ADHD Meds-Side Effects?

Originally posted by Mishetta
....think about whether you want him "labeled"

As far as the whole labeling thing goes, I couldn't care less. Call him whatever you want as long as he gets what he needs.

My concern relates to the fact that we were heavily pressured to do this last year and resisted and I don't want to:
a)hear anybody say "I told you so"
or
b)get any grief if we decide we don't like the meds and want to take him off them.
 
Well then, for both those reasons you just listed, I wouldn't "tell." It's no one's business anyway. If it works, then it's a win-win for everyone concerned, especially your DS....If it's not a good med for him, then no one has to know you stopped using it or are trying other ones. Good luck to you. It's such a tough thing to do....all these decisions over our biggest treasures on earth.

I would like to add that, as I mentioned before, our school nor teachers nor even friends know that my DS is on meds for ADHD (nor that he has ADHD)...most people just think he's matured since now he acts very different. Anyway, what I wanted to tell you was that one day, my DS dropped his pill & couldn't find it. He never told me for fear I would be mad. So, this particular day, I got a call from his teacher stating that my DS would not focus on the lesson, he was very disruptive & she couldn't get him to sit still all day. She asked if there was something going on at home that she should know about since he was acting so differently. Well, I was shocked & had no explanation. Well, as soon as he came home from school I confronted him & in the meantime I was thinking to myself that the meds needed to be increased since obviously they weren't working as well anymore. He finally confessed that he didn't take his meds since he dropped them!! :eek: What a difference a day makes!!

Anyway, even if you don't tell the teacher, she may figure it out anyway if he can suddenly sit still. My DS started his first day of school on meds so no one knows any different (well...except for that one day when he dropped his pills but we told the teacher later on that he was so excited about the fair that our church was putting on that weekend that he couldn't contain himself..... :o :rolleyes: ) We just don't want anyone to know about our DS's problem at school so I was less than honest.
 
My sons school has know for years about all his problems. In some cases, it has been helpful because they (teachers) have given a lot of input into how he's doing and what they see since I am not there during the day. My son is also the same if he dosen't take a dose one day, you can really tell, not a good thing at all.
By the way, in my previous post I forgot to mention what he is on:
Adderall XR 80mg/day
Eskalith CR 900mg/day
Prozac 40mg/day
Clonidine 0.6mg/day
Synthroid 0.5mg/day
Alleve 440mg/day
 
Just a brief note on the actual taking of the medication. My son takes Adderall XR, it is a capsule and you can open the capsule and put the insides in applesauce or something, this is how he takes it. He cannot swallow pills. When he was on Ritalin before, the regular tablets, they could be cut in half as well. There are possibilties if your child has trouble swallowing.

Erika
 

DH takes Concerta. When he first started he was REALLY tired when it wore off but that has gotten better.

As for telling the school, I wouldn't tell right away. Our ped. actually suggested that. Then when you call to see how he is doing you will get a "true" read not one based on them looking for a difference.
 
New Update:
DS had his worst day ever at school today. The teacher wrote all kinds of notes finishing up with "NOT a good day" on his behavior chart. DH was pretty upset because he really thought after talking to DS at length last night that somehow it was going to be all better. We have all decided the best thing would be to try the meds. We're going to try to get in tomorrow and start them this weekend. We're going to ask the pediatrician if we must tell the school. If we're not required to tell them, then we're not going to. I'll keep you all updated.....you may have to hold my hand through the adjustment period with these meds.

Keep the input coming. Anymore ADHD med info for me? Would you tell the school? How long was the adjustment period to the medications for your child? Anything else I shoud know?
 
Oh dear, I could just hear your frustration. I can soooo relate. I'm so sorry you're going through this. It's just not easy. Starting the meds on a weekend would be great, in case he does suffer adverse side effects.

Another thing, you don't HAVE to tell anyone, especially not the teachers or the school if you don't WANT too. The beauty of Concerta or any long acting ADD med is that no one has to know since they usually only get one dose in the morning. When my DS had started on Ritalin (over 2 years ago), it was only a 4 hour pill. Luckily, he was in kindergarten so it was just half day. Of course, now they have Ritalin LA (Long Acting).

