in an unchristian like manner.
I should never have taken advantage of this board and used it as as a means to hurt someone.
Kathy-if your feelings where hurt by my first post, I truely did not intend for that to happen. I had received a message that I needed to respond to and I thought I was doing just that.
My second message was a bit less innocent. You offended me with the PM you sent and then the post you made and I reacted before I thought it through. I should have just ignored the whole thing. I am truely sorry for losing control like that. I hope you can accept my apology. I believe everyone makes mistakes and it is how we deal with them that really counts. Though I stand by what I believe, I should have found a better way of saying it.
 
Chris - it is ok sweetie - sometimes we are so busy trying to do good that we forget to take care of our own needs - just as we just do not know what is what - I know you are not attacking anyone - most of the folks on this board - well they are true blue friends - I am going to repeat a quick story that happened to me when I first started doing gift baskets - I had someone write me that they were going on a cruise and that the daughter was terminal - I couldn't do enough - and I lost sleep over it and cried everytime I turned around over this little girl - well the cruise got over and I was concern about the child - I called the mother and was to learn it was all a hoax about the child - she couldn't afford a basket after paying for the cruise and used her daughter to get a huge basket for her - talk about hurt - wow that got me - now I still do a lot of charity work and I do not regret them, I just am more careful with my emotions before I give the shop away :D
As I told you sweetie - when you allow someone, anyone or anything hurt you that you walk away, you do give your power of yourself away - you hold your head up and you choose friends that are worthy of you - you love those that love you - and those that are not worthy - you just walk away.
I am not speaking about anyone particular and not going to do so, but I believe it is time to come to grip with what has happened to let us get back to business of enjoying life for life is so short and we just never know.
Chris, Ann, Andy, Regina, Dan, Scott, BD, on and on and on too many names to write down - all of you so awesome - how does that song go ' WE ARE F-A-M-I-L-Y" -
Anyhow hugssssssss from here to each and all
With lots of love
Always
Shirley
 
I consider this place to be one of the nicest, friendliest and close knit boards on the entire DIS. If there was a feeling of family anywhere, it lives right here.

What I see now is a good deal of hurt (and anger) and that is understandable enough in the circumstances I think - but I believe now would be a good time for everyone to move on from that.

Please people, let's just let this thread go because if we continue to feed the anger...we only pro-long others hurt :(

JMHO
 
let this thread go because if we continue to feed the anger

Thank you, Penny. I'm always confusing that expression: starve a thread, feed the anger / feed a thread, starve the anger.

***Buckaroo's Dad sneezes*** Darn here comes that cold! NOW what do I do (he asks feverishly)...
 
I don't want to "feed" this problem, but I do want the opportunity to add my opinion.

I was away from my computer entirely for 10 days while I was in NJ watching my mother die, then attending her funeral. So, I missed a lot of what was going on here, on the cruise boards.

When I returned this past weekend I was impressed with Ann's idea to help other children who would be going on "wish" trips, but then upset to actually see a parent of a wish-trip child trying to help orchestrate it all (setting up a way to donate, etc). It just didn't sit well with me, and still doesn't.

Pagehouse (Chris) came on this board with no such thoughts in mind. It all developed because people were deeply touched by her family, her own strength and love for her son(s), and her son himself. All along, I read posts where Pagehouse continually was overwhelmed and shocked at the things that were happening to enhance her family's cruise. I am a very skeptical person; I know 100% that Pagehouse never came to this board "looking" for something like that. She has shared her family's trip with us, and even now when I think of her and her family, I still have that vision of Nate lying on a lounge chair on Castaway Cay, after she had removed his outfit because he was warm......and her DH's reaction that. *happy tears* :*}

I have been a member of this board for almost 3 years and in all honesty, I would not be comfortable accepting anything monetarily from any of it's members. I probably would post about my situation (which thank God does not exist, I am thankful to have 2 heathy children), but would only do so as a way to "talk" about it, not "advertising" for donations.

I do not apologise to anyone, for this is the way I feel on this matter. Initially I had absolutely no intentions of posting on this thread, but as a member of this board, and as a person who donates to "wish" organizations, I feel I have a right to express this.
 
