Esteri
DIS Veteran
- Joined
- Jun 9, 2006
- Messages
- 1,078
I'm in shock right now and could use your prayers, pixie dust, or whatever you believe in. My son was just diagnosed with moderate to severe hearing loss. It seems to be progressive and they are not sure when or if he will lose his hearing completely. We've got an appointment later this week to begin getting him hearing aids, an appointment next week with the ENT doc to try to determine the cause, and trying to get an appointment for genetic testing. We're trying to get all this done before I leave in 2 weeks.
It's all so overwhelming. I flucuate between being concerned about the cost since my medical doesn't cover hearing aids, the timing of trying to get things in place before I leave so that he can be ready to start school while I'm going, to the quality of life impacts for him.
I've noticed over the last few years that he would have the TV up rather loudly and that I would have to repeat things to him. But I passed it off and ST behavior, more of a listening issue than a hearing issue. But last month he asked to get a hearing test done. They started us out with his pediatrian and when they noticed some abnormalities in his test, they referred us to an audiologist. His hearing is about the same in both ears, but way below the average.
I have to give the audiologist credit though. When explaining that he needed hearing aids, she made it sound so cool with all the gadgets he'd be able to get. Such as special plugs for TV and iPods. And there's a device that the school has to provide that is a microphone that the teacher wears and it feeds directly into the hearing aid. My son hasn't complained at all yet about having to wear them. Especially after she told him he could get special designs on them.....get this, her example.....a skull and crossbones![]()
I'm slipping into the 'why me' mode this afternoon and that is not a place I want to be. I haven't had a chance yet to have a good cry, pour into the research or do anything productive. I had to get back to work after the appointment. I just feel that I'm going to crash and burn tonight but I need to stay positive for my son.
Monica - We'll keep you and your son in our thoughts and prayers.