I'm sure your Doctor will recommend starting with the lowest dose of Concerta (which is 18mg.) That's what my DS was on, but after a year, he seemed to need a higher dosage (which is 36mg). Unfortunately, he ate even less when he went on 36 mg so I asked the neurologist if she could prescribe 18 mg pills but issue 60 instead of 30 pills. So during the week (for school) I give him 2 capsules (he can swallow a horse without a problem & infact, he swallows all 3 pills at one time! :eek: ) On weekends, holidays or any day with no school, I just give him 1 Concerta & of course the Clonidine pill.

It took my DS about a week or so to adjust to the meds without complaint of headache or tummy ache or head feeling "weird." (That word scared me!! :eek: ) Then he started developing tics...so we had to play with diff meds until we found the one that was best for him.

Sorry all my posts have been lengthy but trust me, I'm holding back here!! :rolleyes:
 
Originally posted by Mishetta

Sorry all my posts have been lengthy

I LIKE lengthy replies....tell me more!

:hyper: (this little guy is called "hyper"...I think I'll start using him instead of saying DS)
 
You remind me of me when I was debating whether to put my DS on meds or not. I asked anyone I could think of questions & then I kept going over all the answers in my mind. It was brain overload though (like I'm sure you're getting now listening to everyone's stories!) :crazy:
 
Every year before school starts, we have a Meet the Teacher day. During that time, I advise the teacher that my son has been diagnosed with ADHD and that he is taking medication to control it. I ask that any changes in behavior that she notices be reported to me as soon as possible. Our pediatrician recommended that I work with his teachers to make sure the dosage is working for him.

My son takes Adderall. It took approximately two weeks to begin seeing a marked change in his behavior. The biggest side effect is loss of appetite. On rare occasions, he has a restless night. He only takes a total of 25mg per day.

It is a tough decision. I can certainly sympathize with your hesitancy!
 
My son is on Ritalin LA now. He used to be on Concerta. If your child has a problem with pills, you cannot cut or crush Concerta; however, the 18 mg pills are fairly small, the 36 mg ones are not. As most people report, the worst side effects occur in the first two weeks. Lack of appetite, very quiet, just overall kind of grumpy. Then they sort of magically disappear. The only one that didn't really disappear was the lack of appetite with the Concerta. Because Concerta has quite a sophisticated delivery mechanism, the shell of pill doesn't really disintegrate and will usually pass in the child's stool. I think, to a degree it bothered DS's stomach. Also, we didn't get the best response with Concerta (18 mg) and the 36 mg was too high. The higher dose caused him to chew his fingernails and nibble on his lips causing severe chapping. Adderall was just horrible for him, although it worked!

Last year, Ritalin LA came out. It is a regular capsule with spanules in it. Thirty percent of the spanules release immediately and 70% of the spanules release 3-4 hours later. They can be opened over applesauce or other cool food. He has MUCH fewer side effects and seems to do very well in school. In fact, just yesterday I got my first report back. My doctor has a "scales" form that he asks to send to the teachers. It asks them to rate certain behaviors (fidgeting, disruptiveness, work completion) on a scale of 1 to 3. One being "not at all" to three being "all the time." I was thrilled to see that he got mostly all ones. He did get two "2s" which means "sometimes" for fidgeting and talking out loud occasionally. But the teacher said that many of the non-ADHD kids would get this too. So, I'm real pleased with the Ritalin LA. If you have a problem with Concerta you may want to try this. Same drug, different delivery system. Metadate is also just like Ritalin LA except that it has a 50/50 time release versus 30/70 time release. My doctor explained why a 30/70 was better but I think it is more technical than I can explain here.

Anyway, as far as telling the school, if you can get away with not telling them, that is fine. My son's school has known from the beginning because they were so instrumental in the initial feedback of his behavior. I mean, in first grade, let's face it they don't have much homework and you don't really know what they do from day to day. There was no way I could know that he was not finishing his classwork and was belting out "This Land is Your Land" in the middle of working on his assignments if she had never told me and suspected that he had a problem. The teacher never said the word "ADHD" to me, as so many seem to do. But she did indicate that the things he was doing, while not bad, were outside the range of what the other kids were doing. So, during my conference I had to tell her that I was going to try to find out the answers to his behavior. I guess what really got me was a tape she had made of the first few weeks of school. She videotaped several of the activities that the kids do during their day and she showed this video to the parents at back to school night. It was a great video, until I saw them having "story time". There were all of the kids listening intently to the story. There was my son, listening to the story yet scooting around the classroom looking at the various toys and pictures around the class. He was laying around, rolling around, walking, tapping, etc. I was mortified. What I thought was "normal boy" behavior was obviously NOT!! The teacher's feedback in the classroom has always been key to adjusting his medication also. There is just so much that I cannot see at home. While one medication dose may make him seem *fine* at home, it may not be enough to work in the classroom. The classroom atmosphere is very different. I've also never felt that labeling him was a problem. It may have been 10 years ago, but not anymore. The school system, at least large school systems, have become very aware and there are many children with it.