Never in a million years could I judge a parent that is losing a child. I can't even imagine the extremes of emotions, the feeling of a loss of objectivity and the sensitivity that would come everytime someone talked about my child.

There are people here who would like to help these children and would like to clarify that it was not ChattyKathy who sent the original e-mail to Chris that prompted this thread to begin with? Am I correct?

Chris, again, you have been an ispiration and I hate to ask this of you, but if you see anything that raises suspision of a person's motives (something that reminds you of the person who sent you the original e-mail), please let us know. People do want to help, but it's people like that who will discourage people from donating to children in need.

It's a great idea and I'm hoping that some of the ideas that were brought up here can be put into play with safety.
 
Chris and Eric,

I don't know where to begin.

First, I am so sorry for you and your family. You have enough to deal with in your daily lives. You chose to share your personal lives with us. And this is what it has come to. I've never met you, but I've told you numerous times how much you have changed my lives and the lives of so may others. You have inspired and challenged me with my faith and my children.

YOU ARE MY ANGEL IN DISGUISE!!!

I actually thought of not posting after your posts because I thought your words said it all! Again, I am sorry that this hurt has been brought into your family. We do and always will believe in you and your family. We have prayed for you and will continue to do so.

Your family and little Nate has taught my son's kindergarten class how special it is to be healthy. And each of them now understands how we can care about others even if we've never met them before.

I sit here and tears are streaming down my face. I am ashamed that the world can be so cruel to such an amazing and wonderful family.

To the Page Family: May God's peace and love be with you always!!!!

If you ever need anything, please let me know. I hope you don't mind if I continue to send you things in the mail. I only wish there was more that we could do to show our support!!!!


With Love,
Karen



We all love you and your family.
 
Chris, by showing the kindness you have in your heart, and repenting of your anger - however justififed it may be - shows the "strength" that all of us refer to, and wish we would all have.
 
Chris, please dont' leave and please don't judge the boards by this one person. Your families strength is truly an inspiration to many of us. Reading about Nate's struggles and you wonderful DCL brought many a tear to myself and anyone else that I shared the story with. Never once did it seem like you were asking for anything but advice. I'm sorry that stress was added to your life. And don't ever feel the need to apologize for any of your posts, by airing the PM on line, the poster opened themselves up to hearing your annoyance. I for one hope that their story is checked out since something doesn't seem right there.
Take care and know that our wishes are and always will be with you family.
 
Chris, Being a christian allows you peace and forgiveness. Your a Christian, not perfect. Expressing your views and frustration is something you have to do. Your example and how you have carried yourself thru all of this, is a true testament to your faith and what lives in you thru it. I too must admit, as someone who personally has faced illness, had my radar go up reading Kathy's posts. I found myself to be uncomfortable with the way she was throwing her daughter and her illness out there, as if, in my opinion (which I am entitled to) to advance an agenda she had. The fact that she continued to mention how she " was uncomfortable " in posting or suggesting things made my apprehensions even stronger. If you are truthful in your heart and intent you should have no reservations. My sense is she had a preconcieved notion of what her family was going to receive, planned for it, included her daughter in the planning, and when she did not get what she wanted was embarrased and had to rectify the situation. I might get fried for this post but oh well. To all of the sincere people on here, you know in your heart your motives and where your heart is, take peace in that, and I know you are not offended by this post or any other in this thread.
 
Chris, I am almost speechless. I feel so hurt for you. Angry, too.
But, I know that you would not want me to be angry. You have always demonstrated a loving, open heart by letting us love you.

I am glad that you do not want to waste your time and energy on some awful people. You are one of the few people I have met that truly understands how precious those commodities are.

Right now, I am hugging Nate in my heart. Oh, Chris. If only I could somehow show you much you have changed me. When you first started posting here, I was going through a very bad time. From you I learned acceptance. By listening with my heart and soul, I was able to move closer to God.

Just as a stone tossed in a pond, changes that pond forever-so you have changed me. The ripples moved outward and touched everyone I know and love.

I will be in touch with you. Please know that I am always thinking about you and your lovely family.

Give Nate a kiss from me.

With love and admiration,

Little Stinker
 

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