On another tangent, but same topic, my 12 year old daughter was diagnosed with very mild ADHD when she was about 8. As with most girls, her problem is excessive daydreaming. Again, I would never have known without the teacher's input. She was tested and I was told that she was very borderline and that I could use behavior modification on this or I could use meds, which they thought meds got the best result. I went with the meds--I mean how do you modify a daydreaming behavior or inattentiveness that only happens in the classroom. Her teacher noticed a huge difference and all was well. Over the years, my daughter has resisted taking the meds from time to time and we have gone on and off them (Concerta for her). I don't know why she doesn't want to take them because she says she cannot "feel" them. Maybe it is a stigma for her. Anyway, we did go through some of 5th grade and some of 6th grade without the medication. But it is a struggle for her. She has been in 7th grade for a little over a month now and has brought home about 8 homework notices for not completing her homework properly. She has received 2 demerits, and one detention. All for not doing her assignments properly because she is not paying attention. In fact, her teacher called me the other day because she is not paying attention. The teacher had a big, long talk with her and my DD managed to do very well in 6th period--enough to really impress the teacher, but we both know that she cannot sustain this. The teacher did tell me that she is not the "only one" in the class with this problem but it is bad enough that there is a problem. This particular school, which is private, did not know about her ADHD. I did elect to tell the teacher at this point because there was really nothing that we could do to fix this with behavior mod. So, on Thursday DD and I will be back at the pediatrician looking for our new ADHD med. For me, this thread has been VERY timely.
 
You know your school and educators best. If you had asked when my was attending prekindergarten, I probably wouldn't have. My son was sent to the principal's office a few times due to his ADHD. I went in to talk to the principal (at my request, they didn't seem to care). I explained my thought that a 4 year old going to the principal's office is a BAD precendent. By second grade, he would be blase about going there! She blew me off, as she also did my day care provider with twin sons ADHD in 4th grade there.

We got redistricted out (Thank God!) and the principal at school 2 had a special ed background. She initiated testing for my son and we found out about his other problems (doc had dx'ed ADHD). At this school, we shared information back and forth regularly because we had major issues with his meds.

He's now in a program for kids with Asperger's (autism), and almost all the kids have ADHD as well. Meds are a part of life there--and they were told that I'd be starting them next Friday night. I wanted to see how he reacted over the weekend before he went off to school on them. I'm a little gun shy after the past few tries and wouldn't wish that on the teacher.

Basically, if you feel that you will be dismissed or treated poorly for letting the school know, then don't. If your DS is going to be on something long acting, then they won't need to be in the loop.

The scales that were mentioned are Connor's Scales. If your doctor wants you to send them in to school, then the school will know about your son's ADHD. Some doctors will ask you to complete them, and some will ask for the teacher to complete them as well.

Suzanne
 
Good morning everyone!

We started the Concerta this weekend. We see no real changes in behavior. He did have the ability to stay on task Saturday morning when doing chores and he did respond a little quicker to our requests that he settle down but really, he's the same bouncy kid he's always been. Today will be the test. We've decided not to tell the school yet, we want to see what the teacher says without putting ideas in her head.

The good news, no side effects at all so far. He's eating, sleeping and no sign of headache, stomach ache, etc.

I'll keep you all posted!

In the meanwhile, please continue to post your ADHD medication experiences here. I really enjoy reading them and I'm learning stuff every time.

Thanks all for the support with this!:grouphug:
 
I had posted earlier about our kids who are now on Strattera. Our DD had a bad stomach bug all last week, and so was off her medicine (she was throwing everything up!). Saturday we started the meds back, and the bad new is that the side effects are all back in force (nausea, extreme tiredness, headache, etc.)

So I'm still not a firm believer in Strattera.
 
Well, today was day 3 of the meds and day 1 of meds on a school day. We were quite apprehensive because we haven't really noticed much of a change in behavior this weekend, but then again, we don't have a problem with him at home.

Anyway, we didn't tell the teacher because we didn't want to color her opinions but he got a sticker today instead of a mark in his binder. :sunny: We're very pleased because in the last 2 weeks he hasn't gotten even 1 sticker. He is also on a "point sheet" which is marked Y or N in different categories. It's been full of N's lately but today was all Y's! So, we don't see much change but apparently it's enough to allow him to settle down and stay on task. This was only one day so we'll see how it goes but so far, so good!

So, anybody got any other med stories to share?

Tkd Lisa, that's a bummer about the side effects starting over again! We haven't experienced any yet...well, actually, DS didn't eat any lunch at all today which is weird for him although he's never been a big eater. He said he just wasn't hungry. He did have breakfast and dinner though and ate fine so I'm not really worried.
 
I've been dying to know how it went today! Sounds very promising!!! A sticker & all "Y's" too! YIPPEE!!!:bounce:

As for lunch....ever since my DS went on the meds, he has not been able to eat lunch. I make his lunch anyway & he'll eat 2 bites & brings home the rest of the sandwich for me to toss. I give him his meds AFTER a good breakfast (since I know he's not going to eat anymore till dinner, I feed him extra "hearty." Eggs or oatmeal with toast, etc...) Then at dinner he eats fine. So don't fret, that's just a normal side effect. Or so it seems! Just make sure that when he does eat, that he eats good, healthy stuff. I would mention it to the doctor anyway though.

My DS's neurologist told me "feed when hungry." She is very aware that my DS had no appetite or is hungry at the weirdest hours.

Please keep us informed on his progress. I'm sure that as Mother's of ADHD children, we're all concerned how things are going for your DS!

Ciao!
 
We're having minor pill swallowing issues.

The nurse wanted to switch us to Ritalin LA when she heard DS couldn't swallow pills....she checked with the Dr who said that we should try it with the Concerta because that was more appropriate for DS. He recommended practicing swallowing Mini M & M's. We practiced with the M&M's and he was able to swallow 7 of them with significant effort. Unfortunately he was Not able to swallow the Concerta. I ended up forcing it down his throat(like I do with my dog:o ) and he wasn't thrilled but didn't complain too much. Again yesterday and today he tried to swallow the pill but was unable so I did the shove it down his throat thing again. He's OK with it because he wants the meds but it would be really cool if he could learn to swallow the pill himself.

Anybody have any pill swallowing tips for kids?:(
 
My DS was diagnosed ADHD when he was in kindergarten. He has been tested off and on through the years and he is very smart with a very high IQ(this is common for kids with ADHD). This was his only learning disability but a very tough one to overcome. He was labeled in school by the teachers. The school was aware of his ADHD since the testing was done on their recommendation. People that got to know my son knew he was a good kid(big heart) but for people that didn't take the time to know him, they thought he was very disruptive. He always did better in school if he was given extra things to do(deliver notes to the office, staple papers etc). He has been on Ritalin for years now with no side effects. Grades at school have always been honor roll. He is now a college sophmore and lives away at school. He still takes his meds cause he knows they help him concentrate. I think he is an ADHD success story. My 11yo dd was diagnosed ADD 1 1/2yrs ago. She struggled through the 1st half of the school year. Very disorganized, not getting homework done etc. WE started her on meds without telling the school last January. Her grades went from B's & C's to straight A's. She has turned in all her homeowrk etc. When I went for conferences a few weeks after she started on the meds every teacher said to me, "Whatever you're doing at home really worked." They couldn't believe the difference in her. She is on Adderall with no side effects. I am pro meds BUT it is a personal decision. Good luck. Sounds like things are going in the right direction for your son.
 
fill your mouth with water DO NOT SWALLOW, tilt the head back and then put the pill in the mouth quickly my have a little water leek then swallow, the more water you can keep in the mouth the better,,,,, That is how I taught my 3 year old... but I have a cousin who is 40ish and she still cannot swallow a pill, she says it is a mental thing but it drives her crazy... then I taught her this a couple of months ago and it worked for her..... so good luck...
 
I have to take everything with milk. It's the only thing that works for me. The funny thing is...I Hate milk! My DS (12) takes all 9 1/2 of his pills at one time. Still can't figure out how he does it without choking. My DD (14) couldn't do it and fought me everytime, she finally HAD to just do it. Once she had done it a couple times, it got easier for her.
Hopefully you find something that works for him.:p Good Luck!
 







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